Disability Biography

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

Close your eyes and get ready to see the world in a new and more positive way. As a child in Toronto, Molly Burke was diagnosed with retinitis pigmentosa and became completely sightless as a teenager. Now an award-winning YouTube star and global influencer, Molly shares what it’s like to be a purple-haired, pink-obsessed fashion and makeup lover in a seeing world. She speaks with authenticity and candor about how she tackles the preconceived notions we have around blindness; Molly has made it her mission to make us see her - and ourselves- in a wholly empowering way.

When Roger Rasmussen was diagnosed with prostate cancer in 2019, he did what most patients do: listened carefully, weighed his options, and tried to make peace with the life-altering decisions ahead. Then he heard about Joe Tippens' story, which led him down a rabbit hole of research into something unexpected—a compound called fenbendazole with curious case reports and a growing collection of personal accounts.

The entire world knows Michael J. Fox as Marty McFly, the teenage sidekick of Doc Brown in Back to the Future; as Alex P. Keaton in Family Ties; as Mike Flaherty in Spin City; and through numerous other movie roles and guest appearances on shows such as The Good Wife and Curb Your Enthusiasm. Diagnosed at age 29, Michael is equally engaged in Parkinson’s advocacy work, raising global awareness of the disease and helping find a cure through The Michael J. Fox Foundation for Parkinson's Research, the world's leading nonprofit funder of PD science.

This narrative nonfiction novel chronicles my son’s twenty-year journey to get his Cushing’s disease diagnosed—a journey that took far too long. Throughout the book, I highlight opportunities for testing that could have been done according to endocrinologist guidelines. The core message is clear: early diagnosis is crucial for people to live vibrant lives.

Former high school teacher and New York-based comedian Mimi Hayes is a brain injury survivor. She wrote her first humorous memoir while recovering from a traumatic head injury at the age of 22. Her honest take on trauma and love followed her to the stage as a stand-up comedian, where she has performed on stages such as Denver Comedy Works, Broadway Comedy Club, Stand Up NY, Dangerfield's, and The Upright Citizen's Brigade.

It never gets better, but it does get easier. That’s the first thing Roz says to anyone who asks him for advice. Anyone who’s fighting like hell, just hanging on or putting the pieces back together. When you’re broken, fixed becomes an obsession.

When Phil Hanley was in first grade, he realized something that would forever set him apart from his peers: he couldn’t read. His teachers were ill-equipped to assist him, and he slipped through the school’s cracks, year by year falling further and further behind his friends. Finally, he was diagnosed with dyslexia, a learning disability that would shape the rest of his life. Unable to pursue college or a traditional job, Phil was thrust into a life defined by unconventional twists. Eventually, he found himself on a stage with a microphone, a spotlight, and five minutes of jokes.

So begins Chloé Cooper Jones’s bold, revealing account of moving through the world in a body that looks different than most. Jones learned early on to factor “pain calculations” into every plan, every situation. Born with a rare congenital condition called sacral agenesis which affects both her stature and gait, her pain is physical. But there is also the pain of being judged and pitied for her appearance, of being dismissed as “less than.”

The first story Selma Blair Beitner ever heard about herself is that she was a mean, mean baby. With her mouth pulled in a perpetual snarl and a head so furry it had to be rubbed to make way for her forehead, Selma spent years living up to her terrible reputation: biting her sisters, lying spontaneously, getting drunk from Passover wine at the age of seven, and behaving dramatically so that she would be the center of attention. In a memoir that is as wildly funny as it is emotionally shattering, Blair tells the captivating story of growing up and finding her truth.

A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism - from the streets of Brooklyn and San Francisco to inside the halls of Washington - Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society. From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that improved rights for disabled people.

In 2021, Gabrielle Drolet developed a condition that made her unable to use her hands. It only worsened over time, and as a writer and artist, she had to learn new ways of creating and expressing herself. The experience completely changed her life and her outlook. Look Ma, No Hands explores both the difficulty and the humour of developing chronic and life-altering pain in her twenties. Each chapter looks at a different aspect of her life touched by her disability: how she learned to write when she couldn’t type; how she learned to manage the most mundane daily tasks.

As Harry Potter's stunt double, David Holmes's amazing gymnastic skills saw him earn onscreen immortality. He was the first-ever person to play Quidditch on a broomstick; he dodged dragon's fire and dove deep into the Great Lake, without any gillyweed to protect him. Life on set was an adventure. He and Daniel Radcliffe became like brothers, and the cast and crew a second family. Then tragedy struck. During the making of Deathly Hallows Part 1 a stunt went badly wrong and David's spinal cord snapped. He was only 25 and would never walk again.

In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation?

They all thought he was gone. But he was alive and trapped inside his own body for ten years. In January 1988 Martin Pistorius, aged 12, fell inexplicably sick. First, he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within 18 months, he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.

Sally Hobart Alexander continues the story of her journey into blindness in this uplifting tale of a life rebuilt and love renewed. Suzanne Toren’s perceptive narration perfectly expresses the emotions of Sally’s sometimes fun, often arduous, and always interesting journey. Also available is Taking Hold, My Journey Into Blindness, which tells the first half of Sally’s story.

This intimate memoir reveals the woman inside one of autism’s most prominent figures, Jennifer O'Toole. At the age of 35, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, she exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but - more importantly - as a thoroughly modern woman.

Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits, an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes, had earned him the label "social deviant". No guidance came from his mother or his father. It was no wonder he gravitated to machines, which could, at least, be counted on.

Temple Grandin, Ph.D., is a gifted animal scientist who has designed one third of all the livestock-handling facilities in the United States. She also lectures widely on autism - because Temple Grandin is autistic, a woman who thinks, feels, and experiences the world in ways that are incomprehensible to the rest of us.

Diagnosed with pathological demand avoidance (PDA) in his teenage years, Harry Thompson looks back with wit and humour at the ups and downs of family and romantic relationships, school, work and mental health, as well as his teenage struggle with drugs and alcohol. By embracing neurodiversity and emphasising that autistic people are not flawed human beings, Thompson demonstrates that some merely need to take the 'scenic route' in order to flourish and reach their full potential.