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Living With Brain Disease

Stroke, Neurodegeneration, and the Changing Mind

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Living With Brain Disease

Auteur(s): Dr Elias Morton
Narrateur(s): Tess Stalker
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À propos de cet audio

There is a particular kind of fear that arrives when the brain is involved. People can face heart disease, lung disease, kidney disease, and even cancer with a grim determination, but when the doctor begins to speak about the brain, something changes in the room. The atmosphere tightens. The future feels less predictable. The questions become more personal, more intimate, and often more frightening, because the brain is not only an organ that keeps us alive. It is the place where our sense of self seems to live. It holds our memories, our language, our personality, our judgement, our humour, our patience, our ability to plan, and our capacity to recognise the faces we love. When the brain is injured or begins to change, it can feel as if life itself is being rearranged from the inside out.

This audiobook is written for people living with brain disease, and for the families and friends who find themselves living with it too. It is written for the person who has had a stroke and now feels as if their body is unfamiliar. It is written for the partner who hears a loved one speak differently, hesitate over words, or lose the thread of a conversation, and wonders whether this is temporary or the beginning of something long-term. It is written for the adult child who notices slight changes in a parent’s mood, attention, or memory and feels a quiet dread they cannot easily name. It is written for the caregiver who is exhausted, guilty about feeling exhausted, and uncertain how to describe a life that has become both meaningful and unbearably heavy. It is also written for the person who has a diagnosis on paper but still feels unseen, because the world tends to recognise disability more readily when it is visible.

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