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What are Rare Diseases and What Does Being Undiagnosed Mean?

What are Rare Diseases and What Does Being Undiagnosed Mean?

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Hey! It's our first episode, all about rare disease specifics, being undiagnosed, and a Q&A at the end! I promised the website links to the resources I mentioned in the episode, so they're down below. Enjoy the episode!

RESOURCE LINKS

  • Genetic and Rare Disease Information Center
  • Rare Disease Clinical Network
  • National Organization for Rare Disorders
  • Rare Diseases International
  • Rare Undiagnosed Network
  • Undiagnosed Diseases Network
  • Undiagnosed Diseases Network International

SOCIALS

  • Instagram
  • Twitter


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