Chronic Illness Memoir

Julie fully expected to be breathing at the end of the trip - but driving into Death Valley felt like giving up, surrendering. She'd spent years battling a mysterious illness so extreme that she often couldn't turn over in her bed. The top specialists in the world were powerless to help, and research on her disease, chronic fatigue syndrome, was at a near standstill. Having exhausted the plausible ideas, Julie turned to an implausible one. Going against both her instincts and her training, she followed the advice of strangers she'd met on the Internet.

Boston Globe's 25 Books We Can't Wait to Read in 2018 Buzzfeed's 33 Most Exciting New Books Bustle’s 28 Most Anticipated Nonfiction Books of 2018 list Nylon’s 50 Books We Can’t Wait to Read in 2018 Electric Literature’s 46 Books to Read By Women of Color in 2018 Huffington Post’s 60...

H Is for Hawk meets Joan Didion in the Pyrocene in this arresting combination of memoir, natural history, and literary inquiry that chronicles one woman’s experience of life in Northern California during the worst fire season on record. FINALIST FOR THE NATIONAL BOOK CRITICS CIRCLE AWARD ...

A spellbinding memoir of a mother’s fight to save her daughter from a mysterious brain illness. It began with a seizure on a Brooklyn sidewalk just as fourteen-year-old Niko was preparing to enter one of the country’s most competitive high schools. Her immune system had gone haywire and was...

After more than four decades living with multiple sclerosis, New York Times bestselling author Richard M. Cohen finds a flicker of hope in a groundbreaking medical procedure. Richard Cohen struggles with failing limbs and is legally blind. He has survived two bouts of colon cancer and a...

A Silent Spring for the human body, this wide-ranging, genre-crossing literary mystery interweaves the author’s quest to understand the source of her own condition with her telling of the story of the chronically ill 19th-century diarist Alice James—ultimately uncovering the many hidden...

Featured in The Advocate, New York Times, Literary Hub, Autostraddle, and New York magazine's The Cut This is a vital exploration of the ways society overlooks—and fails—young women with disabilities and chronic illnesses Miriam’s doctor didn’t believe she had breast cancer. She did...

Wise, visceral essays on navigating pain, sex, trauma, spirituality, addiction, recovery, and grief from queer, neurodivergent trauma-resolution guide Jessica Graham In an unapologetic look at living well with trauma and chronic illness, writer and meditation teacher Jessica Graham offers smart...

When Amy B. Scher was struck with undiagnosed late-stage, chronic Lyme disease, the best physicians in America labeled her condition incurable and potentially terminal. Deteriorating rapidly, she went on a search to save her own life - from the top experts in Los Angeles and the world-renowned Mayo Clinic in Minneapolis to a state-of-the-art hospital in Chicago. After exhausting all of her options in the US, she discovered a possible cure - but it was highly experimental, available only in India, and had as much of a probability of killing her as it did of curing her.

"SpoonieNinja: Finding Strength in the Shadows" is an inspiring and intimate exploration of resilience and self-discovery in the face of chronic illness. Through raw and reflective storytelling, the book delves into the hidden battles, strength, and courage that come from living with a condition that often goes unseen. Tesla Coyle invites listeners to find empowerment in vulnerability and to embrace their own inner strength, even in the darkest of times. This book is a beacon for anyone seeking understanding, hope, and solidarity in their own journey through life's challenges.

Transformative, enlightening and inspiring - a compelling and candid story of life with constant pain. Irish broadcaster and producer Andrea Hayes is well known to the Irish public for her positive, friendly and down-to-earth persona on television and radio. Hidden behind her smile, though, is Andrea's battle with constant chronic pain. After over 20 years of unanswered questions, misdiagnosis, failed procedures and despair, she was diagnosed with a rare neurological disorder, Chiari Malformation 1.

One day, on her way to a date, Isabella Huffington gets hit by a bike. What begins as a concussion with a diagnosed recovery time of seven-to-ten days becomes more than two years of debilitating pain with no apparent end and a string of unhelpful doctor and specialist visits. In the wreckage, jobs are canceled. Leases are broken. There is no second date. What’s left is Isabella, her body, and her pain. Because the source of her pain cannot be located within the body, she is told over and over that her pain is psychosomatic. And Isabella believes it, over and over.

Here, in their own words, are seven children who confronted life-threatening illnesses such as cancer, sickle cell anemia, disability, and AIDS. Ranging in age from 7 to 17, these children from different backgrounds and with different personalities, share uncommon courage, a vibrant spirit, and piercing candor and eloquence about how to seize life, to glorify it, and be grateful for its gifts. Through poems written at Paul Newman's Hole in the Wall Gang Camp and conversations with loved ones, they reveal their attitudes towards life, illness, remission, religion, family, and friends.

John Lynch was a promising athlete, but at age 11 was struck by a crippling illness. He was diagnosed with juvenile arthritis (JA), a disease that affects 300,000 children, making them unable to live full-functioning, pain-free lives. John continued to seek new treatments, but not until age 53 was he given the “miracle drug” that enabled him to sustain a 30-year legal practice. During that time, he dedicated his life to helping others who suffered from JA and became a much-honored advocate for easing their distress.

In this powerful follow-up to her bestselling memoir In Shock, a doctor asks: What does it truly mean to heal? In this powerful follow-up to her bestselling memoir, In Shock, a doctor asks: What does it truly mean to heal? In the aftermath of her own critical illness, physician and writer Dr...

A bestseller in the making, this is the true story of a unique friendship between two people who had nothing—and ultimately everything—in common. Carol Wall, a white woman living in a lily-white neighborhood in Middle America, was at a crossroads in her life. Her children were grown; she...

A poetic, darkly funny memoir of one woman’s trip across the national parks straight into life-threatening illness and the joy that still holds us, no matter how much life hurts. After over a decade of fighting chronic illness, trauma therapist and beloved author K.J. Ramsey was the healthiest...

Learning to adapt to life after being diagnosed with chronic pain and illness is extremely difficult. Life as you knew it, along with your hopes and dreams for your life, literally gets turned upside down in an instant. This comes with a lot of deep complicated emotions from grief, sadness, anger, frustration to living in a constant state of uncertainty and stress. Most people assume that if you get sick, a medical professional like Dr. House will work endlessly until they have answers and a cure so you can go back to living the life you used to know.