We the Scientists
How a Daring Team of Parents and Doctors Forged a New Path for Medicine
Échec de l'ajout au panier.
Veuillez réessayer plus tard
Échec de l'ajout à la liste d'envies.
Veuillez réessayer plus tard
Échec de la suppression de la liste d’envies.
Veuillez réessayer plus tard
Échec du suivi du balado
Ne plus suivre le balado a échoué
0,00 $ pour vos 30 premiers jours
OFFRE D'UNE DURÉE LIMITÉE
0,99 $/mois pendant vos 3 premiers mois
L'offre prend fin le 16 décembre 2025 à 23 h 59, HP.
Exclusivité Prime: 2 titres
gratuits à choisir pendant l'essa. Des conditions s’appliquent.
Vos 3 premiers mois d'Audible à seulement 0,99 $/mois
1 nouveauté ou titre populaire à choisir chaque mois – ce titre vous appartiendra.
L'écoute illimitée des milliers de livres audio, de balados et de titres originaux inclus.
L'abonnement se renouvelle automatiquement au tarif de 0,99 $/mois pendant 3 mois, et au tarif de 14,95 $/mois ensuite. Annulation possible à tout moment.
Choisissez 1 livre audio par mois dans notre incomparable catalogue.
Écoutez à volonté des milliers de livres audio, de livres originaux et de balados.
L'abonnement Premium Plus se renouvelle automatiquement au tarif de 14,95 $/mois + taxes applicables après 30 jours. Annulation possible à tout moment.
We the Scientists
Narrateur(s):
Kristen DiMercurio
Acheter pour 17,99 $
-
Narrateur(s):
-
Kristen DiMercurio
-
Auteur(s):
-
Amy Dockser Marcus
À propos de cet audio
For more than half a century, medical advances have been driven by investigators launching experiments inside labs. Science is often conducted in isolation and geared toward the long view. This is the story of a group of people who tried to force the lab doors open: parents whose children had been diagnosed with a rare and fatal genetic condition known as Niemann-Pick disease type C. The disease prevents cells from processing cholesterol, which leads to the progressive loss of the brain’s and the body’s ability to function. Recognizing that there would never be a treatment in time to save their children if things stayed the same, the parents set up a collaboration with researchers and doctors in search of a cure.
Reconciling different views of science took work. The parents, doctors, and researchers didn't always agree—among themselves or with each other. But together they endeavored to accelerate the development of new drugs. The parents became citizen scientists, identifying promising new treatments and helping devise experiments. They recorded data about the children and co-authored scientific papers sharing findings. They engaged directly with the FDA at each step of the drug approval process. Along the way, they advanced the radical idea that science must belong to us all.
Amy Dockser Marcus shows what happens when a community joins forces with doctors and researchers to try to save children’s lives. Their extraordinary social experiment reveals new pathways for treating disease and conducting research. Science may be forever changed.
Pas encore de commentaire