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GOALS: An ALS United Podcast

GOALS: An ALS United Podcast

Auteur(s): ALS United Mid-Atlantic
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À propos de cet audio

Discussing issues important to the ALS community with views from people living with ALS and those supporting the ALS cause. Topics range from research to caregiving to advocacy and fundraising. Support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.orgCopyright 2025 All rights reserved. Développement commercial et entrepreneuriat Entrepreneurship Gestion et leadership Économie
Épisodes
  • Communication Issues Related to ALS. GOALS Podcast with Alisa Brownlee and Amanda Cuth for ALS United Mid-Atlantic
    Dec 9 2025

    In this podcast episode, Alisa Brownlee and Amanda Cuth discuss the challenges and strategies related to speech therapy for individuals with ALS. They explore the impact of ALS on communication, the importance of voice preservation techniques such as voice banking and cloning, and the role of technology in enhancing communication. The conversation also covers compensatory strategies for speech therapy, emergency communication needs, and the emotional aspects of dealing with communication changes. Amanda emphasizes the need for professional guidance in navigating these challenges and highlights the advancements in communication devices and techniques.

    Alisa Brownlee and Amanda Cuth each have many years of experience addressing communication needs for people with ALS.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    38 min
  • ALS United Mid-Atlantic GOALS Podcast: Giving Tuesday 2025 with Gale Ferranto and Buona Foods
    Dec 2 2025

    Gale Ferranto and Buona Foods are uniting to match your donations for #GivingTuesday to ALS United Mid-Atlantic. In this GOALS Podcast, Gale discusses her mother's battle with ALS and her support for ALS care and research.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    21 min
  • How BCI and AI can combine to help people with ALS: GOALS Podcast with ALS United Mid-Atlantic and Synchron
    Nov 25 2025

    Charles Poeppelman joins the ALS United Mid-Atlantic GOALS Podcast to discuss how Synchron is developing Brain Computer Interface technology to improve the lives of people with ALS. In this podcast, we discuss how AI can enhance the power of BCI, how BCI can improve safety, and how this technology can address accessibility and communication.

    Learn more about the January 21st educational webinar at learnaboutbci.com Additional information at www.synchronbci.com

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    33 min
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