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The Chronicles of Autism Moms

The Chronicles of Autism Moms

Auteur(s): Learn Autism
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 This Life: The Chronicles of Autism Moms is an exciting and witty podcast documenting the 10 year journey and beyond of a vibrant international group of mothers of individuals on the Autism spectrum.Copyright 2022 All rights reserved. Hygiène et mode de vie sain Psychologie Psychologie et santé mentale Relations Éducation des enfants
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  • What You Wish You Knew

    What You Wish You Knew
    Dec 17 2022
    Summary This week Alison is joined by Huma and Moira as they discuss ‘What you wish you knew’. Topics 00:00 - This Life, the chronicles of Autism moms podcast, series 2 Ep 6 02:00 – Alison – I’m feeling very frustrated just now that I am still continually telling people the same things about Noah over and over again 04:20 – Moira you mentioned that . If we don’t understand our kids how can we expect others to . One of the challenges with Callum is that he is extremely verbal but he doesn’t really communicate which would be confusing for someone who can see him chatting away but when they talk to him he is oblivious sometimes and not always able to have a back and forth conversation or take on board what someone is saying. He may strike lucky on one of his standard responses fits the question and the person will go away none the wiser but often I’ll be obvious he’s not understood or listened and they wont know what they have to do to make sure he is engaged with him and understanding them. 06:00 – What about Haider, Huma? He is also extremely verbal but is also usually involved with a story in his head.I sometimes rely on his brother to go and check if he was doing what he was asked! 10:00 – What are your experiences or expectations of other autism parents, at the very least they should understand Huma? We can empathise with the feelings of another parent when their child displays certain behaviours. Its funny that we assume, Oh your child has autism, they can be friends with mine!! We wouldn’t do that with neurotypical children. And 9/10 the autistic child doesn’t even want a friend. It’s the parent who needs the other parent to be friends with. 14:00 – Moira have you experienced leaning towards friendships with autism parents – Of course! At the beginning our circle consisted of Orla’s friends and parents but quickly I gravitated towards you guys and people who could relate to what we were going through at the time. Not that our original friends didn’t accept Callum or our situation, they were great but as they grow up and friends change its different and more difficult to integrate children with differences into new groups. 18:00 – Huma, my experience of a child with autism with more behaviours than my child is probably the same experience for friends of neurotypical children with my child! I don’t ever want to put me or my family in a situation where we might be judged. 21:00 – We push for our kids to have friends for our benefit and because we feel it’s the normal thing to do but just ends up causing stress for us and the child. 23:30 – Mum, Technology is my friend, technology wont hurt me. 25:00 – We should stop apologizing for our childs behaviour and just say, are you ok with this? 27:00 – Also we possibly just shouldn’t intervene and let the child decide if they are happy with a situation. 28:00 – Non verbal cues make it almost impossible for someone outwith the childs immediate circle to understand. Our expectations of society to accept and understand are too high. --- To learn more about Autism, visit: www.learnautism.com To watch this podcast, visit our YouTube Channel. Keep in touch with us on Instagram @chroniclesofautismmomspod --- Download the new FREE Learn Autism app today. If you had our previous paid app installed on your phone, please delete that before downloading the new FREE version. About Learn Autism As the leading FREE digital Autism resource led by Dr. Stephen Shore, author of Autism for Dummies, who himself is on the Autism spectrum, and our team of OT's (occupational therapists), SLP's (speech language pathologists), behavioral therapists, play therapists, sensory experts, educators, Autism parents and advocates, we are committed to providing diverse perspectives on the common issues that Autism parents, caregivers and educators may encounter. Learn Autism answers your questions through quick, on-demand video tutorials and downloadable workbooks that can be accessed on any device, when it's convenient to you. Watch our videos and get a deeper understanding of Autism with our multi-language subtitle options. We provide all of this and more at no cost…this resource is absolutely FREE! Connect with us: Instagram: https://bit.ly/3yU49Np Twitter: https://bit.ly/3gluYDA Facebook: https://bit.ly/3s5Oerv LinkedIn: https://bit.ly/3yWaOXn Online: www.LearnAutism.com
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    33 min
  • Prepping for Large Events

    Prepping for Large Events
    Nov 23 2022

    Topics

    Our experiences of families attending large events, vacations, concert theater etc.

    01:45 - What are the things you consider that make such events manageable for you and your families?

    02:04 - Moira-length of time (travel, entry, event, time of day) need to be considered and planned.

    04:40 - What sort of situations have you been in?

    04:45 - keeping a check on my child and his actions

    05:20 - appropriate behavior and growing age

    05:50 - high expectations on a child to behave a certain way in public

    06:10 - take fast track option to cut queuing time

    07:20 - hunger, toilet needs monitored while travelling. The anxiety and pressure of keeping up appearances in public.

    09:33- Alison- My son picks up on my anxiety. I am used to controlling the situation in order for things to go smoothly, in anticipation of their needs. the anxiety of how your family is perceived by others remains.

    012:55 - how have our kids put us in a spot?

    13:54 - they don't read the room, if they are frustrated or overwhelmed, they will express themselves with full force, no matter what the environment or situation.

    18:08 - using a standard response as an answer, not being aware of their surroundings, being in mid story mode might cause misunderstanding.

    20:15 - unexpected risky / hilarious questions are asked at unexpected moments.

    Top Tips on how to navigate the world of outdoor entertainment and traveling.

    1- charged devices, food, promise of ice cream at the end. Avoid massive crowds.

    2- try not to stress out about it too much as the kids can read your energy and you can ruin your time anticipating some ill event that might not even happen.

    ---

    To learn more about Autism, visit: www.learnautism.com

    To watch this podcast, visit our YouTube Channel.

    Keep in touch with us on Instagram @chroniclesofautismmomspod

    ---

    Download the new FREE Learn Autism app today.

    If you had our previous paid app installed on your phone, please delete that before downloading the new FREE version.

    About Learn Autism

    As the leading FREE digital Autism resource led by Dr. Stephen Shore, author of Autism for Dummies, who himself is on the Autism spectrum, and our team of OT's (occupational therapists), SLP's (speech language pathologists), behavioral therapists, play therapists, sensory experts, educators, Autism parents and advocates, we are committed to providing diverse perspectives on the common issues that Autism parents, caregivers and educators may encounter.

    Learn Autism answers your questions through quick, on-demand video tutorials and downloadable workbooks that can be accessed on any device, when it's convenient to you. Watch our videos and get a deeper understanding of Autism with our multi-language subtitle options. We provide all of this and more at no cost…this resource is absolutely FREE!

    Connect with us:

    Instagram: https://bit.ly/3yU49Np

    Twitter: https://bit.ly/3gluYDA

    Facebook: https://bit.ly/3s5Oerv

    LinkedIn: https://bit.ly/3yWaOXn

    Online: www.LearnAutism.com
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    29 min
  • World Cup Excitement

    World Cup Excitement
    Nov 8 2022
    This week Alison is joined by Huma and Moira to talk about the excitement around the World Cup in Doha, Qatar. Topics 00:00 - This Life, the chronicles of Autism moms podcast, series 2 episode 4 – World Cup Excitement 00:34 Introduction Alison : Hello and welcome to episode 2 of our world cup special , we are joined by Moira and Huma , welcome ladies . To those who don't know , Qatar will be hosting the football world cup. The tension is building , the flags are up and there is excitement all around. we are excited that it is coming , the kids might not be excited but I will make them excited . 1:28 Question : Will you be going to the game ? 1:33 Answer by Moira: of course , we haven't been in the city for 10 years to not to go. 1:42 Answer by Huma : I swear , i mean there is a stadium stones throw from our place and even though i am not that sporty , i have to go to a match , we deserve this . I will be going to one game . 2:04 Question by huma: what about you ? Are you attending a lot of games ? 2:06 Answer by Alison : I will be attending , my husband is a die hard fan. We will attend some with kids and some without. 2:27 question by Alison : Moira , will you be attending ? 2:30 Answer by Moira : yes we will , a couple of matches . 3:03 Question : What are the things you are most excited about this event? 3:10 Moira : It is more about experiencing the atmosphere than the game , and hopefully it won't be so crazy that we can't go about. 3:28 Huma : I don't think we will get a chance like this again , I don't think we will fly off to another country to watch a match. 3:45 Alison : It has been in the local and international news that this will be the most accessible world cup to date , there will be sensory rooms at the stadiums and at the fan zones , so what are you hoping for with regards to the accessibility they have talked about ? 4:47 Moira : Well we have standard tickets , so it will be interesting to see how outside of this specific area , how accessible the rest of the stadium will be . I don't know where we will be sitting, but I am hoping we will be swept along with the atmosphere of the event and the long walk or wait won't be traumatic. 5:27 Alison : As this is a small city , the event will be very concentrated , there will be long lines getting into the stadium , there will be trained volunteers to help and assist families like ours , there will be extra seating , in case a child or an adult has to take a break. So a lot of thought has been put into this. 7:09 Alison : What do you feel about the sensory rooms in the stadiums ? How do you think they will help the families ? 7:16 Huma : It's a lovely idea and I'm happy that there is a space for kids who's challenge isn't so obvious. 8:30 Alison : There will be a lot of entertainment during this time and it might be reassuring to the parents to know that there are areas in the fan zones where their child can take a break from all the noise and activity . 10:48 Moira : A full stadium with full voice is an experience like no other . 11:15 Alison : Having sensory spaces is a massive step for our families , what are you most looking forward to ? 11:48 Moira: well scotland didn't qualify ( so not so excited ) 12:05 Huma : Are you cheering for a specific team? 12:15 Alison : She would go for Wales rather than England. 12:30 Alison : What about you Huma ? What are you most excited about? 12:32 Huma : Just want them to experience a match in a big stadium. they might not appreciate it now , later they will. 14:06 Alison : I'm looking forward to a more immersive experience , my husband is a die hard fan , me and my kids are looking forward to the England game and enjoying the atmosphere . and we are fortunate that it is at our doorstep and we are planning about it , thinking of football songs etc. 15:24 Huma: Are you going to have the whole Tshirts and face paint ? 15:25 Moira and Alison: of course ! 16:00 Alison : im looking forward to the concerts , some big stars coming so we just need to get information , the kids will be off school. There has been a lot of time and effort put into this . This is a once in a lifetime thing. 16:46 Alison : Thank you so much for joining us today , see you soon. --- To learn more about Autism, visit: www.learnautism.com To watch this podcast, visit our YouTube Channel. Keep in touch with us on Instagram @chroniclesofautismmomspod --- Download the new FREE Learn Autism app today. If you had our previous paid app installed on your phone, please delete that before downloading the new FREE version. About Learn Autism As the leading FREE digital Autism resource led by Dr. Stephen Shore, author of Autism for Dummies, who himself is on the Autism spectrum, and our team of OT's (occupational therapists), SLP's (speech language pathologists), behavioral therapists, play therapists, sensory experts, educators, Autism parents and advocates, we are committed to providing diverse perspectives on ...
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    29 min

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