Disability Biography

Macular degeneration affects over eight million people in the United States. Patients lose central vision, the ability to read fine print and recognize faces. A diagnosis doesn't mean surrendering to these challenges. Instead, understanding this medical condition will help pave the way toward a better future-for yourself or loved one.

After a shocking diagnosis for a rare pituitary disease, and with her eighteen-year marriage in shambles, Risa's life has fallen far from picture-perfect. Recovering from brain surgery and desperate to get back to her former self, she signs up for the bike tour of a lifetime-six weeks from Canada to Mexico on the Pacific Coast Highway. The old Risa could have done the ride in her sleep, but for the new Risa, trapped in a body that no longer feels like her own and stuck in the company of her brain tumor, Bubba, the ride becomes a challenge unlike anything she's ever faced.

A “raw, vulnerable, and utterly hilarious” (Harper’s Bazaar) memoir about one woman’s experience living with a deformity, and her quest to find freedom and joy in her body “Sosenko’s experience with body shame and judgment, from herself and others, is universal. She shows us her...

Featured in The Advocate, New York Times, Literary Hub, Autostraddle, and New York magazine's The Cut This is a vital exploration of the ways society overlooks—and fails—young women with disabilities and chronic illnesses Miriam’s doctor didn’t believe she had breast cancer. She did...

Finalist for the 2021 Lambda Literary Award for Transgender Nonfiction "Talusan sails past the conventions of trans and immigrant memoirs." --The New York Times Book Review "A ball of light hurled into the dark undertow of migration and survival." --Ocean Vuong, author of On Earth We're...

Having gone from standing atop high mountain peaks to becoming a martial art and close-quarter combat specialist, and surviving 18 years of brutal special operations involvement, White Wolf's life took a turn that led him to face his most challenging adversary. His development of chronic illness sent his life tumbling headlong into an abyss where a maelstrom awaited. Invisible combatants threw his body into chaos.

This compelling memoir traces an extraordinary journey through mental illness and neurodiversity—one of hard-won insight, resilience, and wisdom. Living with bipolar disorder, depression, addiction, and dyslexia, the author’s path weaves through punk rock rebellion, police work, and entrepreneurship—revealing the complex reality of managing mental health and neurodiversity. Another deep depressive episode became the catalyst for a medical diagnosis, professional help, and true healing.

A deafblind writer and professor explores how the misrepresentation of disability in books, movies, and TV harms both the disabled community and everyone else. As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and...

This is the true story of a very special man whose life was suddenly and forever changed by a rare disease. Dealing with a severe backache for three days, he was taken to an emergency room. For five grueling months, his dignity, as well as his very self was stripped away. Trapped in a system that all too often is not healthcare, but Healthcareless.

When Valerie Maidment was a baby, doctors diagnosed her with hydrocephalus, a condition that causes excess fluid to build in the brain. After the second surgery at age 9, she was declared healthy; she lived a happy, normal life, graduating from high school and college, having children, and buying and managing her own convenience store. Until one day, when everything changed. Fluid began to build once again in Valerie’s brain, causing immense pressure that—due to misdiagnosis on the part of multiple doctors—caused her optic nerves to break down.

A journey through rare disease, a dream of flying, and the gratitude found in acceptance. When Jonathan first threw his parachute—in that instant—the rushing air was still, the falling stopped, and a dream of flying began to take shape: soaring, free from the burdens he carried, held in the sky by a fabric wing. But a cancer diagnosis began a cascade—surgeries, treatments, recurrences, and life-altering side effects. Learning to fly felt impossible.

Ruth's tribe are her lively children and her filmmaker husband, Simon, who has motor neurone disease and can communicate only with his eyes. Ruth's other tribe are the friends who gather at the cove in Greystones, Co. Wicklow, and regularly throw themselves into the freezing cold water just for kicks. The Tragic Wives' Swimming Club, as they jokingly call themselves, meet to cope with the extreme challenges life puts in their way, not to mention the monster waves rolling over the horizon.

In Raising Eddie, Paul Christodoulou delivers a brutally honest and deeply personal account of parenting a child with severe disabilities. This isn’t the story of a polished hero—it’s the journey of a flawed father wrestling with anger, despair, guilt, and ultimately, unwavering purpose. Paul opens the door to a life few dare to speak about: the sleepless nights, the quiet rage at an unforgiving disease, and the thoughts no parent wants to admit. But he doesn’t just tell his story—he fights. And he challenges you to fight alongside him.

Damiano è un ragazzo grande, grosso e con pochi amici perché ama passare le sue giornate facendo cose che gli altri ragazzi non capiscono, come fissare il turbinio vorticoso della lavatrice o giocare per ore con i coperchi delle pentole di sua nonna. Ma la sua vera passione è quella per la musica, soprattutto classica, visto che vorrebbe diventare un cantante lirico. Anche se ama pure il jazz, la musica da discoteca, la dance, la techno e chi più ne ha più ne metta. Tranne la musica rock, quella che invece sua sorella minore Margherita ascolta a tutto volume nella stanzetta accanto.

We can all be heroes. That’s the inspiring message of this New York Times Bestselling biography series from historian and author Brad Meltzer When Helen Keller was very young, she got a rare disease that made her deaf and blind. Suddenly, she couldn't see or hear at all, and it was hard for...

At only eight months old, identical twin sisters Ariel and Zan Henley were diagnosed with Crouzon syndrome — a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it. Growing up, Ariel and her sister endured numerous medical procedures to keep them alive. Doctors expanded the twins’ skulls and broke bones to make room for their growing organs. After each surgery, the sisters felt like strangers to each other, unable to recognize themselves in the mirror.

This is a story in Victorian England of how in 1884 Frederick Treves, Surgeon and Lecturer in Anatomy at the London Hospital arranged for the "Elephant Man" (whose distorted grotesque face and deformed body made him a "freak") to visit the medical college next to the hospital for the purpose of a lecture. They would later become friends and Treves the savior of the man named John Merrick. This is Treves' memoir.

Blind Vision is a fascinating account of a unique and inspiring career in open-water swimming. But more than that, it is a story for anyone that’s ever been told they can’t. James Pittar is living proof that no matter what the odds, with dedication, passion, and the right people around you, you can.

Speaking My Truth is about a young man named Abdulahi Hassan who is born with a physical disability called Cerebral Palsy and tries to live a normal life. Regardless of his daily struggles he faces physically and mentally he is slowly learning to speak his truth and taking control of his own narrative one step at a time with a single beautiful smile.

Dietetics practitioners are food and nutrition experts who help people live healthier lives. They work in a variety of settings—from hospitals and research to sports, schools, nursing homes, and the food industry. Yet, despite the diversity of the populations they serve, the dietetics profession is predominantly female, white, and able-bodied. Only 2% of dietetics practitioners have a disability compared to 29% of US adults. There is an urgent need to diversify the field—especially by including practitioners with disabilities.