Obtenez 3 mois à 0,99 $/mois

OFFRE D'UNE DURÉE LIMITÉE
Page de couverture de IDD Health Matters

IDD Health Matters

IDD Health Matters

Auteur(s): Friends for Life
Écouter gratuitement

À propos de cet audio

IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities.2023 Hygiène et mode de vie sain Troubles et maladies
Épisodes
  • Ep 124: Bridging Technology and Care to Empower People With IDD
    Dec 1 2025

    Nick Alexander shares his journey from industrial engineering in regulated industries to innovating healthcare technology. Nick explains how his company, Never Alone, focuses on improving independence and social connection for seniors and individuals with intellectual and developmental disabilities (IDD). Initially designed as a telehealth platform, it evolved into a holistic care solution combining medical support and social engagement, available 24/7 through simple devices. The service emphasizes personalized care plans, rural access, and partnerships with local providers to ensure continuity and trust. Nick highlights the importance of solving the right problems, building strong teams, and maintaining user-centered design, concluding with three guiding principles: lead with care, collaborate and innovate patiently, and practice kindness.

    Voir plus Voir moins
    14 min
  • Ep 123: Jackie Kancir Pushes Policy and Integration for People with Profound Autism
    Nov 24 2025

    Jackie Kancir, a lifelong patient and policy advocate and current Policy Director for the National Council on Severe Autism, discusses her work to improve health equity and services for individuals with profound autism and intellectual disabilities. Speaking at the American Academy of Developmental Medicine and Dentistry conference, she highlights challenges such as the "cliff" faced when individuals age out of pediatric care, the need for integrated health systems, and her efforts to amend the Autism CARES Act and implement mandatory hospital protocols for safe care. Drawing from personal experience as a mother to a 21-year-old with profound autism and complex medical needs, Jackie emphasizes collaboration among policymakers, clinicians, and advocates, and shares practical insights like addressing diagnostic overshadowing and thinking creatively about meaningful opportunities for people with disabilities.

    Voir plus Voir moins
    11 min
  • Ep 122: Nick Wood Highlights Workforce Challenges and Managed Care Evolution for Better IDD Services
    Nov 17 2025

    Nick Wood, speaking at the Kansas InterHab conference, discusses the role of InterHab as a statewide trade association supporting providers for people with intellectual and developmental disabilities (IDD). He emphasizes the benefits of collaboration, communication, and training among member organizations, as well as advocacy for policy improvements. Key challenges include workforce shortages, recruitment and retention of direct support professionals, and the need for person-centered approaches. Wood also explores the complexities of managed care in Kansas, highlighting its unique full-risk Medicaid model and the importance of integrating medical, behavioral, and long-term supports. He calls for better training, common language, and innovative solutions to address waiting lists and improve health equity for individuals with IDD.

    Voir plus Voir moins
    25 min
Pas encore de commentaire