Finding Agency in the Unimaginable: Sandra Abrevaya on Caregiving, Advocacy, and Hope
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Finding Agency in the Unimaginable: Sandra Abrevaya on Caregiving, Advocacy, and Hope
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In this episode of Mind What Matters, Elizabeth Humphreys and Nikki DeLoach sit down with Sandra Abrevaya—caregiver, advocate, and co-founder of I AM ALS and Synapticure. Sandra opens up about her husband Brian’s eight-year journey with ALS, the waves of grief and resilience that come with prolonged caregiving, and the fight to hold on to light in the darkest seasons.
Together, they explore the realities of raising two young children while navigating a terminal illness, the toll of extended caregiving on identity and mental health, and how Sandra has turned pain into purpose through service and advocacy. From forcing herself to rise off the “bathroom floor moments” to creating accessible virtual care for families across the country, Sandra shares her story with raw honesty and courage.
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Mind What Matters is produced by the team at Palm Tree Pod Co.