In the Making: The 360-degree Turn
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In the Making: The 360-degree Turn
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À propos de cet audio
In the second episode of the podcast "In the Making," host Shilpa shares her personal journey from the joy of unexpected parenthood to the devastating discovery of a rare genetic disorder in her daughter, Theia.
The episode begins with Theia's premature birth, followed by a week in the NICU. Despite initial challenges, life seemed good as Theia grew into a beautiful baby. However, red flags about her health emerged, leading to the diagnosis of GM1 Gangliosidosis, a fatal genetic disorder. Shilpa takes the audience through the emotional rollercoaster of receiving the diagnosis and the subsequent testing that confirmed it.
The episode ends with the heart-wrenching news that Theia had only 18 months to live, leaving the family in darkness. Shilpa promises to share more of their journey in the next episode.