Disability Biography

When Schuyler Rummel-Hudson was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

“At the beginning I was only a little mass of possibilities. It was my teacher who unfolded and developed them.” The Story of My Life, Helen Keller’s autobiography, is the story of that unfolding. It is the story of how, with Anne Sullivan as her guide, Keller developed from “a mass of possibilities” to become one of the most beloved and admired women in American history. With intelligence, humor and wisdom, Keller describes her passage, “from darkness into light, from isolation to friendship, companionship, knowledge, love.”

We meet Andrew Leland as he’s suspended in the liminal state of the soon-to-be blind: he’s midway through his life with retinitis pigmentosa, a condition that ushers those who live with it from sightedness to blindness over years, even decades. He grew up with full vision, but starting in his teenage years, his sight began to degrade from the outside in. Soon— but without knowing exactly when—he will likely have no vision left. Full of apprehension but also dogged curiosity, Leland embarks on a sweeping exploration of the state of being that awaits him.

Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.

As a senior non-commissioned officer of Delta Force, the most elite and secretive special operations unit in the US military, Command Sergeant Major Tom Satterly fought some of this country's most fearsome enemies. Tom is a legend even among other Tier One special operators. Yet the enemy that cost him three marriages, and ruined his health physically and psychologically, existed in his brain. Told through Satterly's firsthand experiences, it also weaves in the reasons for his career-long battle against the most insidious enemy of all: post-traumatic stress.

Sipping Dom Pérignon Through a Straw is an inspirational and truly intersectional memoir from global humanitarian and disability-justice advocate Eddie Ndopu—a queer, Black wheelchair user. Ndopu’s incredible story begins with his childhood being raised by a single mother fleeing Apartheid South Africa before rocketing through every boundary put in front of him—because of his disability, his ethnicity, and his sexuality—to eventually hold official positions at both the United Nations and the World Economic Forum.

A riveting and candid account of a young journalist's awakening to a life of chronic illness, weaving together her personal story with reporting to shed light on how Americans live with long-term diagnoses today.

Before becoming the actor, producer, advocate, and model that people know today, Nyle DiMarco was half of a pair of Deaf twins born to a multi-generational Deaf family in Queens, New York. At the hospital one day after he was born, Nyle “failed” his first test—a hearing test—to the joy and excitement of his parents.

Lauren Windas is one of the estimated 250,000 people suffering with CFS in the UK. Whilst at university in 2012, she fell ill with a viral infection and was later diagnosed with CFS. Since then she has devoted herself to reclaiming her health and being able to live a full life, drawing on the knowledge of experts to help manage her often mysterious and hard-to-manage condition. In Chronic Fatigue Syndrome, Lauren recounts the highs and lows of her own health journey and experiences,.

For years, Emma Carey was a regular young adult who would wake up and go about their day on autopilot, someone who would look at a sunset and feel unaffected, someone who was living, but not really alive. That is, until something happened that enabled her to really see life for the gift it is. Emma was in a skydiving accident that made her a paraplegic. This book is not just about Emma's fall from the sky and how she learned to walk without ever regaining feeling in her legs but also about the beliefs and ideas that helped her survive.

As a new mother to three nonverbal, profoundly autistic children, Christine Slack Roach felt lost and alone. There were resources about autism and about raising children with disabilities. But she couldn’t find anything that resonated with what she was experiencing with her own children. As her three children approach adulthood, Christine feels compelled to share the miracles, joys, pain and unending love she has experienced learning about and raising her kids so that other parents in a similar situation will know that they are not alone, and there are resources out there.

Like many others on the autism spectrum, 20-something stand-up comic Michael McCreary has been told by more than a few well-meaning folks that he doesn’t “look” autistic. But, as he’s quick to point out in this memoir, autism “looks” different for just about everyone with autism spectrum disorder (ASD).

Oksana Masters was born in Ukraine—in the shadow of Chernobyl—seemingly with the odds stacked against her. She came into the world with one kidney, a partial stomach, six toes on each foot, webbed fingers, no right bicep, and no thumbs. Her left leg was six inches shorter than her right, and she was missing both tibias.

The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.

Twenty-three-year-old Ardra Shephard is sleeping with the wrong guy, living in a crappy apartment, and spending money she doesn't have on designer shoes, boozy brunches, and weekends in NYC. Making mistakes while you figure stuff out is what your twenties are all about. Then a doctor tells Ardra she has MS, and those two letters split her life into a Before and After.

First came the boom - the loud, deep, unapologetic bellow that seemed to erupt from the very core of the Earth. Eerily, the majestic high-rise slowly leaned to the south. On the 78th floor of the World Trade Center's north tower, no alarms sounded, and no one had information about what had happened at 8:46 a.m. on September 11, 2001. Blind since birth, Michael couldn't see a thing, but he could hear the sounds of shattering glass, falling debris, and terrified people flooding around him and his guide dog, Roselle.

Dietetics practitioners are food and nutrition experts who help people live healthier lives. They work in a variety of settings—from hospitals and research to sports, schools, nursing homes, and the food industry. Yet, despite the diversity of the populations they serve, the dietetics profession is predominantly female, white, and able-bodied. Only 2% of dietetics practitioners have a disability compared to 29% of US adults. There is an urgent need to diversify the field—especially by including practitioners with disabilities.

Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference.

At the age of four, Joshua Miele was blinded and badly burned when a delusional neighbor poured sulfuric acid over his head in a crime that shocked New York. It could have ended his life, but instead, Miele—naturally curious, and a born problem solver—not only recovered, but thrived. Throughout his life, Miele has found increasingly inventive ways to succeed in a world built for the sighted, and to help others to do the same. At first reluctant to even think of himself as blind, he eventually embraced his blindness and became a committed advocate for disability and accessibility

In 1958, Riva is one of the first children born with spina bifida to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture.