Disability Biography

Annie and Rolf Lulloff were entering an exciting stage of life in 1976 when the first signs of health issues that lie ahead for Annie began to emerge. A sudden loss of sense of smell, severe anxiety attacks, vision issues, and other neurological challenges piled up, eventually culminating in a diagnosis of Parkinson’s disease on New Year’s Eve, 1989. But the Lulloffs were not about to let Parkinson’s get the best of them.

A revelatory collection of essays on the DeafBlind experience, and a manifesto on the power and untapped potential of touch. Born Deaf into an ASL-speaking family and blind by adolescence, John Lee Clark learned to embrace the possibilities of his tactile world. He is on the frontlines of the Protactile movement, which gave birth to an unprecedented tactile language and a way of life based on physical connection.

Cancer is cancer. Chemo is chemo. Right? That's what Mel thought before she received her diagnosis. But she quickly found out she had a lot to learn! From bird poo to shingles, Aunt Sally to burnt boob, and too many other "special joys" to mention: Who knew?

Johann König verliert als Kind durch einen Unfall fast vollständig seine Sehkraft. Wie kann man sich Kunst erschließen, wenn man sich auf seine Augen nicht verlassen kann? Was ist Sehen überhaupt, wenn die Welt um einen herum verschwimmt? In seinem Buch "Blinder Galerist" beschreibt Johann König, wie es ihm gelang, die Welt und die Kunst neu wahrzunehmen. "Die Bilder, die im Kopf entstehen, sind genauso wichtig wie die Bilder an der Wand".

What do you do when your reality slips away? If you're Sky Yardley and Jane Dwinell, you accept each new challenge, reshape your life, and write. When Sky was diagnosed with "probable early stage Alzheimer's" at age 66, he was determined to live as fully as possible. He researched dementia, talked about dementia, connected with other people with the disease, and wrote about it.

An inspiring story of hope, strength and courage. After doctors said there was no hope for her newborn daughter, this mother refused to give up. Despite her daughter’s severe disabilities, Lucy went on to touch many lives with her presence and became her mother’s greatest teacher.

This book is based on real-life events and is a raw and authentic account of a true fight for life and justice—a memoir of a mother’s love for her daughter, Rachel, who is diagnosed with severe cerebral palsy, a condition which makes her incapable of voluntary movement or speech. It tells of hopes and fears, and the true meaning of what it’s like to be the mother of a daughter with severe cerebral palsy. It portrays Rachel’s passion for life and her mischievous sense of fun.

L'inizio di questa storia è un incrocio nel bel mezzo di Tripoli, più che un incrocio, un'auto con un parabrezza rotto ferma a un incrocio dopo un incidente. A bordo della macchina un uomo e una donna, un padre e una madre, prima erano in tre, solo che la figlia poco più che neonata è stata sbalzata fuori dall'abitacolo e ha impattato contro un albero. Comincia così il racconto della vita di Nagla Augelli, bambina tunisina abbandonata dalla famiglia in un orfanotrofio della sua città, dopo che un incidente di auto l'ha resa paraplegica.

Operated on as an infant, without anesthesia, Wendy P. Williams began life at war with her body. There were tubes everywhere, in and out of every opening, her mother reminded her on every anniversary of her surgery. Autobiography of a Sea Creature takes listeners on Williams’ difficult sensory journey toward healing, as she communes along the way with horseshoe crabs, dolphins, and other marine life that taught her the restorative power of beauty, resilience, and interdependence.

"Dandelion Roots Run Deep" is the true story of three generations of tenacious Midwestern women, one in Illinois and two in Michigan. Merry is the third generation, and her mother Merrill, fought for organic agriculture and Michigan's environment from 1967 - 2009. Merrill developed Alzheimer's before finishing her book, so Merry took her story to fruition.

Told with shocking honesty and in unbelievable detail, Bipolar: A Gift of Thorns is a profoundly insightful memoir that shines a light on one woman’s courageous journey and the stigma of bipolar disorder.

When Jeremy and Emily Freeman’s teenage son Caleb was in a devastating car accident, doctors gave him a 10 percent chance of survival. Fear of losing a child was all too fresh for the Freemans—their seven-year-old son, Trey, had died just four years earlier from a genetic immunodeficiency. But God. In #butGod Jeremy shares the incredible story of Caleb’s recovery, the darkness that nearly overtook their family in the waiting, and the #butGod movement that captured the prayers of Christians around the world.

At age 54, Chris Monnette is diagnosed with neovascular macular degeneration, an incurable retinal disease that slowly robs him of his eyesight. As each cell in his macula dies and his vision diminishes, he is forced, literally and figuratively, to see the world through different eyes. Raised in the shadow of an emotionally stifled father, Chris learns early on to mirror the belief that vulnerability equals weakness. A piercingly honest meditation on the emotional legacy of stoicism, Seeing Clearly is much-needed proof that being a man and being vulnerable are one and the same.

Have you ever wondered how a blind person pours a cup of coffee? Or how they and their guide dog know when it's safe to cross a busy road? When Lois Strachan lost her sight at the age of 21 years, she had to learn the answers to these and countless other questions of how to live as a blind person in a sighted world. In this delightfully quirky and entertaining book, Lois shares some of the secrets she discovered about how to live an “ordinary” life in an extraordinary way despite her disability.

私たちは本当に「見て」いるのか?触れて、聴いて、初めてわかる、この社会のかたち。時に鋭く、そしてあたたかく。ユーモアに満ちた随想集。

Negli ultimi decenni si è verificata una profonda rivoluzione nella cura della sclerosi multipla, una disfunzione del sistema immunitario che colpisce 122.000 italiani e 2,5 milioni di persone nel mondo. Grazie allo sviluppo di nuovi farmaci sempre più efficaci e a fondamentali scoperte, dai fattori di rischio genetici e ambientali al ruolo rigenerativo delle cellule staminali nel cervello, ora, finalmente, la vita delle persone che soffrono di questa malattia è sempre più vicina alla normalità.

They say if you want to make God smile, tell him you have a plan. Dwight’s plan was to live his dream, teach math, coach football, and build a comfortable life for himself. Fate had other things in store for him. The story of Dwight’s physical and emotional journey from life as an able-bodied young man chasing his dreams only to have his world turned upside down by the thoughtless act of a 71-year-old drunk driver.

In No Bad Days, JT details the incredible story of how he overcame what seemed like insurmountable odds and shares the many invaluable lessons he has learned throughout his life in the hope that others might reach their full potential. These lessons include how to: find your tribe, pull off the label, stretch yourself, listen to others, and learn to fall. JT’s improbable life story is evidence that regardless of the mental and physical challenges you might face, you can defy the odds to create the life you want and accomplish the things you’ve only dreamed about.

A Michele La Pusata, dodici anni fa, è stata diagnosticata la Sclerosi laterale amiotrofica, meglio conosciuta come SLA. Prima, la sua era una vita più che normale, tra figli, lavoro e piccole incombenze, poi non lo è stata più. Non si mette mai in conto di affrontare una malattia lenta e invalidante come questa e infatti nessuno è preparato.

Essere una donna disabile in un mondo in cui l'immagine femminile appare sempre patinata e perfetta non è facile, ma Antonella Ferrari, attrice e ballerina, malata di sclerosi multipla, non si è mai arresa tanto da diventare un punto di riferimento, una fonte di ispirazione per tante persone meno fortunate. "Mi sono beccata tantissime porte in faccia, tantissime delusioni ma dovevo andare avanti anche per tutti quelli che vivono bloccati per colpa di una malattia."