But I Didn’t Know… Cancer Doesn’t Always Look Like the Movies (with Alicia)

Alicia is 33, a new mum, and on paper, “indefatigable.” Her early signs didn’t look cinematic: a stubborn cough, a fading voice, a tiredness that didn’t make sense. In this candid, behind-the-scenes conversation, Alicia shares how she kept notes, asked clear questions, and partnered with her clinicians to reach a hodgkin lymphoma diagnosis, reminding us that self-advocacy isn’t defiance, it’s good care done together.
This episode shares lived experience, not personal medical advice; please speak with your clinician about your personal situation.

In this episode:

• Life before and after diagnosis, and the Thursday phone call many of us fear.

• The small clues that add up and how to bring your lived wisdom into the room.

• A gentle plan for “results day” and staying steady in uncertainty.

• Heidi’s reflective narration on dignity, partnership, and practical next steps.

You’ll leave with:

• A simple way to prepare a one-page brief for appointments.

• Three questions to open up options with your care team.

• Language to protect your dignity without confrontation.

Notes & links: We’ve written up Alicia’s self-advocacy tips.

Made with care by Purpose Media CBR, sharing the trodden paths Canberrans use to find help. Thanks to our Founding Partner Embrace Disability Group for backing stories that give back, consider The Dug Out for your next community-minded function or catering.

Hodgkin lymphoma, cancer journey, health advocacy, emotional resilience, motherhood, diagnosis, healthcare system, personal story, support, coping mechanisms