Amelia Wilkinson: Living (and parenting) with Type 1 diabetes - beyond the data

Published on 14 November (World Diabetes Day), this conversation lifts the lid on what most of us miss about Type 1 diabetes - the mental load, the masking, and the trauma that doesn’t show up on a glucose graph.

Podcast host Gill Phillips talks with Amelia Wilkinson, diagnosed at 10 and now a mum, about growing up through school exclusions and assumptions.

Topics include why behaviour is communication, navigating a high-risk pregnancy, and the power - and limits - of technology.

Amelia calls for two big shifts: train the adults around children with Type 1 (teachers, carers, clinicians) to spot the emotional toll

AND separate Type 1 and Type 2 awareness, so misconceptions stop harming care.

🍋💡🍋 Lemon lightbulbs

🍋 Type 1 ≠ Type 2: why the confusion hurts

🍋 Grief for a ‘former self’ and the hidden mental health toll

🍋 School stories: control, freedom-seeking, and being labelled ‘naughty’

🍋 Pregnancy with Type 1: what it really took for Amelia to have her daughter

🍋 Masking, peer support, and life beyond the data

🍋 Don’t make assumptions – ask how the person is doing, including mental health

🍋 Train the grown-ups!

🍋 Separate the awareness days!

If you work with children and families- or love someone with Type 1 - this one’s for you.

Links

Type 1 Diabetes: The Comic Book Stories (courtesy of FAB Fab NHS Stuff)

World Diabetes Day

Overview of Whose Shoes

Wild Card - Whose Shoes podcast with Aurora Thompson

💛 #WorldDiabetesDay #Type1Diabetes #NoHierarchyJustPeople #WhoseShoes #WildCard

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If you enjoy my podcast and find these conversations useful
please share your thoughts by leaving a review (Spotify or Apple are easiest to leave a review - navigate via 3 dots) and comment on your favourite episodes.

I tweet as @WhoseShoes and @WildCardWS and am on Instagram as @WildCardWS.

Please recommend 'Wild Card - Whose Shoes' to others who enjoy hearing passionate people talk about their experiences of improving health care.

In this powerful episode of Wild Card -Whose Shoes?, Gill Phillips talks with Aurora Thompson - a remarkable young woman whose story of trauma, survival, and resilience will stop you in your tracks.

Aurora shares her lived experience of abuse,, bullying, mental health crises, and being sectioned as a teenager.

She talks about her diagnosis with autism and what difference it has made.

But at the heart of her journey is a message of hope: a force she breaks down into four vital elements — connection, love, opportunity, and purpose.

🍋 All behaviour is communication - don’t judge, listen.

🍋 How is it okay to restrain but not hug?

🍋 The cost (emotional and financial) of crisis care versus the value of early intervention

🍋 The role of “golden people” — those rare professionals who bring honesty, humour, and humanity

🍋 From despair to purpose: how a photo of a therapy dog sparked hope, and how participation work with Barnardo’s became a lifeline

🍋 “Aim for the stars and you might just land near the moon” - Aurora’s call to dream big.

We also explore diagnostic overshadowing, the importance of holistic care, and why systems must stop lazily labelling children as “complex” and start seeing them as whole people.

Aurora is now studying philosophy, working with young people, and speaking out with passion and clarity to help change the system for those who come after her. Her voice is brave, authentic, and unforgettable.

🎧 Listen in for a story that is painful, inspiring, and ultimately hopeful - and perhaps take away your own lemon lightbulb or two. 🍋💡🍋

We LOVE it when you leave a review!
If you enjoy my podcast and find these conversations useful
please share your thoughts by leaving a review (Spotify or Apple are easiest to leave a review - navigate via 3 dots) and comment on your favourite episodes.

I tweet as @WhoseShoes and @WildCardWS and am on Instagram as @WildCardWS.

Please recommend 'Wild Card - Whose Shoes' to others who enjoy hearing passionate people talk about their experiences of improving health care.

🎙️ Wild Card – Whose Shoes? with Gill Phillips
Episode: An #IntentionalCoffee with Dr Ben Allen

In this episode, Gill Phillips speaks for the very first time with Dr Ben Allen - transformative GP, former ICB leader, and curious explorer of how the NHS can work better for staff, patients, and communities.

Ben and Gill have connected through LinkedIn where Ben describes himself as: "GP, NHS leader, convener and innovator. Releasing potential, creating joyful and effective teams. Supporting large scale improvement."

On the podcast, Ben shares his bold decision to step away from a formal leadership role to pursue a two-year “personal learning experiment” - visiting teams, shadowing people across the NHS and beyond, and testing new ways of connecting, leading, and learning.

✨ Ben and Gill dive into:

• Building trust and psychological safety in teams.
• Why creativity (perhaps a RAP or a ball of wool!) can shift culture.
• The power of connections and ripples in complex systems.
• How social media can be more than noise - a space for learning, challenge, and collaboration.
• The hope found in unlocking the untapped potential of human beings.

It’s a rich, hopeful, and energising conversation about leadership, curiosity, and finding new ways to make change happen.

🍋💡🍋 Lemon lightbulbs

🍋 “Make everything work harder” – capture, share, and amplify learning so others can benefit.

🍋 Psychological safety is built when we stretch people’s vulnerability just enough – trust grows through human connection.

🍋 Creativity in healthcare (a poem, a musical, a ball of wool!) can feel radical because our systems are so rigid – yet these moments are what people remember.

🍋 Impact in complex systems is messy and hard to measure – but ripples matter.

🍋 Relationships are as vital as evidence; systems are only as strong as their connections.

🍋 Social media isn’t just a hobby – it’s an underused engine for ideas, learning, and collaboration.

🍋 Hope comes from recognising untapped potential in people and organisations – not just from more money or resources.

🍋 Stepping out of your comfort zone to explore and learn can bring rich rewards.

Useful links

Find out more about #CYPWhoseShoes:
'Whose News?' Edition 14

BRAND NEW - The #CYPWhoseShoes story so far, told with a ball of string!

Ben's Youtube channel

#MatExp the Musical

Listen to the episodes around #UniversalHealthcare (Episodes 56-62) - explore further some of the issues and people mentioned in this conversation:

56. Becky Malby – Universal Healthcare
https://www.buzzsprout.com/1838805/15239449

57. Tom Holliday - Children get less
https://www.buzzsprout.com/1838805/15363315

58. George Winder – Don’t medicalise poverty
https://www.buzzsprout.com/1838805/15461390

We LOVE it when you leave a review!
If you enjoy my podcast and find these conversations useful
please share your thoughts by leaving a review (Spotify or Apple are easiest to leave a review - navigate via 3 dots) and comment on your favourite episodes.

I tweet as @WhoseShoes and @WildCardWS and am on Instagram as @WildCardWS.

Please recommend 'Wild Card - Whose Shoes' to others who enjoy hearing passionate people talk about their experiences of improving health care.