I'm honored to speak with Steve and Diane Miller, the incredible couple behind the Misophonia Research Fund. When their daughter Rachel started being triggered by their voices and chewing about nine years ago, they didn't just try to cope, they redirected their entire family foundation to fund misophonia research. They've basically built the field from the ground up, now funding dozens of researchers worldwide working on everything from brain imaging to AI sound filtering. We talk about what it's really like accelerating medical research, their hopes for bringing young scientists into the field, why open data sharing matters so much, and how simply providing hope can be transformative for our community. These two have genuinely changed the trajectory of misophonia research, and it was such an honor to hear their story and vision for the future.

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In this episode, I speak with Fay, a Los Angeles-based multimedia artist, actor, and filmmaker who's working on a comedy-horror short film about misophonia. Diagnosed with severe misophonia along with autism, ADHD, fibromyalgia, and several other conditions, Faye considers misophonia one of the most disabling things she deals with daily. We discuss her creative approach to raising awareness through her film—which features a student literally splitting into two people when classmates start chewing gum—her experience growing up in a Soviet refugee family where mental health wasn't discussed, and how her conditions intersect in complex ways. Fay also shares her crowdfunding campaign to pay disabled crew members for the project, and we talk about representation, advocacy, and using comedy to help people understand this often-invisible disorder.

Instagram:

@misophonia.film

@faythefae

Support the film on GoFundMe

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Web: https://misophoniapodcast.com

Order "Sounds like Misophonia" - by Dr. Jane Gregory and I

Email: hello@misophoniapodcast.com
Send me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.

YouTube channel (with caption transcriptions)

Social:
Instagram - @misophoniapodcast
Facebook - misophoniapodcast
Twitter/X - @misophoniashow

Support the show

This week I’m talking to Michelle, an animator and 3D artist based in Malta—one of the most population-dense places in Europe. After discovering her misophonia and realizing how Malta's constant noise amplified her struggles, Michelle channeled her experience into an immersive art project. Working with a local focus group of people with misophonia, she created a short animated film designed to let others experience what we go through—complete with trigger sounds and unsettling visuals using a unique printing technique called Risograph. The project opens at a gallery in Malta and will eventually hit the film festival circuit. We also talk about her ADHD diagnosis, how moving to quiet Denmark gave her relief, and what it's like navigating misophonia on a tiny, crowded island.

Exhibition: https://spazjukreattiv.org/event/misophonia/
Instagram for behind the scenes into the project: @funeral_biscuit
Ko-fi shop for prints from the project: https://ko-fi.com/funeral_biscuit/shop

This project is supported by Arts Council Malta, sponsored by TVPaint and is part of the Spazju Kreattiv 2025/2026 program.

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Web: https://misophoniapodcast.com

Order "Sounds like Misophonia" - by Dr. Jane Gregory and I

Email: hello@misophoniapodcast.com
Send me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.

YouTube channel (with caption transcriptions)

Social:
Instagram - @misophoniapodcast
Facebook - misophoniapodcast
Twitter/X - @misophoniashow

Support the show