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St. Jude Inspire Audio Stories

St. Jude Inspire Audio Stories

Auteur(s): St. Jude Children's Research Hospital
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 St. Jude Inspire is where you can find standalone audio stories of patients, families, staff and supporters of St. Jude Children’s Research Hospital. Subscribe to this feed to hear these stories and episodes of other St. Jude Inspire podcast series. You can find more information and written versions at stjude.org/inspireALSAC/St. Jude Children's Research Hospital Développement commercial et entrepreneuriat Entrepreneurship Gestion et leadership Sciences sociales Économie
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  • Courtney shares what it’s like living with sickle cell disease

    Courtney shares what it’s like living with sickle cell disease
    Sep 17 2025
    Courtney is living her best life, enjoying time with friends in New York City and working hard as she establishes her career. She also has sickle cell disease. And she deals with the physical and emotional effects of it day in and day out.

    Sickle cell disease is an inherited disorder that affects about 100,000 people in the United States, predominantly African Americans. The disease affects red blood cells. Normally, they're round and plump. Sickle cell disease warps them into crescent shapes. That makes them less flexible and less able to carry oxygen to internal organs. A person with sickle cell disease faces a lifetime of potential health complications like heart disease, kidney disease, stroke, and frequent bouts of intense pain.
    In this conversation, Courtney talks about the care and education about sickle cell disease she received as a patient at St. Jude Children’s Research Hospital. She says it’s important to find community, to have a strong base of support, and to know how to advocate for yourself.

    Courtney was one of the very first babies at St. Jude to be part of a study called BABYHUG. It helped pave the way for a medication called hydroxyurea to be approved for young children with sickle cell disease. She has high hopes for more innovations in treatment in the future.

    St. Jude is the primary treatment center for children with sickle cell disease in the Memphis area, and it is also one of the largest sickle cell disease programs in the country. In 1983, a St. Jude patient was the first person to be cured of sickle cell disease through a bone marrow transplant. Today, in addition to participating in and leading several clinical trials studying the use of hydroxyurea in children, St. Jude is also studying gene therapy as a potential cure for sickle cell disease as well as techniques to make stem cell transplantation less risky and more broadly accessible.

    You can find more information about research into sickle cell disease and the patients and families who find care at St. Jude here
    https://www.stjude.org/get-involved/other-ways/sickle-cell-awareness-month.html#impact
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    22 min
  • The long road home

    The long road home
    Sep 22 2022
    Each cancer journey is different. For Jennings, it’s meant years of treatment, hundreds of highway miles between his home state and St. Jude in Tennessee, and two bone marrow transplants. St. Jude Inspire writer Karina Bland tells the story of Jennings through the eyes of his dad Joel.

    This episode is free of advertising.

    Read a transcript of this episode:
    https://www.stjude.org/inspire/podcasts/audio-stories/the-long-road-home.html

    Read the story about Jennings and his family:
    https://www.stjude.org/inspire/series/home-from-st-jude/long-journey-ends-with-long-ride-home-from-st-jude.html

    Donate to St. Jude:
    https://www.stjude.org/inspire

    Credits: Hosted by Geoffrey Redick. Reported by Karina Bland. Edited by Grace Korzekwa Evans. Louis Graham is the Executive Producer of St. Jude Inspire.
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    16 min
  • The chain remains unbroken

    The chain remains unbroken
    Jun 23 2022
    Special Report: Ukraine

    When Russia invaded Ukraine, Natalia Vilcu could hear the airstrikes. She lives in Chișinău, the capital of Moldova. Through the air, the city is less than a hundred miles from Odessa in Ukraine, one of the first places Russian forces hit.
    Natalia is the president of a foundation called Life Without Leukemia. It’s part of an effort called SAFER Ukraine. St. Jude Children’s Research Hospital and ALSAC, its fundraising and awareness organization, have played a coordinating role in that effort, helping to establish an umbrella of support throughout Europe and even into North America.
    St. Jude Inspire podcast host Geoffrey Redick talks with writer Kristina Goetz about Natalia’s experiences helping pediatric cancer patients leave Ukraine to continue treatment.

    This episode is free of advertising.

    Read Kristina’s story about Life Without Leukemia helping Ukrainian pediatric cancer patients:
    https://www.stjude.org/inspire/series/around-the-world/partner-foundation-moldova-evacuate-ukrainian-kids-cancer.html

    Learn more about the SAFER Ukraine initiative and donate:
    https://www.stjude.org/inspire/series/around-the-world/special-report-ukraine.html

    Read Kristina’s story about Natalia’s efforts to save her son:
    https://www.stjude.org/inspire/series/around-the-world/how-far-one-mother-would-go.html

    Listen to the audio version of that story:
    https://www.stjude.org/inspire/podcasts/audio-stories/st-jude-audio-stories-how-far-one-mother-would-go.html

    Credits: Hosted by Geoffrey Redick, with reporting by Kristina Goetz. Edited by Grace Korzekwa Evans. Louis Graham is the Executive Producer of St. Jude Inspire.
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    14 min
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