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Myeloma Matters: A Podcast Series from the Multiple Myeloma Research Foundation

Myeloma Matters: A Podcast Series from the Multiple Myeloma Research Foundation

Auteur(s): Multiple Myeloma Research Foundation
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À propos de cet audio

Each episode focuses on patients’ experiences with and perspectives on multiple myeloma topics that matter to anyone affected by this blood cancer.Multiple Myeloma Research Foundation Hygiène et mode de vie sain
Épisodes
  • Patient Experiences With CAR T-Cell and Bispecific Antibody Therapy
    Feb 4 2025

    In this episode, we explore an exciting and rapidly evolving area of myeloma treatment: immunotherapy, with a focus on two groundbreaking approaches, CAR T-cell therapy and bispecific antibody therapy. These therapies are changing myeloma care, offering new hope for patients whose treatment no longer works. You’ll hear about the decisions they faced when considering these treatments; the ways they prepared mentally, physically, and emotionally; and what their experience has been.

    Topics of discussion:

    (4:05) Decision-making process for CAR T-cell therapy

    (8:15) Experience receiving CAR T-cell therapy

    (12:35) Experience receiving bispecific antibody therapy

    (14:58) Considerations for enrolling in a clinical trial

    (20:15) Role of caregivers and patient advocates

    (24:05 Managing side effects

    (33:18) Impact of CAR T-cell and bispecific antibody therapy

    This episode is supported by AbbVie, Amgen, CURE, Genentech, GSK, Johnson & Johnson, Karyopharm, Legend Biotech, Pfizer, Regeneron, and Sanofi.

    To learn more about CAR T-cell therapy, download A Guide to CAR T-Cell Therapy in Myeloma here.

    To learn more about bispecific antibody therapy, download Bispecific Antibodies for Multiple Myeloma: What you Need to Know here.

    To learn more about multiple myeloma, visit www.themmrf.org.

    If you want to learn more about the MMRF’s FREE resources for patients and caregivers, visit the MMRF Education Hub.

    If you have additional questions, call our MMRF Patient Navigation Center at 1-888-841- 6673.

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    43 min
  • Balancing Life With Myeloma: Supportive Solutions for Managing Your Side Effects and Mental Health
    Dec 19 2024

    In this episode, we discuss supportive care, which encompasses the management of both treatment side effects and complications of multiple myeloma rather than the disease itself. We’ll hear from a patient living with myeloma and a social worker working in oncology as they discuss their experiences with supportive care and what you can do to improve your quality of life.

    Topics of discussion:

    (4:54) Supportive care and quality of life

    (7:26) Role of a social worker

    (9:06) Fatigue

    (13:31) Pain

    (19:44) Peripheral neuropathy

    (21:56) Mental health distress

    (27:42) Gastrointestinal symptoms

    (31:08) How to communicate with your health care team

    This episode is supported by AbbVie, Amgen, CURE, Genentech, GSK, Johnson & Johnson, Karyopharm, Legend Biotech, Pfizer, Regeneron, and Sanofi.

    To learn more about supportive care, visit www.themmrf.org/support.

    To learn more about multiple myeloma, visit www.themmrf.org.

    If you want to learn more about the MMRF’s FREE resources for patients and caregivers, visit the MMRF Education Hub.

    If you have additional questions, call our MMRF Patient Navigation Center at 1-888-841- 6673.

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    41 min
  • Survivorship
    Nov 22 2024

    In this episode, you’ll learn what being a cancer survivor means, why the concept of survivorship is important to patients living with myeloma, how to be an empowered advocate for your care, and what to expect day-to-day in your myeloma journey.

    MMRF patient navigators Erin Mensching, Grace Allison, and Brittany Hartmann join the podcast to provide up-to-date information on myeloma management, talk about resources that are available to myeloma patients, and offer suggestions on connecting with other myeloma patients, caregivers, and experts.

    (0:00) Definition of survivorship

    (2:04) Learning the diagnosis

    (10:24) Shared decision-making

    (39:28) Empowerment through knowledge

    This episode is supported by AbbVie, Adaptive, BMS, CURE, Genentech, Kite/Arcellx, Pfizer, Regeneron, and Sanofi.

    To learn more about newly diagnosed multiple myeloma, download the Survivorship Fast Facts in Myeloma here.

    To learn more about multiple myeloma, visit www.themmrf.org.

    If you want to learn more about the MMRF’s FREE resources for patients and caregivers, visit the MMRF Education Hub.

    If you have additional questions, call our MMRF Patient Navigation Center at 1-888-841- 6673.

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    57 min

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