In this week's episode of The Autism Mums Podcast, we discuss the challenges faced by parents navigating the waiting period for their child's autism diagnosis. We explore strategies for gathering evidence, advocating for support, and managing the differences in behaviour between home and school settings. With practical tips and personal insights, we aim to empower parents to take proactive steps during this often frustrating and isolating time.

Understanding the Waiting Game: Many parents face the challenge of navigating the waiting period for their child's autism diagnosis, often feeling isolated and unsure of the next steps.

Coping at Home vs. School: Children may present differently at school compared to home, leading to discrepancies in support. It’s vital to gather evidence of behaviours at home to advocate effectively.

Gathering Evidence: Documenting your child's struggles through video recordings or diaries can provide crucial evidence when communicating with schools and professionals.

Utilising School Resources: Engage with schools to explore options like re-engagement sessions, youth workers, or alternative therapies that can provide support and evidence for assessments.

Professional Input Matters: Involving various professionals—such as therapists, tutors, and behavioural nurses—can strengthen your case for support and diagnosis by offering diverse perspectives on your child's needs.

Stay Proactive: Regularly follow up with schools and professionals regarding assessments, and don’t hesitate to reach out to your MP if you encounter significant delays in the process.

Explore Alternative Routes: Consider different pathways for assessments, such as CAMHS or private assessments, which may have shorter waiting times compared to traditional routes.

Community Support: Connecting with other parents and support groups can provide invaluable advice and encouragement during the challenging waiting period.

Self-Care for Parents: Acknowledge the emotional toll that waiting for a diagnosis can take, and we really recommend prioritising self-care to maintain your well-being while advocating for your child.

Resource Recommendations: Explore recommended books and resources that can provide further insight and support for navigating autism-related challenges.

The Explosive Child by Ross Greene

Raising The SEN-Betweeners by Lisa Lloyd

Aspergers Syndrome by Tony Attwood

The Girl with the Curly Hair by Alis Rowe

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Navigating the Waiting Game: Essential Tips for Parents of Kids with Autism

Natalie Tealdi: [00:00:00] in this episode, we discuss the challenges faced by parents navigating the waiting period for their child's autism diagnosis. We explore

strategies for gathering evidence, advocating for support, and

managing the differences in behavior between home and school

settings.

Practical tips and personal

insights. We want parents to know that we get how...