Disability Biography

For many years, Jeffrey Demitrack searched for a meaningful and fulfilling relationship and, most of all, hoped that one day he would find a significant other who understood and unconditionally accepted his struggles with epilepsy. People have their insecurities, and relationships already are hard without throwing seizures into the mix, so his search has been a challenging one.

"Je vis avec l'autisme", écrit Josef Schovanec, soulignant ainsi ce qu'il considère plus comme une qualité que comme un handicap. Ce voyageur passionné des civilisations anciennes maîtrise une dizaine de langues, est diplômé de Sciences Po et possède un doctorat en philosophie. Il récuse pourtant les attributs qu'on lui prête - ceux d'un autiste "génial" aux capacités intellectuelles extraordinaires - pour évoquer plutôt, avec beaucoup d'humour et de sensibilité, ces "petits" problèmes qui font le quotidien d'un autiste Asperger.

In 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that paralyzes the entire body. Doctors gave him three years to live. He was thirty-four years old. As Steve says, he is now ten years past his expiration date. His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced.

For fans of rags-to-riches stories, Be There When I Return is not just about overcoming epilepsy and finding success—it is also for those who are looking for a celebration of love in its purest form. When thirty-one-year-old Michael starts to act out of character, it gets the attention of his roommate and a woman he has started dating. After denying anything is wrong with him, Michael finally decides to visit a neurologist. His life takes an unexpected turn when he receives a life-altering diagnosis of epilepsy.

Le 3 avril 2015, on diagnostique à Marine, jeune étudiante dynamique de 21 ans, une sclérose en plaques, appelée plus communément SEP. L'urgence de la situation, le besoin de prendre une décision quant à la prise d'un traitement ou non et le manque d'informations, l'amène à s'interroger. "La maladie c'est toi qui l'as, il faut donc chercher la solution en toi." Son traitement ? Réaliser un projet rêvé : le voyage.

In 2017, President Obama, in his final Oval Office interview, was asked who gave him hope for the future of the country, and Jason Kander was the first name he mentioned. Suddenly, Jason was a national figure. As observers assumed he was preparing a run for the presidency, Jason announced a bid for mayor of Kansas City instead and was headed for a landslide victory. But after eleven years battling PTSD from his service in Afghanistan, Jason was seized by depression and suicidal thoughts. He dropped out of the mayor’s race and out of public life. And finally, he sought help.

Through the intimate writing of critically acclaimed autistic author Kay Kerr, Love & Autism presents an uplifting celebration of neurodivergent love, the search for it and a deeper look into the lives of autistic Australians.

When Jade unexpectedly suffered from a rare condition which left her paralysed and in a wheelchair at the age of twelve, she never imagined that she'd one day meet her husband John and that together they would take to social media to dispel the stigma surrounding disability, one story at a time. From questions about suffering and sex to family and faith, Jade and John speak honestly and humorously about life as an inter-able couple.

When Ellie Goldstein was first diagnosed with Down Syndrome, her mother was soon told that her new-born would amount to nothing. For 21 years and counting, Ellie Goldstein has been defying the odds and overcoming every hardship thrown at her. Told she wouldn't walk, Ellie has danced on mainstages. Told she wouldn't learn, she has gained a college education. And told not to dream, Ellie has gone on to become the first model with Down Syndrome to be photographed for Gucci and continues to change the face of fashion from the inside out in countless international campaigns.

On Halloween day 1990, Sterling Krysler—husband, father, pilot, newly arrived in Hawai'i—suffered a catastrophic spinal cord injury while body surfing at a local beach. Ever the optimist, Sterling accepted the life-changing injury becoming advocate and inspiration to many in the "disability community." This is a family-centered story brimming with love, joy, and humor. This is his story—before and after.

Until sophomore year of high school, 15-year-old Allison Britz lived a comfortable life in an idyllic town. She was a dedicated student with tons of extracurricular activities, friends, and loving parents at home. But after awakening from a vivid nightmare in which she was diagnosed with brain cancer, she was convinced the dream had been a warning. Allison believed that she must do something to stop the cancer in her dream from becoming a reality.

In Laughing and Crying Alone, we are offered a compelling account of the struggles associated with bipolar disorder. Alternately heartbreaking and uplifting, we follow Lisa through the laughter and the tears. Exploring Lisa's feelings of isolation, Laughing and Crying Alone provides compassion and validation to those with mental illness while shedding a much-needed light on mental health. And through it all, we see a wife and mother come to terms with the uncertainties of living with bipolar disorder and reemerge to embrace the new normal with confidence and ease.

Barbara Anderson narrates with brutal honesty the day-to-day experience of having a child with disabilities: the challenges inside and outside the home, health and life complications, the shifting priorities, the daily Mt. Everest-sized struggle of having a child with an—until now—irreversible diagnosis such as infantile cerebral palsy.

Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits—an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes (and stick his younger brother in them)—had earned him the label “social deviant.” No guidance came from his mother, who conversed with light fixtures, or his father, who spent evenings pickling himself in sherry. It was no wonder he gravitated to machines, which could, at least, be counted on.

Born without arms or legs below his elbows and knees, Kyle Maynard excels as a champion athlete, inspirational speaker, college student, and male model. No Excuses is his inspirational autobiography that shows how a positive, can-do attitude gives someone we might see as disadvantaged the advantage over life.

Darryl Jefferson was diagnosed with Asperger's syndrome at the age of eight and encountered many hurdles in life due to the condition. Despite this, he persevered through many challenges in school, work, relationships, and the military. In this story, he takes us on a journey through one man's experience of living with autism and its effects on school, work, relationships, friendships, and many other life challenges.

After a shocking diagnosis for a rare pituitary disease, and with her eighteen-year marriage in shambles, Risa's life has fallen far from picture-perfect. Recovering from brain surgery and desperate to get back to her former self, she signs up for the bike tour of a lifetime-six weeks from Canada to Mexico on the Pacific Coast Highway. The old Risa could have done the ride in her sleep, but for the new Risa, trapped in a body that no longer feels like her own and stuck in the company of her brain tumor, Bubba, the ride becomes a challenge unlike anything she's ever faced.

Musical director and arranger David Loud, a legendary Broadway talent, recounts his wildly entertaining and deeply poignant trek through the wilderness of his childhood and the edge-of-your-seat drama of a career on, in, under, and around Broadway for decades. He reveals his struggle against the ravages of Parkinson's and triumphs repeatedly. This memoir is also a remarkable love letter to music. Loud is the Ted Lasso of the theater business, ever the optimist!

Andrea Lytle Peet was thirty-three years old—an urban planner living in D.C., newly married, and a triathlete—when she received the death sentence of an ALS diagnosis (also known as Lou Gehrig's disease). After grappling with the fact that she will likely become paralyzed and die within two to five years, Andrea experienced an unexpected spark that changes her outlook in the most magnificent way.

Le 8 décembre 1995, à la suite d’un accident vasculaire cérébral, Jean-Dominique Bauby est plongé dans un coma profond. Quand il en sort, toutes ses fonctions motrices sont détériorées. Atteint de ce qu'on appelle le " locked-in syndrome ", il est littéralement enfermé à l'intérieur de lui-même ; il ne peut plus bouger, manger, parler ou même simplement respirer sans assistance. Dans ce corps inerte, seul un œil bouge.