Patients Are the Center with Kimberly Haugstad, MBA
Échec de l'ajout au panier.
Veuillez réessayer plus tard
Échec de l'ajout à la liste d'envies.
Veuillez réessayer plus tard
Échec de la suppression de la liste d’envies.
Veuillez réessayer plus tard
Échec du suivi du balado
Ne plus suivre le balado a échoué
Patients Are the Center with Kimberly Haugstad, MBA
-
Narrateur(s):
-
Auteur(s):
À propos de cet audio
On this episode of Soundbites of the Annual Meeting, we talked to Kimberly Haugstad, CEO of RareRising and a longtime rare disease advocate who is also the parent of a child with severe hemophilia.
In her conversation with ASGCT's Communications Committee Chair, Lynnea Olivarez, Kimberly discusses:
- why patients, as the "lived experience experts" are so important to rare disease communications
-
advice for scientists who would like to engage more directly with patient communities
- what's giving her hope right now
Listen and subscribe to the ASGCT Podcast Network so you don't miss any episodes!
Show your support for ASGCT!: https://asgct.org/membership/donate
See omnystudio.com/listener for privacy information.
Pas encore de commentaire