Disability Memoir

Jonathan Mooney blends anecdote, expertise, and memoir to present a new mode of thinking about how we live and learn - individually, uniquely, and with advantages and upshots to every type of brain and body. He explores the toll that being not normal takes on kids and adults when they’re trapped in environments that label them, shame them, and tell them, even in subtle ways, that they are the problem.

With his signature acerbic wit and hilarious voice, 20-something author, blogger, and entrepreneur Shane Burcaw is back with an essay collection about living a full life in a body that many people perceive as a tragedy. From anecdotes about first introductions where people patted him on the head instead of shaking his hand, to stories of passersby mistaking his able-bodied girlfriend for a nurse, Shane tackles awkward situations and assumptions with humor and grace.

Through the intimate writing of critically acclaimed autistic author Kay Kerr, Love & Autism presents an uplifting celebration of neurodivergent love, the search for it and a deeper look into the lives of autistic Australians.

Layered with physical, emotional, and relational tension, Through Blurred Vision brings forth the life of a young man that was given a diagnosis that appears in 0.0001% of births. As a result, Kurt Pangborn’s life was encompassed in darkness. Yet despite the daunting realty of this diagnosis’ limitations, Pangborn sought the true light of life in his darkness, and found a message that extends past human reason. Kurt Pangborn’s Through Blurred Vision inspires listeners to turn their pain into praise and apply the “Three P’s” of higher living.

What would your life look like if you measured success by your improvements instead of your victories? Chris Nikic, the first person with Down syndrome to ever complete an IRONMAN® triathlon, inspires others to achieve their goals by getting one percent better better every day.

Barbara Anderson narrates with brutal honesty the day-to-day experience of having a child with disabilities: the challenges inside and outside the home, health and life complications, the shifting priorities, the daily Mt. Everest-sized struggle of having a child with an—until now—irreversible diagnosis such as infantile cerebral palsy.

For 18 years of my life, I dealt with harm daily. I suffered over 40 years with a substantial assortment of trauma-related manifestations. The devastation of the problems began when I was a child and lasted until I was in my mid-40s. I know my story sounds bleak but don’t be discouraged. Peace, laughter, joy, and happiness eventually came my way.

Jeremy Schreiber was on top of the world—athletic, newly married, successful. And then something went terribly wrong. In this moving memoir, he shares his journey after he received a terrifying diagnosis: ALS. As the devastating disease robbed him of movement and speech, he was abandoned by his wife and betrayed by a society that shuns people with disabilities. But it’s not all doom and gloom. He found love, support, and a powerful purpose. While fighting for his independence and then for his life, Jeremy gave his all to the ALS and disability communities.

Carla Sosenko was born with Klippel-Trenaunay syndrome, a rare vascular disorder that resulted in legs of different sizes, a mass of flesh on her back, a hunched posture, and other idiosyncrasies big and small. She spent years trying to hide under layers of clothing, and then experimented with the opposite: wearing tiny dresses and short shorts, daring people to stare so she could make them regret it. No matter what she did, she was worried that she didn’t measure up.

Buzz Bissinger’s twins were born three minutes—and a world—apart. Gerry, the older one, is a graduate student at Penn, preparing to become a teacher. His brother Zach has spent his life attending special schools. He’ll never drive a car, or kiss a girl, or live by himself. He is a savant, challenged by serious intellectual deficits but also blessed with rare talents: an astonishing memory, a dazzling knack for navigation, and a reflexive honesty that can make him both socially awkward and surprisingly wise.

Dive headfirst into the urban symphony of "Smelling the Taste of Sound", a riveting memoir of a newly diagnosed, neurodivergent trainee lawyer. Her sensory issues are compounded by the sirens that punctuate the daily grind of a tough, inner-city law firm. Amidst encounters with eccentric characters and surreal personalities, our protagonist navigates the chaos and unorthodox office dynamics with comical observations and resilience.

At the age of sixty, and having lived with Parkinson’s disease for over ten years, Guy Deacon CBE set out on one last adventure: to drive solo from his home in the UK 18,000 miles and through twenty-five countries to Cape Town on the southern tip of Africa. This incredible journey, across Europe and down the full length of Africa, took the former British Army officer over twelve months. Along the way, he broke down five times, underwent one emergency evacuation, and took 3,650 prescription pills.

This English professor grew up spacey and overweight. Drowning in the unrealistic demands of motherhood, Livingston steals her son's ADHD medication and watches it transform her life—for good and bad. She grows weary of subjective diagnoses and chemical treatments from traditional psychology experts, and experiments with functional medicine—brain mapping and nutritional supplements—as a way to understand her brain's potential, bio-hacking her way to a healthy body and mind.

Blindness in the 1950s was a social stigma. Stephen's mother wanted a normal life for him, so he fought desperately to uphold the illusion of sight. For a child frantic to fit in, each day was an exhausting pretence. He managed to ride a bike, when even reading involved pressing his nose to the page and painfully forcing his eyes to concentrate. Head up, he strode through a carefully memorized labyrinth of streets, hoping to fool passers-by that he could actually see.

In I'll Pray for You and Other Outrageous Things Said to Disabled People, Hannah Setzer volunteers to go first and say the things that we all think, but rarely say. Hannah has lived her whole life as a disabled woman and is here to share her story, though don't think for a second that this is inspiration porn. In fact, Hannah's disability is the least interesting thing about her!

Le 8 décembre 1995, à la suite d’un accident vasculaire cérébral, Jean-Dominique Bauby est plongé dans un coma profond. Quand il en sort, toutes ses fonctions motrices sont détériorées. Atteint de ce qu'on appelle le " locked-in syndrome ", il est littéralement enfermé à l'intérieur de lui-même ; il ne peut plus bouger, manger, parler ou même simplement respirer sans assistance. Dans ce corps inerte, seul un œil bouge.

Eric Davidson was a beautiful, fair-haired toddler when the Halifax Explosion struck, killing almost 2,000 people and seriously injuring thousands of others. Eric lost both eyes - a tragedy that his mother never fully recovered from. Eric, however, was positive and energetic. He also developed a fascination with cars and how they worked, and he later decided, against all likelihood, to become a mechanic. Assisted by his brothers, who read to him from manuals, he worked hard, passed examinations, and carved out a decades-long career.

When Jade unexpectedly suffered from a rare condition which left her paralysed and in a wheelchair at the age of twelve, she never imagined that she'd one day meet her husband John and that together they would take to social media to dispel the stigma surrounding disability, one story at a time. From questions about suffering and sex to family and faith, Jade and John speak honestly and humorously about life as an inter-able couple.

Le 3 avril 2015, on diagnostique à Marine, jeune étudiante dynamique de 21 ans, une sclérose en plaques, appelée plus communément SEP. L'urgence de la situation, le besoin de prendre une décision quant à la prise d'un traitement ou non et le manque d'informations, l'amène à s'interroger. "La maladie c'est toi qui l'as, il faut donc chercher la solution en toi." Son traitement ? Réaliser un projet rêvé : le voyage.

There Plant Eyes probes the ways in which blindness has shaped our ocularcentric culture, challenging deeply ingrained ideas about what it means to be “blind”. For millennia, blind­ness has been used to signify such things as thoughtlessness (“blind faith”), irrationality (“blind rage”), and unconsciousness (“blind evolution”). But at the same time, blind people have been othered as the recipients of special powers as compensation for lost sight (from the poetic gifts of John Milton to the heightened senses of the comic book hero Daredevil).