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Rare Disease Stories from the SFN Dad to Dad Podcasts
- Narrateur(s): David Hirsch
- Durée: 11 h et 45 min
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Rare Disease Stories from the SFN Dad to Dad Podcasts
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Description
This new audiobook is third in a series of inspirational stories about fathers raising children with special needs.
Rare Disease Stories from the SFN Dad to Dad Podcasts is a compilation of 12 stories told from the perspectives of fathers raising children with rare diseases. Each of the 12 chapters includes a heartfelt story by a father who has also agreed to serve as a Special Fathers Network (SFN) Mentor Father.
The foreword to the book is by John Crowley, one of the 12 dads whose story is included here.
John is the CEO of Amicus Therapeutics, a publicly traded gene therapy and research firm. John is also the father of three, including Megan and Patrick, who have Pompe disease, and John Jr., who has Asperger's. The Dad to Dad Podcast, now with more than 230 episodes, was created by the 21st Century Dads Foundation to inspire dads to be more present in the lives of their children and to promote the Special Fathers Network.
About the Special Fathers Network: SFN is a dad-to-dad mentoring program for fathers raising children with special needs. Many of the 500+ SFN mentor fathers, who all are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church, or within my friend group who understood or could relate to what I was going through."
SFN mentor fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN mentor fathers do not offer legal or medical advice; that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.