When Darice's first son was diagnosed with autism nearly two decades ago, she was handed a label and no support. Today, she's raising two autistic children and is married to an autistic husband, using her insight to balance a household with multiple diagnoses. In this heartfelt and often funny conversation, Darice shares her family's experiences navigating quirky symptoms and school challenges to advocacy, life skills, and celebrating individuality. This episode reminds us that every autistic person's story is unique, even when they share the same roof.

Sponsored by the West Virginia Department of Human Services, Office of Maternal, Child, and Family Health/Children with Special Health Care Needs Program and the West Virginia Family 2 Family Health Information Center and Produced by the West Virginia University Center for Excellence in Disabilities.

Episode Transcript Here

In this moving episode, our guest Aimee shares her family's journey after learning that her daughter Caroline was diagnosed with Aicardi syndrome, a rare genetic disorder that primarily affects girls. Aimee speaks with honesty and courage as she shares about the shocking moment of diagnosis during a routine anatomy scan, navigating high-risk pregnancy appointments, and the overwhelming mix of fear and gratitude when Caroline finally came home from the hospital. She discusses the challenges, the unexpected blessings, and what it means to adjust dreams while embracing the joy of the present.

This conversation offers hope, perspective, and a deeper understanding of what families face when rare diagnoses turn their world upside down.

Learn more about Aicardi Syndrome here.

Sponsored by the West Virginia Department of Human Services, Office of Maternal, Child, and Family Health/Children with Special Health Care Needs Program and the West Virginia Family 2 Family Health Information Center and Produced by the West Virginia University Center for Excellence in Disabilities.

Episode Transcript Here

If you have a story that you would like shared on the podcast, please send us an email at courtney.ringstaff@hsc.wvu.edu

When Gennifer and her husband got a late-night call about an unexpected baby, they had no idea it would lead them to a life filled with challenges, resilience, and unconditional love. In this heartfelt episode, Gennifer shares the powerful story of adopting her son Weylon, born with a brain injury and complex medical needs. From navigating seizures and hospital stays to building a strong family bond and advocating fiercely for his care, Gennifer opens up about the realities of raising a child with disabilities, while balancing a large, blended family. Her journey is one of perseverance, community support, and redefining what's possible when love leads the way.

Sponsored by the West Virginia Department of Human Services, Office of Maternal, Child, and Family Health/Children with Special Health Care Needs Program and the West Virginia Family 2 Family Health Information Center and Produced by the West Virginia University Center for Excellence in Disabilities.

Episode Transcript Here

If you have a story that you would like shared on the podcast, please send us an email at courtney.ringstaff@hsc.wvu.edu