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What's it like to live with endometriosis?

What's it like to live with endometriosis?

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According to the World Health Organization, it can take 4 to 12 years to be diagnosed with endometriosis. In Canada, it's 5 years, and in the U.K., 9 years. We speak to Evelyn Scott, who is from the U.K., about her experience with endometriosis. It took 15 years for her to receive a diagnosis, and she tells us what's it like to live with a condition that doesn't have a cure and how doctors repeatedly dismissed her symptoms.

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Research links

Endometriosis: https://www.who.int/news-room/fact-sheets/detail/endometriosis

Endometriosis: three reasons care still hasn’t improved: https://theconversation.com/endometriosis-three-reasons-care-still-hasnt-improved-157457

Pathways to Diagnosis: https://endometriosisnetwork.com/paths-to-diagnosis

Women in UK waiting almost nine years for endometriosis diagnosis, study finds: https://www.theguardian.com/society/2024/mar/04/women-in-uk-waiting-almost-nine-years-for-endometriosis-diagnosis-study-finds

1 in 10 Women Have Endometriosis. Why Don’t Their Doctors Believe Them?: https://www.vice.com/en/article/1-in-10-women-have-endometriosis-why-dont-their-doctors-believe-them

Why hasn’t endometriosis care improved?: https://www.independent.co.uk/health_and_wellbeing/endometriosis-awareness-week-2022-nhs-b2026658.html

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