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When Life Gives You Parkinson's

When Life Gives You Parkinson's

Auteur(s): Curiouscast
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À propos de cet audio

 Larry Gifford has Parkinson’s disease, and he wants to talk about it. When Life Gives You Parkinson’s chronicles Larry’s journey following diagnosis at age 45, but he knows he’s only part of the story. The podcast gives voice to the fascinating people that make up the Parkinson’s community and beyond — his family, his fellow people with Parkinson’s, care partners, advocates, researchers and healthcare providers. Through these interviews, the podcast informs and inspires others to share their own stories revealing the challenges and growth offered by the Parkinson’s journey. Larry is a seasoned broadcaster and the podcast is co-hosted by then-radio personality Niki Reitmayer until 2020 when Larry’s wife Rebecca takes on the role. Special thank you to our partners. Presenting partner is Parkinson Canada, content and promotional partner Spotlight YOPD, and The Michael J. Fox Foundation for Parkinson’s Research Parkinson’s IQ + You, PD Avengers, World Parkinson Congress #WPC2023 in Barcelona, Spain.2022 Corus Radio Hygiène et mode de vie sain Psychologie Psychologie et santé mentale Sciences sociales Troubles et maladies
Épisodes
  • The Parkinson's Plan with Dr. Ray Dorsey and Dr. Michael Okun

    The Parkinson's Plan with Dr. Ray Dorsey and Dr. Michael Okun
    Aug 25 2025
    In this compelling episode of When Life Gives You Parkinson's podcast, Larry sits down with Dr. Ray Dorsey and Dr. Michael Okun to discuss their groundbreaking book, The Parkinson’s Plan: A New Path to Prevention and Treatment. As leading neurologists and advocates, they delve into why Parkinson’s disease is now the fastest-growing neurological disorder and, more importantly, how most cases are preventable. The conversation explores the environmental factors fueling the rise of Parkinson’s, including exposure to pesticides and industrial chemicals. Drs. Dorsey and Okun introduce their bold P.L.A.N.—Prevent, Learn, Amplify, Navigate—offering a roadmap to halt the disease's progression. They also share insights from "The Parkinson’s 25," a list of actionable steps individuals can take to reduce their risk. Whether you're living with Parkinson’s, caring for someone who is, or simply seeking to understand this global health challenge, this episode provides critical insights and practical strategies. Join us as we discuss how collective action and informed choices can lead us toward ending Parkinson’s disease Learn more about your ad choices. Visit megaphone.fm/adchoices
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    58 min
  • PD Avengers: REM Sleep Behavior Disorder (RBD)

    PD Avengers: REM Sleep Behavior Disorder (RBD)
    Mar 5 2025
    PD Avengers co-founders Soania Mathur and Larry Gifford discuss the challenges of REM Sleep Behavior Disorder (RBD), a condition often associated with Parkinson's disease. Larry shares his experience of waking his wife up multiple times due to vivid, disturbing dreams and physical movements during sleep. Despite not having hit anyone yet, he described grabbing things and pulling a lamp toward them, which causes objects to fall. He also mentions how his wife, who sleeps in another room, checks on them during these episodes for safety. Soania relates to this experience, noting she developed RBD after their Parkinson’s diagnosis. She describes having vivid and violent dreams, often feeling anxious. She highlights the unpredictability of RBD, which disrupts her sleep and contributes to daytime fatigue. Both speakers express concern for their care partners, as they experience anxiety and stress from the disruption of their own sleep while trying to ensure safety. The conversation touches on a survey that revealed the significant stress care partners experience due to sleep disturbances in people with Parkinson’s. The speakers acknowledge the importance of sleep for both the individual with Parkinson’s and their care partner, noting that a lack of sleep adds stress and affects overall well-being. They conclude by discussing the ongoing research and the continuous struggle that Parkinson’s disease presents. LINKS: SLEEP SURVEY https://www.pdavengers.com/sleepsurvey PDAVENGERS: www.pdavengers.com SPARK THE NIGHT: https://sparkthenight.org Learn more about your ad choices. Visit megaphone.fm/adchoices
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    5 min
  • PD Avengers Weekly Chat - Balancing Life and PD

    PD Avengers Weekly Chat - Balancing Life and PD
    Feb 5 2025
    The PD Avengers discuss the challenges of balancing life with Parkinson's disease, emphasizing the impact of Deep Brain Stimulation (DBS) on daily routines. Both Tim Hague and Larry Gifford highlighted the necessity of daily naps and improved sleep post-DBS, though daytime sleepiness persisted. They shared personal strategies like improv for maintaining positivity and energy. Traveling with DBS was noted as challenging, with issues like being patted down at airports. They promoted the PD Avengers community, encouraging sign-ups to amplify their voice in ending Parkinson's. The conversation also touched on practical tips like using the sunflower card for hidden disabilities at airports. www.pdavengers.com https://sparkthenight.org https://hdsunflower.com/ ASK A QUESTION: https:///www.speakpipe.com/pdavengers Learn more about your ad choices. Visit megaphone.fm/adchoices
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    13 min
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