Disability Politics

Are You Two Sisters? is Susan Krieger's candid, revealing, and engrossing memoir about the intimacies of a lesbian couple. Krieger explores how she and her partner confront both the inner challenges of their relationship and the invisibility of lesbian identity in the larger world. Using a lively novelistic and autoethnographic approach that toggles back and forth in time, Krieger reflects on the evolution of her 40-year relationship. She describes building a life together, from sharing pets and travels to getting married.

When Tim Lefens walked into the Matheny School in New Jersey to show slides of his paintings, his one-hour visit became a life-changing experience. The students he met had severe physical challenges: only one of them could talk, none could walk, and all lacked the use of their hands.

We treat the body as an afterthought, until it no longer can be. Until the pain or the pleasure is too great. Sinéad Gleeson's life has been marked by terrible illness, including leukemia and debilitating arthritis. As a child, she bathed in the springs of Lourdes, ever hopeful that her body would cooperate, ever looking forward to the day when she could take her body for granted. But just as she turns inward to explore her own pain, and then the marvel of recovery, and then the arrival of her greatest joys—falling in love, becoming a mother—she turns her gaze outward.

In Beep, David Wanczyk illuminates the sport of blind baseball to show us a remarkable version of America’s pastime. With balls tricked out to squeal three times per second, and with bases that buzz, this game of baseball for the blind is both innovative and intense. And when the best beep baseball team in America, the Austin Blackhawks, takes on its international rival, Taiwan Homerun, no one’s thinking about disability. What we find are athletes playing their hearts out for a championship.

Preeti was barely six years old when doctors diagnosed her deteriorating vision as a condition due to optic atrophy. Those were difficult days but with the support and encouragement of her parents she learnt to get the best out of her disability. She looked for possibilities, focused on every positive she could dream of, always playing her best shot at facing challenges and failures with dignity and without shame.

A single mother of five, Ellen Rogers has endured her fair share of tragedy, having lost both her first husband and stepdaughter to cancer. But nothing could have prepared Rogers for the June 2005 car accident that left her son Ned - now 25 years old - a quadriplegic with a brain injury. The road to Ned's recovery was long and discouraging, but when Helping Hands: Monkey Helpers for the Disabled stepped in to provide him with a service animal to help him cope with his disabilities, things turned around.

Lt. Col. Tim Maxwell prided himself on being a hard-core Marinea patriotic Devil Dog on his third tour of Iraq. Then his brain was shredded with mortar shrapnel. Today, Maxwell has a large angry scar on the left side of his head. He forgets words, his wife has to read to him, and he drags one foot when he walks. Yet he works 12-hour days as commander of the Wounded Warrior Barracks at Camp Lejeune, North Carolina. For these warriors, Iraq and Afghanistan will never quite be in the past.

Quentin Kenihan is living proof that superheroes don't need capes, just the right attitude. When he was a kid, Quentin loved Superman. Ironic, really. Quentin didn't need kryptonite to reveal his weakness - born with a rare bone disorder, osteogenesis imperfecta, his bones broke all on their own. When Quentin was seven, Mike Willesee made a documentary about him. Australians fell in love with his wit and never-say-die attitude. Over the years he grew up before our eyes. But there was a dark side to his life. The true story was never told...until now.

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

A 16 ans, Jacques Sémelin apprend qu'il va devenir aveugle. Pendant des années, il garde ce secret pour lui et affronte seul l'angoisse et la progression de la cécité.

Disability is often described as a tragedy, a crisis, or an aberration, though 1 in 5 people worldwide have a disability. Why is this common human experience rendered exceptional? In All Our Families, disability studies scholar Jennifer Natalya Fink argues that this originates in our families. When we cut a disabled member out of the family story, disability remains a trauma as opposed to a shared and ordinary experience. This makes disability and its diagnosis traumatic and exceptional.

How I Became a Human Being is Mark O'Brien’s account of his struggles to lead an independent life despite a lifelong disability. In 1955 he contracted polio and became permanently paralyzed from the neck down. O'Brien describes growing up without the use of his limbs, his adolescence struggling with physical rehabilitation and suffering the bureaucracy of hospitals and institutions, and his adult life as an independent student and writer. Despite his physical limitations, O'Brien crafts a narrative that is as rich and vivid as the life he led.

Conjoined twins Chang and Eng Bunker have fascinated the world since the 19th century. In her captivating book, Chang and Eng Reconnected, Cynthia Wu traces the "Original Siamese Twins" through the terrain of American culture, showing how their inseparability underscored tensions between individuality and collectivity in the American popular imagination.

Connected at the chest by a band of flesh, Chang and Eng Bunker toured the United States and the world from the 1820s to the 1870s, placing themselves and their extraordinary bodies on exhibit as "freaks of nature". More famously known as the Siamese twins, they eventually settled in rural North Carolina, married two white sisters, became slave owners, and fathered 21 children between them. More than a biography of the twins, this is a study of 19th-century American culture and society that reveals how Americans projected onto the twins their own hopes and fears.

From the Periphery consists of more than 30 first-person narratives of everyday people who describe what it's like to be treated differently by society because of their disabilities. The stories are raw and painful, but also surprisingly funny and deeply inspiring. The oral histories describe anger, independence, bigotry, solidarity, and love - in the family, at school, and at the workplace. From the Periphery will become a classic collection that increases understanding of the lived experiences of people with disabilities.

More than 2,000 years ago, Aristotle said: "let there be a law that no deformed child shall live." This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy.

Whistle is a heartfelt story blending family connections, personal growth, and the magical bond between a mother and her autistic daughter, Kennedy. Centered around the unique communication method of a whistle sound, the story narrates Kennedy’s experiences and how the whistle became a bridge to understanding her inner world. Through imaginative storytelling, the book captures Kennedy’s challenges and triumphs, the unwavering love of her family, and the lessons they learn about patience, acceptance, and connection.

Developing a cybernetic model of subjectivity and personhood that honors disability experiences to reconceptualize the category of the human.

For over 30 years, The Silent Garden has offered parents of deaf children the support and unbiased information needed to fully realize their children’s potential. This completely revised third edition is a must-have resource that will help parents navigate the complex and unique challenges they face. Accessible, practical, and above all open-minded, The Silent Garden educates parents quickly and thoroughly about the many conflicting points of view on what is best for their deaf children.

Sight Unseen reveals the cultural and biological realities of race, gender, and sexual orientation from the perspective of the blind. Through 10 case studies and dozens of interviews, Ellyn Kaschak taps directly into the phenomenology of race, gender, and sexual orientation among individuals born blind, along with the everyday epistemology of vision. Kaschak's work reveals not only how the blind create systems of meaning out of cultural norms but also how cultural norms inform our conscious and unconscious interactions with others regardless of our physical ability to see. She exposes gender, race, and sexual orientation as unconscious and pre-verbal in the sighted, an aspect of implicit bias.