In this episode, hosts Jessica Krauser and Brian Baker engage in a heartfelt conversation with Robert McMillan, who shares his 14-year journey with Parkinson's disease. The discussion covers the initial shock of diagnosis, the importance of support systems, treatment options, and the impact of exercise on quality of life. Robert emphasizes the need for self-advocacy, the significance of community, and the personal growth that can arise from living with Parkinson's. The episode concludes with advice for those newly diagnosed, highlighting the importance of perspective and resilience in the face of challenges.

00:00 Introduction to Parkinson's Journey

02:58 Diagnosis and Initial Reactions

05:59 Living with Parkinson's: Early Experiences

09:01 Treatment Options and Their Impact

12:00 Support Systems and Community

14:49 Quality of Life and Personal Growth

18:06 Managing Symptoms and Daily Challenges

20:57 Advice for the Newly Diagnosed

23:56 Conclusion and Final Thoughts

In this episode, Jessica and Brian talk to Dr. Mantri, a Movement Disorder Neurologist and the new Chief Medical Officer for the Parkinson's Foundation. Dr. Mantri dives into the importance of personalized patient care in managing Parkinson's disease and they explore how patients can prepare for appointments, the significance of care partners, and the value of community support. The conversation also touches on the need for better education for healthcare providers and the future goals of the Parkinson's Foundation.

Chapters

00:00 Introduction to the First Chief Medical Officer

03:00 The Role of a Movement Disorders Specialist

06:03 Preparing for Your First Appointment

08:58 The Importance of Care Partners

12:03 Utilizing Videos for Better Diagnosis

15:02 Key Questions for Your Doctor

17:49 When to Seek a Second Opinion

21:03 Follow-Up Appointments and Their Importance

23:49 The Value of Community Support

26:47 Future Goals of the Parkinson's Foundation

Viewers have asked about our personal experiences with medication changes throughout our journey so far - the changes in dosage, the side effects, the different medications, trial and error. So in this episode, Jess and Brian each dive into their medication journey (Jess over 6 years and Brian over 10 years). The conversation also touches on alternative treatments and lifestyle adjustments that can aid in coping with Parkinson's symptoms.

Chapters

00:00 Introduction and Survey Insights

01:02 Jessica's Medication Journey

06:40 Brian's Medication Journey

10:40 Exploring Alternative Treatments and Lifestyle Adjustments

18:33 Final Thoughts and Advocacy