Chronic Illness Memoir

On July 22, 2009, a special meeting was held with 24 leading scientists at the National Institutes of Health to discuss early findings that a newly discovered retrovirus was linked to chronic fatigue syndrome (CFS), prostate cancer, lymphoma, and eventually neurodevelopmental disorders in children. When Dr. Judy Mikovits finished her presentation the room was silent for a moment, then one of the scientists said, "Oh my God!" The resulting investigation would be like no other in science.

Ehlers-Danlos syndrome is known to be a condition in which people usually have hypermobile joints and stretchy skin. This is what physicians generally look for when they are considering EDS diagnoses. The truth is that EDS can present in many different ways. There are many different types and forms of EDS, and they affect very different parts of a person's body. A physician who looks for only two signs is missing the big picture of the family history and the patient's symptoms in relation to an EDS diagnosis.

Lauren Windas is one of the estimated 250,000 people suffering with CFS in the UK. Whilst at university in 2012, she fell ill with a viral infection and was later diagnosed with CFS. Since then she has devoted herself to reclaiming her health and being able to live a full life, drawing on the knowledge of experts to help manage her often mysterious and hard-to-manage condition. In Chronic Fatigue Syndrome, Lauren recounts the highs and lows of her own health journey and experiences,.

Wise, visceral essays on navigating pain, sex, trauma, spirituality, addiction, recovery, and grief from queer, neurodivergent trauma-resolution guide Jessica Graham In an unapologetic look at living well with trauma and chronic illness, writer and meditation teacher Jessica Graham offers smart...

Chronic Fatigue Syndrome is a pain disorder comprised of many symptoms and associated issues. The total complexity of this condition is such that it is often considered all-consuming.

After a number of years of being chronically ill with Lyme disease, Jenny Rush had a momentary realization that she was overlooking a lesson that was resulting in continued ill health. As she went into her last year of dealing with chronic illness at a physical level, Jenny shifted her primary focus from the illness itself to addressing the multitude of experiences that the illness was provoking.

H Is for Hawk meets Joan Didion in the Pyrocene in this arresting combination of memoir, natural history, and literary inquiry that chronicles one woman’s experience of life in Northern California during the worst fire season on record. FINALIST FOR THE NATIONAL BOOK CRITICS CIRCLE AWARD ...

A hopeful look at coping with the ravages of serious chronic illness by an accomplished journalist, a contributing columnist for the New York Times, and former senior producer of the CBS Evening News Richard Cohen, a veteran journalist, has lived with multiple sclerosis for 30 years. Diagnosed...

In this inspiring memoir, Emily Falcon chronicles her lifelong journey with a congenital cardiac condition. In 1982, at seven weeks old, she had a heart attack that destroyed 40 percent of the left side of her heart. This was her entry into a world of multiple cardiac procedures, surgeries, hospitalizations, and a later diagnosis of glaucoma. Balancing these serious conditions defined her life.

A Silent Spring for the human body, this wide-ranging, genre-crossing literary mystery interweaves the author’s quest to understand the source of her own condition with her telling of the story of the chronically ill 19th-century diarist Alice James—ultimately uncovering the many hidden...

After more than four decades living with multiple sclerosis, New York Times bestselling author Richard M. Cohen finds a flicker of hope in a groundbreaking medical procedure. Richard Cohen struggles with failing limbs and is legally blind. He has survived two bouts of colon cancer and a...

Featured in The Advocate, New York Times, Literary Hub, Autostraddle, and New York magazine's The Cut This is a vital exploration of the ways society overlooks—and fails—young women with disabilities and chronic illnesses Miriam’s doctor didn’t believe she had breast cancer. She did...

When Amy B. Scher was struck with undiagnosed late-stage, chronic Lyme disease, the best physicians in America labeled her condition incurable and potentially terminal. Deteriorating rapidly, she went on a search to save her own life - from the top experts in Los Angeles and the world-renowned Mayo Clinic in Minneapolis to a state-of-the-art hospital in Chicago. After exhausting all of her options in the US, she discovered a possible cure - but it was highly experimental, available only in India, and had as much of a probability of killing her as it did of curing her.

Brita grew up a competitive athlete, full of happiness and excitement for life. There wasn’t much that would take her out of a game as she constantly pushed her body to the limits. When she was unable to compete due to unknown and undiagnosed illness, she entered a world that was unfamiliar, and began to sink into a darkness she could never have imagined.

Julie fully expected to be breathing at the end of the trip - but driving into Death Valley felt like giving up, surrendering. She'd spent years battling a mysterious illness so extreme that she often couldn't turn over in her bed. The top specialists in the world were powerless to help, and research on her disease, chronic fatigue syndrome, was at a near standstill. Having exhausted the plausible ideas, Julie turned to an implausible one. Going against both her instincts and her training, she followed the advice of strangers she'd met on the Internet.

"SpoonieNinja: Finding Strength in the Shadows" is an inspiring and intimate exploration of resilience and self-discovery in the face of chronic illness. Through raw and reflective storytelling, the book delves into the hidden battles, strength, and courage that come from living with a condition that often goes unseen. Tesla Coyle invites listeners to find empowerment in vulnerability and to embrace their own inner strength, even in the darkest of times. This book is a beacon for anyone seeking understanding, hope, and solidarity in their own journey through life's challenges.

A spellbinding memoir of a mother’s fight to save her daughter from a mysterious brain illness. It began with a seizure on a Brooklyn sidewalk just as fourteen-year-old Niko was preparing to enter one of the country’s most competitive high schools. Her immune system had gone haywire and was...

One day, on her way to a date, Isabella Huffington gets hit by a bike. What begins as a concussion with a diagnosed recovery time of seven-to-ten days becomes more than two years of debilitating pain with no apparent end and a string of unhelpful doctor and specialist visits. In the wreckage, jobs are canceled. Leases are broken. There is no second date. What’s left is Isabella, her body, and her pain. Because the source of her pain cannot be located within the body, she is told over and over that her pain is psychosomatic. And Isabella believes it, over and over.

Here, in their own words, are seven children who confronted life-threatening illnesses such as cancer, sickle cell anemia, disability, and AIDS. Ranging in age from 7 to 17, these children from different backgrounds and with different personalities, share uncommon courage, a vibrant spirit, and piercing candor and eloquence about how to seize life, to glorify it, and be grateful for its gifts. Through poems written at Paul Newman's Hole in the Wall Gang Camp and conversations with loved ones, they reveal their attitudes towards life, illness, remission, religion, family, and friends.

John Lynch was a promising athlete, but at age 11 was struck by a crippling illness. He was diagnosed with juvenile arthritis (JA), a disease that affects 300,000 children, making them unable to live full-functioning, pain-free lives. John continued to seek new treatments, but not until age 53 was he given the “miracle drug” that enabled him to sustain a 30-year legal practice. During that time, he dedicated his life to helping others who suffered from JA and became a much-honored advocate for easing their distress.