Disability Care

What is intimacy? More than sex, more than romantic love, the pieces in this stunning and illuminating new anthology offer broader and more inclusive definitions of what it can mean to be intimate with another person. Explorations of caregiving, community, access, and friendship offer us alternative ways of thinking about the connections we form with others—a vital reimagining in an era when forced physical distance is at times a necessary norm.

In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community.

Just Care is Akemi Nishida’s thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change.

This audiobook reveals that people with disabilities are the invisible force that has shaped history. They have been instrumental in the growth of freedom and birth of democracy. They have produced heavenly music and exquisite works of art. They have unveiled the scientific secrets of the universe. And at 1.2 billion, they are also the largest minority group in the world. Al Etmanski offers 10 lessons we can all learn from people with disabilities, illustrated with short, funny, inspiring, and thought-provoking stories of 100 individuals from 20 countries.

“An essential guide” (Mark Hyman, author of Young Forever) to navigating life with the cognitive and mental health impairments that often accompany Long Covid. Early in the Covid-19 pandemic, the shocking mortality figures obscured the fact that death is not the only adverse outcome of the...

Amit Patel is working as a trauma doctor when a rare condition causes him to lose his sight within 36 hours. Totally dependent on others and terrified of stepping outside with a white cane after he's assaulted, he hits rock bottom. He refuses to leave home on his own for three months. With the support of his wife, Seema, he slowly adapts to his new situation, but how could life ever be the way it was? Then his guide dog, Kika, comes along....

Featured in The Advocate, New York Times, Literary Hub, Autostraddle, and New York magazine's The Cut This is a vital exploration of the ways society overlooks—and fails—young women with disabilities and chronic illnesses Miriam’s doctor didn’t believe she had breast cancer. She did...

Brought to you by Penguin. From the remarkable man whose life inspired the heartstopping film, ‘I Swear’, a book that offers extraordinary insight into what it’s like to live with a severe form of Tourette’s Syndrome: a fascinating, complex condition that’s more common than most of us...

This is the true story of a very special man whose life was suddenly and forever changed by a rare disease. Dealing with a severe backache for three days, he was taken to an emergency room. For five grueling months, his dignity, as well as his very self was stripped away. Trapped in a system that all too often is not healthcare, but Healthcareless.

Stephen Kuusisto was born legally blind - but he was also raised in the 1950s and taught to deny his blindness in order to "pass" as sighted. Stephen attended public school, rode a bike, and read books pressed right up against his nose. As an adult, he coped with his limited vision by becoming a professor in a small college town, memorizing routes for all of the places he needed to be. Then, at the age of 38, he was laid off. With no other job opportunities in his vicinity, he would have to travel to find work.

An eye-opening wife’s journal which speaks about an amazing and unbelievable traumatic brain injury adventure. Written with love, respect, and humor, this is a must-listen for anyone who wants to know about a TBI survivor’s daily routine.

When John Tovey lost his sight at the age of 42, he thought his life was over. He was wrong, it was just beginning. John had followed a bad path drifting in and out of trouble. He was sent to improvement schools, a young offenders institute and eventually a prison. John was on self-destruct and thought nothing or no one could help him. Then he became the victim of a vicious attack by a notorious train ‘steaming’ gang. John knew he had to take the witness stand.

A funny and empowering memoir from a girl with a severe form of cerebral palsy, for fans of Wonder and Out of My Mind. When she was just a tiny baby, something terrible happened to Lexi. It left her with an out-of-control body and without a voice. Now, as a precocious, superhero-obsessed...

In this moving memoir, Joy Clausen Soto vividly brings us into her world. We see her go from her dream job to fighting for her life, and how she is able to come back from it all. You can't avoid falling in love with her quirks, indomitable spirit, and wry sense of humor. Soto takes listeners on a compelling journey as she faces cancer and the challenges she encounters while re-entering "normal" life.

Tracey had been told this so often as a child. Yet, two months after the horse-riding accident, Tracey was still not able to fulfil it. In fact, at that stage, she couldn’t do anything for herself. You’d think that after nearly losing her life and her abilities to live life as it was before because of the riding accident, that she’d be nervous about getting back on a horse. But her love for horses and riding was so deeply ingrained within her that she couldn’t imagine a life without it. Getting back on a horse...she was determined that she would.

Half a world away from home in 1976, 18-year old Anne B. Thomas awakens on the side of a two-lane road paralyzed from the chest down. Fast forward through a rigorous year of physical therapy to when her doctor gives her an ominous warning: “You will live a long time and be a burden on your family for the rest of your life unless you check yourself into a nursing home”.

Come, Let Me Guide You explores the intimate communication between author Susan Krieger and her guide dog Teela over the 10-year span of their working life together. This is a book about being led by a dog to new places in the world and new places in the self, a book about facing life's challenges outwardly and within, and about reading those clues - those deeply felt signals - that can help guide the way.

A sudden rise in opioid addicts coinciding with a sudden drop in legally available opioids, created a desperation for prescription drugs never seen before in this country. Physicians shut down their previous practice of repeated refills, once the death toll was too high to ignore. As hospitals and rehab facilities instituted drug testing and CORI checks to ensure employees were clean, one health-care option stood alone as a place to easily obtain painkillers. That place was home health care.

Change is constant in the NDIS. To thrive, providers need more than good intentions, they need strong leadership, reliable systems, and a mindset for innovation. This no-fluff, real-world guide is designed especially for service providers who are passionate about supporting people with disabilities but are feeling the pressure of constant change.

In this collection of beautiful and raw essays, Amy S. F. Lutz writes openly about her experience - the positive and the negative - as a mother of a now 21-year-old son with severe autism. Lutz's human emotion drives through each moment and challenges commonly held ideas that define autism either as a disease or as neurodiversity.