Disability Biography

Carla Sosenko was born with Klippel-Trenaunay syndrome, a rare vascular disorder that resulted in legs of different sizes, a mass of flesh on her back, a hunched posture, and other idiosyncrasies big and small. She spent years trying to hide under layers of clothing, and then experimented with the opposite: wearing tiny dresses and short shorts, daring people to stare so she could make them regret it. No matter what she did, she was worried that she didn’t measure up.

My life has been nothing short of a miracle. A true triumph, even in the midst of adversity. In Deaf Blind Champion, I give you a front-row seat into how my life changed when I heard my diagnosis, and what I did to get through the depression that engulfed me to become an accomplished sportsman, a dad, life partner, son, brother, teammate, and activist.

This narrative nonfiction novel chronicles my son’s twenty-year journey to get his Cushing’s disease diagnosed—a journey that took far too long. Throughout the book, I highlight opportunities for testing that could have been done according to endocrinologist guidelines. The core message is clear: early diagnosis is crucial for people to live vibrant lives.

We all face obstacles that threaten to hold us back. For Robert Paylor, his paralysis wasn’t a metaphor. In the biggest game of his life, competing for the collegiate rugby national championship, Robert suffered a catastrophic spinal cord injury that left him paralyzed from the neck down. Doctors told him he’d never walk or move his hands again. But Robert refused to accept that fate.

There Plant Eyes probes the ways in which blindness has shaped our ocularcentric culture, challenging deeply ingrained ideas about what it means to be “blind”. For millennia, blind­ness has been used to signify such things as thoughtlessness (“blind faith”), irrationality (“blind rage”), and unconsciousness (“blind evolution”). But at the same time, blind people have been othered as the recipients of special powers as compensation for lost sight (from the poetic gifts of John Milton to the heightened senses of the comic book hero Daredevil).

Liz Casper is a former medical doctor, artist, and author from the Pacific Northwest. In her first book, BRILLIANT, BEAUTIFUL, BIPOLAR, Liz shares with us her personal journey before, during, and after her diagnosis of bipolar disorder. The book, set in Los Angeles and Las Vegas, chronicles Liz’s experience both living with and healing from this devastating diagnosis.

In Raising Eddie, Paul Christodoulou delivers a brutally honest and deeply personal account of parenting a child with severe disabilities. This isn’t the story of a polished hero—it’s the journey of a flawed father wrestling with anger, despair, guilt, and ultimately, unwavering purpose. Paul opens the door to a life few dare to speak about: the sleepless nights, the quiet rage at an unforgiving disease, and the thoughts no parent wants to admit. But he doesn’t just tell his story—he fights. And he challenges you to fight alongside him.

This English professor grew up spacey and overweight. Drowning in the unrealistic demands of motherhood, Livingston steals her son's ADHD medication and watches it transform her life—for good and bad. She grows weary of subjective diagnoses and chemical treatments from traditional psychology experts, and experiments with functional medicine—brain mapping and nutritional supplements—as a way to understand her brain's potential, bio-hacking her way to a healthy body and mind.

Born into a Christian family, author Bill Brack learned the importance of serving the Lord early on. He built his character even further by joining the Marines and serving his country during the Vietnam war years. But everything changed when he suffered a diving accident and found himself completely paralyzed. A long process of healing and restoration began, during which he drew upon his faith to rediscover the joy of living.

Whether you’re facing your own hip replacement surgery or want to train for something like a triathlon, or you simply find yourself facing extreme challenges in your own life, this book is your guide to putting steel in your bones and doing what you may never have thought was possible.

Normal. Who is to say what this word means? For Magda Newman, it was a goal. She wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments his friends took for granted. But Nathaniel’s severe Treacher Collins syndrome - a craniofacial condition - meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly? But Nathaniel looks at “normal” from a completely different perspective.

When Pepper Stetler was told that her daughter who has Down Syndrome would be regularly required to take IQ tests to secure support in school, she asked a simple question: why? In questioning the authority and relevance of the test, Stetler sets herself on a winding investigation into how the IQ test came to be the irrefutable standard for measuring intelligence. The unsettling history causes Stetler to wonder what influence this test will have over her daughter's future and whether Louisa should be taking it at all.

As a boy, severely disabled after contracting polio as a baby in working class Liverpool, Bert Massie found himself wondering why disabled people were expected to adapt to the world around them, and not the other way round. In his teens, he began to campaign for rights for disabled people, and having battled his way through prejudice and the education system to become a Bachelor of Arts and a qualified social worker, he became a prominent figure in the fight for fair treatment for disabled people leading to the ground breaking Disability Discrimination Act.

Dietetics practitioners are food and nutrition experts who help people live healthier lives. They work in a variety of settings—from hospitals and research to sports, schools, nursing homes, and the food industry. Yet, despite the diversity of the populations they serve, the dietetics profession is predominantly female, white, and able-bodied. Only 2% of dietetics practitioners have a disability compared to 29% of US adults. There is an urgent need to diversify the field—especially by including practitioners with disabilities.

When Helen Keller was very young, she got a rare disease that made her deaf and blind. Suddenly, she couldn't see or hear at all, and it was hard for her to communicate with anyone. But when she was six years old, she met someone who changed her life forever: her teacher, Annie Sullivan. With Miss Sullivan's help, Helen learned how to speak sign language and read Braille. Armed with the ability to express herself, Helen grew up to be come a social activist, leading the fight for people with disabilities and so many other causes.

Abbey Curran was born with cerebral palsy, but early on she resolved never to let it limit her. Abbey made history when she became the first contestant with a disability to win a major beauty pageant. After earning the title of Miss Iowa, she went on to compete in Miss USA.

Ruth's tribe are her lively children and her filmmaker husband, Simon, who has motor neurone disease and can communicate only with his eyes. Ruth's other tribe are the friends who gather at the cove in Greystones, Co. Wicklow, and regularly throw themselves into the freezing cold water just for kicks. The Tragic Wives' Swimming Club, as they jokingly call themselves, meet to cope with the extreme challenges life puts in their way, not to mention the monster waves rolling over the horizon.

At only eight months old, identical twin sisters Ariel and Zan Henley were diagnosed with Crouzon syndrome — a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it. Growing up, Ariel and her sister endured numerous medical procedures to keep them alive. Doctors expanded the twins’ skulls and broke bones to make room for their growing organs. After each surgery, the sisters felt like strangers to each other, unable to recognize themselves in the mirror.

The life of Dr. Scott Hollier is not what you'd call typical. He is well-educated, has a good job, is a husband and father, is legally blind, loves computers and gadgets, goes to church, and enjoys travel, spending time with friends and following his favorite football team. For most people, the atypical part of this description will be "legally blind", but from Scott's perspective, it's his traitorous support of a football team outside his home state of Western Australia that makes him stand out from the crowd.

This is a story in Victorian England of how in 1884 Frederick Treves, Surgeon and Lecturer in Anatomy at the London Hospital arranged for the "Elephant Man" (whose distorted grotesque face and deformed body made him a "freak") to visit the medical college next to the hospital for the purpose of a lecture. They would later become friends and Treves the savior of the man named John Merrick. This is Treves' memoir.