Chronic Illness Memoir

Ehlers-Danlos syndrome is known to be a condition in which people usually have hypermobile joints and stretchy skin. This is what physicians generally look for when they are considering EDS diagnoses. The truth is that EDS can present in many different ways. There are many different types and forms of EDS, and they affect very different parts of a person's body. A physician who looks for only two signs is missing the big picture of the family history and the patient's symptoms in relation to an EDS diagnosis.

"This book doesn’t offer easy answers, but it offers something better—a way of seeing our shared vulnerability as the starting point for understanding what’s breaking and what still might be saved.​​​​​​​​​​​​​​​" —Esmé Weijun Wang, author of The Collected...

In this inspiring memoir, Emily Falcon chronicles her lifelong journey with a congenital cardiac condition. In 1982, at seven weeks old, she had a heart attack that destroyed 40 percent of the left side of her heart. This was her entry into a world of multiple cardiac procedures, surgeries, hospitalizations, and a later diagnosis of glaucoma. Balancing these serious conditions defined her life.

When Amy B. Scher was struck with undiagnosed late-stage, chronic Lyme disease, the best physicians in America labeled her condition incurable and potentially terminal. Deteriorating rapidly, she went on a search to save her own life - from the top experts in Los Angeles and the world-renowned Mayo Clinic in Minneapolis to a state-of-the-art hospital in Chicago. After exhausting all of her options in the US, she discovered a possible cure - but it was highly experimental, available only in India, and had as much of a probability of killing her as it did of curing her.

"SpoonieNinja: Finding Strength in the Shadows" is an inspiring and intimate exploration of resilience and self-discovery in the face of chronic illness. Through raw and reflective storytelling, the book delves into the hidden battles, strength, and courage that come from living with a condition that often goes unseen. Tesla Coyle invites listeners to find empowerment in vulnerability and to embrace their own inner strength, even in the darkest of times. This book is a beacon for anyone seeking understanding, hope, and solidarity in their own journey through life's challenges.

Transformative, enlightening and inspiring - a compelling and candid story of life with constant pain. Irish broadcaster and producer Andrea Hayes is well known to the Irish public for her positive, friendly and down-to-earth persona on television and radio. Hidden behind her smile, though, is Andrea's battle with constant chronic pain. After over 20 years of unanswered questions, misdiagnosis, failed procedures and despair, she was diagnosed with a rare neurological disorder, Chiari Malformation 1.

One day, on her way to a date, Isabella Huffington gets hit by a bike. What begins as a concussion with a diagnosed recovery time of seven-to-ten days becomes more than two years of debilitating pain with no apparent end and a string of unhelpful doctor and specialist visits. In the wreckage, jobs are canceled. Leases are broken. There is no second date. What’s left is Isabella, her body, and her pain. Because the source of her pain cannot be located within the body, she is told over and over that her pain is psychosomatic. And Isabella believes it, over and over.

Here, in their own words, are seven children who confronted life-threatening illnesses such as cancer, sickle cell anemia, disability, and AIDS. Ranging in age from 7 to 17, these children from different backgrounds and with different personalities, share uncommon courage, a vibrant spirit, and piercing candor and eloquence about how to seize life, to glorify it, and be grateful for its gifts. Through poems written at Paul Newman's Hole in the Wall Gang Camp and conversations with loved ones, they reveal their attitudes towards life, illness, remission, religion, family, and friends.

John Lynch was a promising athlete, but at age 11 was struck by a crippling illness. He was diagnosed with juvenile arthritis (JA), a disease that affects 300,000 children, making them unable to live full-functioning, pain-free lives. John continued to seek new treatments, but not until age 53 was he given the “miracle drug” that enabled him to sustain a 30-year legal practice. During that time, he dedicated his life to helping others who suffered from JA and became a much-honored advocate for easing their distress.

In this powerful follow-up to her bestselling memoir In Shock, a doctor asks: What does it truly mean to heal? In this powerful follow-up to her bestselling memoir, In Shock, a doctor asks: What does it truly mean to heal? In the aftermath of her own critical illness, physician and writer Dr...

Allie Cashel has suffered from chronic Lyme disease for 16 years - but much of the medical community refuses to recognize her symptoms as the result of infectious disease. In Suffering the Silence: Chronic Lyme Disease in an Age of Denial, Cashel paints a living portrait of what is often called post-treatment Lyme syndrome, featuring the stories of chronic Lyme patients from around the world and their struggle for recognition and treatment.

Learning to adapt to life after being diagnosed with chronic pain and illness is extremely difficult. Life as you knew it, along with your hopes and dreams for your life, literally gets turned upside down in an instant. This comes with a lot of deep complicated emotions from grief, sadness, anger, frustration to living in a constant state of uncertainty and stress. Most people assume that if you get sick, a medical professional like Dr. House will work endlessly until they have answers and a cure so you can go back to living the life you used to know.