Dementia Memoir

In Remembering the Music, Forgetting the Words, Kate Whouley strips away the romantic veneer of mother-daughter love to bare the toothed and tough reality of caring for a parent who is slowly losing her mind. Yet, this is not a dark or dour look at the demon of Alzheimer’s. Whouley shares the trying, the tender, and the sometimes hilarious moments in meeting the challenge also known as Mom.

Happily married and running a successful business, Peter Berry's life changed when, at the age of 50, he was given a terminal diagnosis of early-onset dementia. Since that day, he has learned to live with his very own 'dementia monster'. From depression and suicide attempts through to his determination to confront his dementia, Peter has embarked on a series of challenges to show that 'life isn't over with dementia, it's just a little different'.

After a near fatal stroke in 1995, Robert McCrum has gained an intimate understanding of his own mortality. Twenty-two years on, his friends have joined him in experiencing Prospero's 'every third thought' of death as a dominating theme of life. McCrum asks: can we make peace with what Freud calls 'the necessity of dying'? Searching for answers leads him to brain surgeons, psychologists, cancer patients and writers for advice and wisdom.

This book explores Alzheimer’s disease through the intertwined perspectives of a patient and her devoted caregiver, offering a deeply personal look at the emotional, physical, and mental challenges they face. From the first signs of memory loss to the final days of care, listeners are taken on a raw and honest journey through the daily struggles, heartbreaks, and small victories of providing care for a loved one with Alzheimer’s.

When my wife Cheryl saw what I was doing, she asked me to chronicle our almost 30-year journey through Alzheimer's. As I began to write and post blogs of the trip, it became apparent that I had a love of writing and an audience for our story. I soon developed a large following, and the blog almost took on a life of its own. The blog has morphed into much more than I ever dreamed. From the comments and feedback I received on many posts, it became apparent that I needed to try and turn this into a book. Many people battling this disease and being caregivers need to know they are not alone.

What if the dreaded world of Alzheimer's was also a world of emotional discovery? Eugenia Zukerman's poetry and simple prose, both heartbreaking and ultimately inspirational, ushers the listener into her world as she unflinchingly examines familial loyalties, moments from her past and present, and the need to face an uncertain future due to the diagnosis of a condition that she truly hopes "will remain unnamed."