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More than You Can Handle
- A Rare Disease, a Family in Crisis, and the Cutting-Edge Medicine that Cured the Incurable
- Narrateur(s): Miguel Sancho
- Durée: 9 h et 37 min
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More than You Can Handle
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Description
The personally harrowing and medically enthralling story of a family's struggle to save a child from a deadly immune deficiency.
A journey through the deepest valleys and highest peaks of parenting. When a two-month-old baby falls ill, his apparently ordinary symptoms turn out to signal a rare and lethal immune deficiency. For parents Miguel Sancho and Felicia Morton, the discovery that their son, Sebastian, has chronic granulomatous disease (CGD) upends their lives and leaves the family with few options, all of them terrifying. With Sebastian at constant risk of deadly infection, they spend the next six years in some degree of self-quarantine, with all its attendant anxieties and stressors, as they struggle to keep their son alive, their marriage intact, and themselves sane.
The quest for a cure leads them into the alternate universe of the rare-disease community, and to the cutting edge of modern medicine, as their personal crises send them fumbling through various modalities of self-help, including faith, therapy, and meditation. With brutal honesty, Sancho describes how his struggles derail his career, put his marriage on life support, get his family evicted from a Ronald McDonald House, and ruin a Make-a-Wish trip.
Sancho's riveting tale of the diagnosis and treatment of his son's illness takes us deep inside the workings of the immune system, and into the radically innovative treatment used to repair it. Ultimately Sebastian is saved with a stem cell transplant using discarded umbilical cord blood, a groundbreaking technique pioneered and practiced by the medical wizards at Duke University Hospital.
Deeply researched and darkly humorous, this is a wrenching tale with a triumphant ending.
Ce que les critiques en disent
“An extraordinary book...by turns harrowing and heroic and darkly humorous, it is a must read for any family confronting an unimaginable diagnosis. I couldn’t put it down. You will laugh, and you will cry, and you will be moved by the profound courage of ordinary people." (Elizabeth Vargas, New York Times best-selling author of Between Breaths)
“A heart-wrenching story of what a parent dreads the most: to hear their child has a deadly disease. We are with the family as they struggle to find answers and hope in a situation where there is little of either. A poignant and triumphant story of one family’s journey through the intricacies of medicine in a desperate bid to save their child.” (James R. Doty, MD, New York Times best-selling author of Into the Magic Shop)
“More Than You Can Handle is must-reading for those who glibly think that God will not allow us to be tested to the uttermost if we are just faithful persons. For anyone who has gone through such experiences and come out on the other side, this is medicine for the soul. As it turns out, the road to triumph often leads through, not around, tragedy, but then Christians should know this from the way the story of Christ ends.” (Ben Witherington III, author of Who God Is)