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The NOGGINS AND NEURONS Podcast

The NOGGINS AND NEURONS Podcast

Auteur(s): Stroke & Brain Injury
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 Stroke and Brain InjuryCopyright 2021 All rights reserved. Hygiène et mode de vie sain
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  • Winning the Fight Against ALS-Part 2

    Winning the Fight Against ALS-Part 2
    Aug 26 2025
    EPISODE TITLE: Winning the Fight Against ALS - Part 2 EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb continue to talk about Amyotrophic Lateral Sclerosis (ALS) or, Lou Gehrig’s Disease with Dr. Tedone, the founder of the Deanna Protocol and his daughter, Deanna, who was diagnosed with ALS 13 years ago. In this podcast, Dr. Vincent Tedone and Deanna Tedone discuss: Introduction and Purpose of the Podcast 0:01 Pete Levine's Absence and Podcast Continuation 1:46 Discussion on ALS Diagnosis and Neurofibrillary Tangles 3:01 Dr. Tedone explains that it takes at least two years for a definitive ALS diagnosis due to reluctance from the medical profession. Neurofibrillary tangles are found in the cerebral spinal fluid, indicating cellular energy deficiencies. Gene mutations are linked to abnormal protein formation, which can cause cancer. Dr. Tedone argues that infections, not gene mutations, may be the root cause of cancer. Borrelia Infection and Its Impact on Health 6:05 Dr. Tedone discusses the role of Borrelia infection in various diseases, including arthritis, rheumatoid arthritis, psoriatic arthritis, lupus, and cancer. Cortisone suppresses inflammation but does not address the underlying infection, leading to disease progression. Treatment for Borrelia includes opening cysts with metronidazole, using oregano oil or artemisinin to open biofilms, and administering antibiotics. The treatment protocol involves alternating antibiotics every three months to prevent resistance. Testing for Borrelia Infection and Case Studies 10:01 Dr. Tedone mentions the Accu Dart infectious disease test and the need for provocative tests before serology tests. Dr. Tedone shares two case studies: one where a patient's worsening condition was linked to his wife's co-infections, and another where an emergency room doctor's wife's condition was attributed to Borrelia. The discussion highlights the importance of consistent treatment and the challenges of finding accurate tests for Borrelia. Deanna's Protocol and Its Benefits 18:54 Dr. Tedone and Deanna discuss the Deanna Protocol, which includes caprylic acid and coenzyme Q10, and its benefits in maintaining mental acuity and energy. Dr. Tedone shares personal experiences of using the Deanna Protocol and its positive effects on his and his wife's health. The protocol is designed to support nerve cell communication and improve cognitive function. Dr. Tedone emphasizes the importance of consistency in following the protocol for effective results. Advice for Newly Diagnosed Patients 20:31 Doro asks Deanna for advice for newly diagnosed patients. Deanna advises maintaining a regimented medication regimen and surrounding oneself with supportive, informed individuals. The importance of challenging oneself and maintaining a positive attitude is highlighted. Dr. Tedone shares a quote from his book, emphasizing the importance of persistence and continuous learning. Challenges and Research in ALS Treatment 33:15 Dr. Tedone discusses the challenges of conducting research and the need for clinical feedback to guide research efforts. The Deanna Protocol has shown promising results in ALS patients, with an 80% approval rating in a study by USF. The protocol is compared favorably to dorozolamide, which blocks glutamate, in terms of symptom management and disease progression. The discussion includes the need for better tests and the importance of funding for research. Funding and Support for Research 42:28 Deanna mentions the challenges of funding and the importance of donating to organizations that directly support research. The Winning the Fight Foundation is highlighted as a reliable organization for donations, with 99% of funds going directly to research. The foundation is a 501(c)(3) organization, making donations fully tax-deductible. Doro encourages listeners to visit the foundation's website for more information and to support the research efforts. Conclusion and Final Thoughts 48:33 Deb thanks the guests for sharing their stories and research, emphasizing the importance of spreading awareness. Dr. Tedone and Deanna express their gratitude for the opportunity to share their experiences and research findings. The episode concludes with a call to action for listeners to share the podcast with others who may benefit from the information. Contact information for the podcast and the foundation is provided for further inquiries and support. Resources and References: ALS specific websites & show References Als.orgI Am ALSWinning The FightNational Institute of Neurological Disorders and Stroke-Amyotrophic Lateral Sclerosis (ALS) Deanna's Book The Deanna Protocol _ Book Dr. Tedone's Treatment The Deanna Protocol Website Maintaining Optimal Quality of Life Support groupsProper equipment & Knowledge of useRESOURCES: ALS Association-enter zip code to find assistance in your state. ...
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    54 min
  • Winning the Fight Against ALS-Part 1

    Winning the Fight Against ALS-Part 1
    Jul 3 2025
    EPISODE TITLE: Winning the Fight Against ALS-Part 1 (with Deanna Tedone and Dr. Vincent Tedone) EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk about Amyotrophic Lateral Sclerosis (ALS) or, Lou Gehrig’s Disease with Dr. Tedone, the founder of the Deanna Protocol and his daughter, Deanna, who was diagnosed with ALS 13 years ago. In this podcast, Dr. Vincent Tedone and Deanna Tedone discuss: The development of the Deanna Protocol Dr. Vincent Tedone describes his research and the development of the Deanna Protocol, which includes AKG and GABA.Deanna experienced significant improvements in muscle symptoms and functional abilities after receiving the AKG and GABA combination.The Deanna Protocol was tested on ALS mice, showing suppressed muscle symptoms, slowed disease progression, and increased energy production.The findings were documented in a paper and a book, "The Deanna Protocol: Winning the Fight for Neurodegenerative Diseases." Discovery of Borrelia Infection In 2015, Deanna was tested for a Borrelia infection, which was positive, despite previous negative results from commercial laboratories.Deanna developed severe meningitis, and Dr. Vincent Tedone convinced the infectious disease doctor to treat her with IV antibiotics.The IV antibiotics successfully treated Deanna's pain, and she continued the post-antibiotic regimen until 2018.Dr. Vincent Tedone believes that all neurodegenerative diseases are caused by infections, primarily Borrelia. Challenges and Resistance in Medical Research Dr. Vincent Tedone discusses the challenges and resistance he faced when trying to get academic institutions to fund clinical trials for the Deanna Protocol.He emphasizes the importance of treating the cause of the disease rather than just the symptoms.Dr. Vincent Tedone shares anecdotal evidence of the Deanna Protocol's effectiveness in treating Alzheimer's disease and other neurodegenerative diseases.He highlights the need for further research and the potential for the Deanna Protocol to be effective in treating various neurodegenerative diseases. Clinical Experience and Intensive Therapy Doro, shares her clinical experience working with Deanna and the intensive therapy program they designed.Deanna's progress and improvements were significant, and the traditional ALS progression did not occur.Doro emphasizes the importance of not treating Deanna like she has ALS and the positive changes observed in Deanna's muscle building and overall function.The discussion shifts to the role of glutamate, AKG, and GABA in the Deanna Protocol and their impact on nerve cell communication. Impact of Borrelia Infection and Immune System Dr. Vincent Tedone explains the impact of Borrelia infection on the immune system and the body's response to inflammation.He describes the role of the gut microbiome in controlling the brain and the potential link between vaccines and autism.The conversation touches on the importance of the immune system in maintaining health and the potential impact of mRNA vaccines on the immune system.Dr. Vincent Tedone discusses the common denominator in neurodegenerative diseases and the potential for the Deanna Protocol to be effective in treating various conditions. Conclusion and Future Research Dr. Vincent Tedone expresses his frustration with the lack of focus on the cause of diseases and the need for further research.He shares anecdotal evidence of the Deanna Protocol's effectiveness in treating Alzheimer's disease and other conditions.The discussion highlights the importance of treating the cause of diseases rather than just the symptoms.The episode concludes with a call for further research and the potential for the Deanna Protocol to revolutionize the treatment of neurodegenerative diseases. Resources and References: ALS specific websites & show References Als.orgI Am ALSWinning The FightNational Institute of Neurological Disorders and Stroke-Amyotrophic Lateral Sclerosis (ALS) Deanna's Book The Deanna Protocol _ Book Dr. Tedone's Treatment The Deanna Protocol Website Maintaining Optimal Quality of Life Support groupsProper equipment & Knowledge of useRESOURCES: ALS Association-enter zip code to find assistance in your state. In FL: General Inquiries 813-637-9000 infoFL@als.org Community support groups & counselingTransportation assistanceEquipment loan bank-people with ALS can borrow assistive equipment on long term basisAssistance finding & obtaining community & government resourcesMultidisciplinary medical care under one roofFAAST-FLORIDA ALLIANCE FOR ASSISTIVE SERVICES & TECHONOLGY: org FAAST is a program designed to provide assistive technology to Floridians with disabilities and their loved ones. This program offers a range of activities, including device loans, demonstrations, reutilization, and training, to ensure Floridians have access to the latest in assistive technology. Additionally, FAAST provides information and ...
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    57 min
  • ALS: The Classic Medical Perspective

    ALS: The Classic Medical Perspective
    May 28 2025
    EPISODE TITLE: ALS: The Classic Medical Perspective EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk about Amyotrophic Lateral Sclerosis (ALS) or, Lou Gehrig’s Disease. We covered: What is ALS?Signs & symptoms of ALS including: Affects voluntary muscles-hands, forearms, legs. Early symptoms include: Fasciculations- spontaneous, uncontrolled discharges of motor neurons; irregular twitchings: Muscle twitches in the arm, leg, shoulder, or tongueMuscle crampsTight and stiff muscles (spasticity)Muscle weakness affecting an arm, a leg, or the neckSlurred and nasal speechDifficulty chewing or swallowingDifficulty walking, picking up objects, fine motor tasks Ongoing/Later symptoms:Chewing food and swallowing (dysphagia)Drooling (sialorrhea)Speaking or forming words (dysarthria)Breathing (dyspnea)Unintended crying, laughing, or other emotional displays (pseudobulbar symptoms)ConstipationMaintaining weight and getting enough nutrientsFrontotemporal dementia Dementia that affects the frontotemporal lobe.Affects thinking, talking, walking, and socializing.FTD and other frontotemporal disorders are a common cause of early-onset dementia, often appearing when people are in the prime of life. Families often suffer, as they struggle to cope with the person's daily needs as well as changes in relationships and responsibilities. Risk Factors (National Institute of Neurological Disorders & Stroke)-Having a risk factor does not mean a person will or will not get a disease Age—Although the disease can strike at any age, symptoms most commonly develop between the ages of 55 and 75.Biological sex—Men are slightly more likely to develop ALS than women. However, at older ages, men and women are equally likely to be diagnosed with ALS.Race and ethnicity—Whites and non-Hispanics are most likely to develop the disease, but ALS affects people of all races and ethnic backgrounds. National Institute of Neurological Disorders & Stroke/ALS.orgSome studies suggest military veterans are about one and a half to two times more likely to develop ALS, although the reason for this is unclear. Possible risk factors for veterans include exposure to lead, pesticides, and other environmental toxins. Some studies have also shown that head injury can be associated with higher risk for ALS, but more research is needed to understand this connection.For about 90% of all cases, there’s no known family history of the disease or presence of a genetic mutation linked to ALS.For 5-10% of all cases, there’s a known family history of the disease. This is often called familial ALS. ALS.org In families with familial ALS, there is a 50% chance each offspring will inherit the gene mutation and may develop the disease.Medical treatment-involves medicationsCommon PT & OT interventions Assistive technology & Communication devices OBI – independence with feedingBattery-operated salt & pepper shakersSteady spoon if tremors are presentBuilt up handle utensilsEazy Hold grip aidsUniversal cuffDivided Dish GUS communication devices ALS specific websites & show References orgI Am ALSWinning The FightNational Institute of Neurological Disorders and Stroke-Amyotrophic Lateral Sclerosis (ALS) Maintaining Optimal Quality of Life Support groupsProper equipment & Knowledge of useRESOURCES: ALS Association-enter zip code to find assistance in your state. In FL: General Inquiries 813-637-9000 infoFL@als.org Community support groups & counselingTransportation assistanceEquipment loan bank-people with ALS can borrow assistive equipment on long term basisAssistance finding & obtaining community & government resourcesMultidisciplinary medical care under one roofFAAST-FLORIDA ALLIANCE FOR ASSISTIVE SERVICES & TECHONOLGY: org FAAST is a program designed to provide assistive technology to Floridians with disabilities and their loved ones. This program offers a range of activities, including device loans, demonstrations, reutilization, and training, to ensure Floridians have access to the latest in assistive technology. Additionally, FAAST provides information and assistance, as well as a financing program available state-wide. With a commitment to accessibility and innovation, FAAST is leading the way in assistive technology in the state of Florida. CENTER FOR ASSISTIVE TECHNOLOGY-University of Buffalo The Center for Assistive Technology (CAT) is a non-profit organization that conducts research and provides educational and service programs to increase consumer knowledge related to assistive technology for persons with disabilities.CAT is also the Western New York Regional Center for the New York State TRAID Program, for which it coordinates information on technology-related expertise and resources for people with disabilities. SHEPHERD CENTER-CENTER FOR ASSISTIVE TECHNOLOGIES Atlanta, GA The Center for Assistive Technologies at Shepherd Center helps individuals regain independence after a...
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    37 min
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