Disability Biography

Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits—an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes (and stick his younger brother in them)—had earned him the label “social deviant.” No guidance came from his mother, who conversed with light fixtures, or his father, who spent evenings pickling himself in sherry. It was no wonder he gravitated to machines, which could, at least, be counted on.

Barbara Anderson narrates with brutal honesty the day-to-day experience of having a child with disabilities: the challenges inside and outside the home, health and life complications, the shifting priorities, the daily Mt. Everest-sized struggle of having a child with an—until now—irreversible diagnosis such as infantile cerebral palsy.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

Love Is Blind is the memoir of Ruth Vallis. Blind before the age of three, Ruth was the youngest pioneer of integration in the public school system in Canada, blazing a trail for many to follow. At every stage of her extraordinary life, Ruth defied the low expectations of others, and took on such challenges as biking from Ottawa to Toronto, completing a master’s of science degree online before technology accessibility was legislated, and more. Through it all there was her tender, tough-loving mother, Peach.

Darryl Jefferson was diagnosed with Asperger's syndrome at the age of eight and encountered many hurdles in life due to the condition. Despite this, he persevered through many challenges in school, work, relationships, and the military. In this story, he takes us on a journey through one man's experience of living with autism and its effects on school, work, relationships, friendships, and many other life challenges.

After a shocking diagnosis for a rare pituitary disease, and with her eighteen-year marriage in shambles, Risa's life has fallen far from picture-perfect. Recovering from brain surgery and desperate to get back to her former self, she signs up for the bike tour of a lifetime-six weeks from Canada to Mexico on the Pacific Coast Highway. The old Risa could have done the ride in her sleep, but for the new Risa, trapped in a body that no longer feels like her own and stuck in the company of her brain tumor, Bubba, the ride becomes a challenge unlike anything she's ever faced.

Helen Adams Keller was an American author, handicap rights champ, political activist, and speaker who lived from June 27, 1880 to June 1, 1968. She was born in West Tuscumbia, Alabama, and following a bout of health problem at the age of 19 months, she lost both her sight and hearing. Keller used home signals till she was seven years of age, when she met Anne Sullivan, her first instructor and long-lasting partner, who taught her language, and that includes reading and writing.

Lauren Windas is one of the estimated 250,000 people suffering with CFS in the UK. Whilst at university in 2012, she fell ill with a viral infection and was later diagnosed with CFS. Since then she has devoted herself to reclaiming her health and being able to live a full life, drawing on the knowledge of experts to help manage her often mysterious and hard-to-manage condition. In Chronic Fatigue Syndrome, Lauren recounts the highs and lows of her own health journey and experiences,.

When PhD candidate Sarah Vallance is thrown from a horse and suffers a jarring blow to the head, she believes she walks away unscathed. The next morning, things take a sharp turn as she’s quickly led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.

At a time when we are all more rudderless than ever, we look for the very best teachers and mentors to guide us. In Fully Alive, an unusual and gripping memoir, Timothy Shriver shows how his teachers have been the world's most forgotten minority: people with intellectual disabilities. In these pages we meet the individuals who helped him come of age and find a deeper and more meaningful way to see the world.

DEMENTIA and OUR LOVE, Caregiving as spiritual practice, is the story of Gary and Heather's love that sustained them through an unusual and courageous life across continents, including tending Gary and his onset of dementia at 73 years. The story helped them remember their love and use this energy to move through the hard times. We will always remember us this way, a song by Lady Gaga, was pivotal in keeping Heathers focus.

Born with Epidermolysis Bullosa (EB), a rare and excruciatingly painful condition that makes her skin as fragile as butterfly wings, Emma Fogarty was not expected to survive infancy. Today, at 41 years of age, she is the oldest living Irish person with the condition, continuing to defy the odds with extraordinary strength, resilience and remarkable achievements. However, every accomplishment Emma makes comes with its own set of obstacles.

Sumérgete en la extraordinaria vida de Gerardo Schmedling, un hombre cuyo poder espiritual inquebrantable desafió las adversidades de la parálisis de Guillain-Barré en su juventud y las secuelas que afectaron su movilidad de por vida. Este relato, narrado por su prima María Mercedes Olivares Schmedling, conocida como Mechas, quien compartió con él desde su infancia, revela cómo Gerardo se convirtió en el arquitecto de un movimiento global de transformación personal y social.

Amit Patel is working as a trauma doctor when a rare condition causes him to lose his sight within 36 hours. Totally dependent on others and terrified of stepping outside with a white cane after he's assaulted, he hits rock bottom. He refuses to leave home on his own for three months. With the support of his wife, Seema, he slowly adapts to his new situation, but how could life ever be the way it was? Then his guide dog, Kika, comes along....

Ce parcours c'est avant tout une belle histoire d'amour. Une histoire à deux qui malheureusement se termine mais accroît le désir inconditionnel de devenir père, le combat d'un homme pour connaître la paternité, y compris seul. À travers ce témoignage, Mathieu Ceschin se livre sans filtre sur ce combat, celui d'une vie, pour toucher à la paternité.

This is my inspirational true story of childhood sexual abuse that I endured. The abuse was a secret, even to me, due to the fact that all the painful images were locked up in my subconscious for close to 37 years.

Gaelynn Lea was born with Osteogenesis Imperfecta. Her parents were loving, cash-strapped theater kids, and she grew up racing about in her first electric wheelchair, having adventures with her siblings, and handing out playbills at her parents' dinner theater shows. Transfixed by an orchestra performance in 5th grade, Gaelynn was determined to play the cello. When her shortened limbs made playing the instrument challenging, she employed a familiar tactic: adapting. What if she held a violin upright in her wheelchair, like the world's tiniest cello?

When Schuyler Rummel-Hudson was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

At age 16, James Tate Hill was diagnosed with Leber’s hereditary optic neuropathy, a condition that left him legally blind. After high school friends stopped calling and a disability counselor advised him to aim for C's in his classes, he used his remaining blurry peripheral vision to pretend he could still see. Feigning eye contact, memorizing common routes, filling shelves with paperbacks he read via tape cassettes, he organized his life around passing for sighted.

In the summer of 2019, journalist Melissa Blake penned an op-ed for CNN Opinion. A conservative pundit caught wind of it, mentioning Blake’s work in a YouTube video. What happened next is equal parts a searing view into society, how we collectively view and treat disabled people, and the making of an advocate. After a troll said that Blake should be banned from posting pictures of herself, she took to Twitter and defiantly posted three smiling selfies, all taken during a lovely vacation in the Big Apple. Now, in her manifesto, Beautiful People, Blake shares her truths about disability.