Disability Biography

Lauren Windas is one of the estimated 250,000 people suffering with CFS in the UK. Whilst at university in 2012, she fell ill with a viral infection and was later diagnosed with CFS. Since then she has devoted herself to reclaiming her health and being able to live a full life, drawing on the knowledge of experts to help manage her often mysterious and hard-to-manage condition. In Chronic Fatigue Syndrome, Lauren recounts the highs and lows of her own health journey and experiences,.

Andrea Lytle Peet was thirty-three years old—an urban planner living in D.C., newly married, and a triathlete—when she received the death sentence of an ALS diagnosis (also known as Lou Gehrig's disease). After grappling with the fact that she will likely become paralyzed and die within two to five years, Andrea experienced an unexpected spark that changes her outlook in the most magnificent way.

When PhD candidate Sarah Vallance is thrown from a horse and suffers a jarring blow to the head, she believes she walks away unscathed. The next morning, things take a sharp turn as she’s quickly led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.

At a time when we are all more rudderless than ever, we look for the very best teachers and mentors to guide us. In Fully Alive, an unusual and gripping memoir, Timothy Shriver shows how his teachers have been the world's most forgotten minority: people with intellectual disabilities. In these pages we meet the individuals who helped him come of age and find a deeper and more meaningful way to see the world.

DEMENTIA and OUR LOVE, Caregiving as spiritual practice, is the story of Gary and Heather's love that sustained them through an unusual and courageous life across continents, including tending Gary and his onset of dementia at 73 years. The story helped them remember their love and use this energy to move through the hard times. We will always remember us this way, a song by Lady Gaga, was pivotal in keeping Heathers focus.

Born with Epidermolysis Bullosa (EB), a rare and excruciatingly painful condition that makes her skin as fragile as butterfly wings, Emma Fogarty was not expected to survive infancy. Today, at 41 years of age, she is the oldest living Irish person with the condition, continuing to defy the odds with extraordinary strength, resilience and remarkable achievements. However, every accomplishment Emma makes comes with its own set of obstacles.

Sumérgete en la extraordinaria vida de Gerardo Schmedling, un hombre cuyo poder espiritual inquebrantable desafió las adversidades de la parálisis de Guillain-Barré en su juventud y las secuelas que afectaron su movilidad de por vida. Este relato, narrado por su prima María Mercedes Olivares Schmedling, conocida como Mechas, quien compartió con él desde su infancia, revela cómo Gerardo se convirtió en el arquitecto de un movimiento global de transformación personal y social.

With style and straight talk, musician and activist Lachi redefines disability as a cultural movement, an empowering identity, and a blueprint for innovation that you can’t afford to ignore. Lachi is an award-winning singer and leader who awakens the world to this truth: Disability has long...

Amit Patel is working as a trauma doctor when a rare condition causes him to lose his sight within 36 hours. Totally dependent on others and terrified of stepping outside with a white cane after he's assaulted, he hits rock bottom. He refuses to leave home on his own for three months. With the support of his wife, Seema, he slowly adapts to his new situation, but how could life ever be the way it was? Then his guide dog, Kika, comes along....

Ce parcours c'est avant tout une belle histoire d'amour. Une histoire à deux qui malheureusement se termine mais accroît le désir inconditionnel de devenir père, le combat d'un homme pour connaître la paternité, y compris seul. À travers ce témoignage, Mathieu Ceschin se livre sans filtre sur ce combat, celui d'une vie, pour toucher à la paternité.

This is my inspirational true story of childhood sexual abuse that I endured. The abuse was a secret, even to me, due to the fact that all the painful images were locked up in my subconscious for close to 37 years.

When Schuyler Rummel-Hudson was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

At age 16, James Tate Hill was diagnosed with Leber’s hereditary optic neuropathy, a condition that left him legally blind. After high school friends stopped calling and a disability counselor advised him to aim for C's in his classes, he used his remaining blurry peripheral vision to pretend he could still see. Feigning eye contact, memorizing common routes, filling shelves with paperbacks he read via tape cassettes, he organized his life around passing for sighted.

Weeks after giving birth, Holly Frances went from being a healthy 26-year-old new mom to paralyzed and on life support—in less than 72 hours. Diagnosed with a rare autoimmune disorder called Guillain-Barre Syndrome, Holly was trapped in her body, unable to move, speak, or hold her newborn daughter. Life Support tells the story of how Holly struggled to overcome the despair, hopelessness and physical pain, to regain her health and get back to being a mother to her daughter.

Before a surfing accident caused 33-year-old Devon Raney to lose all but 15 percent of his vision, he had already lived an extraordinary life. Time and again, he'd gone against the grain to maximize time for his passions - surfing, skateboarding, and snowboarding - bringing him into the direct path of colorful characters, unexpected adventures, and even the occasional brush with death. Through it all, Devon's commitment to outdoor adventure never wavered.

Ambition to succeed was inborn before the days of sight-saving classes and the many provisions now available. This book is her achievement. Her ambition was to teach teachers.

This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project.

David Aguilar was born missing part of one arm, a small detail that seemed to define his life and limit people’s ideas of who he was and who he could be. But in this funny and heartfelt memoir, David proves that he can throw out the rulebook and people’s expectations and maybe even make a difference in the world—and all with a sense of humor.

This audiobook provides insight into the life of a neurodiverse Black girl from the Midlands as she embarks on her journey through the UK school system. This book unveils and highlights the unique experiences of neurodiverse people of color and the many challenges they face. In this book, 24-year-old British-Nigerian Oluseyitan Ojedokun gives an account of her struggles through school. She shares the many dreams and goals she had, despite the feeling of constant dismay.

Damaged is a story of survivor's guilt coupled with resentment tempered by love. It reveals the changing dynamics of a family faced with an injury no one could heal. Nancy Klein was in the first trimester of her second pregnancy when she made headlines as "Coma Mom." This intimate memoir, written by Klein's sister, reveals all that happened to her and her family after the news cycle moved on. The family: a mother who never gave up hope, even when hope was long gone, and a father who couldn't live without his wife's love.