Disability Biography

A profoundly beautiful memoir about disability, difference, and living as a vulnerable body. Jan Grue had just become a father when he inherited a stack of his childhood medical records. Following a diagnosis of spinal muscular atrophy at the age of three, the raft of doctors' notes, clinical descriptions and case histories defined his body as defective and his future as bleak and limited. They conjured a childhood nothing like the one he remembered, that failed to anticipate the life he lived now. "I Live a Life Like Yours" is Grue's beautiful, groundbreaking search for a literary language that could better tell his story.

Essere una donna disabile in un mondo in cui l'immagine femminile appare sempre patinata e perfetta non è facile, ma Antonella Ferrari, attrice e ballerina, malata di sclerosi multipla, non si è mai arresa tanto da diventare un punto di riferimento, una fonte di ispirazione per tante persone meno fortunate. "Mi sono beccata tantissime porte in faccia, tantissime delusioni ma dovevo andare avanti anche per tutti quelli che vivono bloccati per colpa di una malattia."

Type 1 diabetic, fitness fanatic, dancing queen, Canasta champion; only some of the tags used to describe Colleen Ashby. Daughter, sister to five brothers, wife, and mother of three sons further define Colleen. Add to that, she is a heart transplant recipient who is now visually impaired, and you realize there is much more to learn.

In this moving memoir, Joy Clausen Soto vividly brings us into her world. We see her go from her dream job to fighting for her life, and how she is able to come back from it all. You can't avoid falling in love with her quirks, indomitable spirit, and wry sense of humor. Soto takes listeners on a compelling journey as she faces cancer and the challenges she encounters while re-entering "normal" life.

Kelley Jo Burke embarks on a wild journey to understand many things, including the part where her grandfather sort of murdered her grandmother. Returning to a house filled with her first memories of childhood, she begins to explore the complex origins of her own anxiety. Along the way, she reflects on alienation and immigration, mental health and generational trauma, and the nature of memory itself. A memoir filled with raw honesty, comedy, tragedy, and grace.

On July 4th, 2013, Connor Sparrowhawk, also known as Laughing Boy or LB, was found dead in a specialist NHS unit. Connor, who had autism and epilepsy, had a seizure while in the bath, and no member of staff was on hand to stop him from drowning. An entirely preventable death. Sara Ryan presents a frank, sometimes funny and touching account of her son's early life and preventable death and the unfolding #JusticeforLB campaign.

After a normal, healthy, full-term pregnancy, Margaret Moore's parents Anne and Terrence were shocked as a prolapsed umbilical cord left their daughter unable to breathe on her own. Margaret, nicknamed Meg, was not expected to live through the night and began to breathe on her own by the next day—a phenomenon that medical personnel deemed a miraculous recovery. Meg came home with a physical disability Cerebral Palsy and permanent dependence on others for help with feeding, dressing, hygiene, and transfers to and from her wheelchair and walker.

A displaced person (now called refugee or economic migrant), aged 19, escapes in 1950 from behind the Iron Curtain with his mother's and her friends' help. He maneuvers through minefields and swims across icy waters and past Russian patrols to reach Salzburg and then Switzerland, hoping to catch up with his brother (who by then had migrated to Australia). He makes it back again, falls in love, but then emigrates to Canada to start a new life, gets to University in Toronto, and is then joined by his mother after escaping in 1956 during the Hungarian uprising.

Shot point-blank in the side of the neck, Michael Kiel was completely paralyzed from the neck down on April 16, 1993. As a 19-year-old sophomore at Penn State - Altoona campus, the world he knew vanished. It was turned upside down and inside out, and the next four months in the hospital and rehab center would test every fiber of his being. This memoir is about his perspective on life - his entire life - before, during, and after a life-altering spinal cord injury.

Parenting can be a struggle, especially parenting a disabled child. In this flawlessly crafted memoir, Kramar describes championing her son, diagnosed with Sotos syndrome, through his short life. She examines the experience of loving and losing a child and reminds us that there is a way forward through the grief. Kramar’s memoir offers guidance, wisdom, and inspiration - an amazing story of redemption and hope.

Growing Up Disabled in Australia is the fifth book in the highly acclaimed, best-selling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt.

One September day in 1955, Rita’s life changed forever when polio struck her family. She was five years old. Rita became totally paralyzed; her brother was partially affected, and she lost her mother to the virus. The hospital became her home, and the ward sister her mother. Hospital life was harsh in the 1950s: Crying was a punishable offence and meant solitary confinement. Rita struggled to walk again using leg callipers and a spinal brace, and later became mobile with the use of a wheelchair.

Virginia Hall, una joven estadounidense rechazada por el Servicio de su país por ser mujer y por haber perdido la pierna izquierda, fue la primera espía en ingresar a una misión secreta en Francia durante la Segunda Guerra Mundial. Sus proezas son muestra del valor y la astucia que la caracterizaron como agente. Se infiltró como periodista en Vichy y en Lyon, peligrosamente cerca de los nazis; organizó una red de agentes bajo el territorio enemigo; liberó a prisioneros de situaciones que parecían irremediables; y hasta dinamitó puentes para sabotear las operaciones alemanas.

When a devastating event takes away the way of life you are accustomed to, you have two choices: Stop living, or start planning! In this memoir, Shawn Paulsen demonstrates how he has overcome his stumbling blocks and turned them into stepping stones on his journey through the misfortunes of life. Shawn’s story inspires and motivates others to overcome. He describes how he has learned to face adversity with his chin up by taking a comedic view of his malady and life.

Now you can go where no one has been before: deep inside a mind with high-functioning autism. In his roller coaster of a life, Dylan Volk (aka Dielawn) has lived all over the country, tried to fit in with many different crowds, and been in jail a few times. Now he has written a tell-all book to give you all the juicy details. Don't listen to this book before you go to sleep - you may be up all night!

It was a crisp winter day when six-year-old Kacey McCallister lost both of his legs, forever altering the course of his life. This unthinkable trial could have broken him, but from that day forward, he chose to rise above his circumstances and learn to live without limits. For those struggling to find hope in the depths of physical, spiritual, or emotional trials, this incredible story of one man’s unbreakable courage will inspire and motivate listeners to not only survive, but thrive amidst life’s challenges.

Randy Pierce was 22 years old, fresh out of college, and thriving at an excellent job. His promising future seemed certain. Then, in just two short and devastating weeks, an unexpected neurological disorder plunged him into blindness. Randy, believing his future had vanished in the blink of an eye, wondered, “How can my life have meaning now?” Before he could fully answer, he had further to fall. Blindness was far from the worst challenge he would face. See You at the Summit is Randy’s uplifting personal account of his journey through adversity to accomplishment.

At 35, the same age as his mother when she had her accident, Mitch began experiencing symptoms of primary progressive multiple sclerosis, a particularly disabling form of MS, and his physical challenges grew to resemble his mother’s. In the ensuing years, he muddled through the ethical swampland of clinical trials, navigated the minefield of experimental treatments, and became a popular blogger and disability advocate. Equal parts entertaining and inspiring, Enjoying the Ride tells an extraordinary mother and son story.

Theresa Marafito, daughter of Irish immigrant parents, was born in 1933 in New York City, blind in one eye with partial vision in the other. She was a precocious child who wanted to appear “normal” to her peers and family, regardless of her disability. Her game was to be independent, not dependent, and would rarely ask for help. At 19, she graduated magna cum laude with two master’s degrees. Theresa and her husband, Jerry, who was also visually impaired, would build a house on a shoestring budget and had two daughters; one who was also born visually impaired.

I will state that though listed as a memoir, this is for the most part a fiction book subject (epilepsy Zen). They say that Yin Zen questioning is talking to your higher consciousness; epilepsy Zen meditation is contemplating your navel or lower than your tanzen - doorway to the hara and hearing the giant ocean roar from within a fragile seashell and learning the Yang illuminating answer.