Disability Memoir

Le 3 avril 2015, on diagnostique à Marine, jeune étudiante dynamique de 21 ans, une sclérose en plaques, appelée plus communément SEP. L'urgence de la situation, le besoin de prendre une décision quant à la prise d'un traitement ou non et le manque d'informations, l'amène à s'interroger. "La maladie c'est toi qui l'as, il faut donc chercher la solution en toi." Son traitement ? Réaliser un projet rêvé : le voyage.

There Plant Eyes probes the ways in which blindness has shaped our ocularcentric culture, challenging deeply ingrained ideas about what it means to be “blind”. For millennia, blind­ness has been used to signify such things as thoughtlessness (“blind faith”), irrationality (“blind rage”), and unconsciousness (“blind evolution”). But at the same time, blind people have been othered as the recipients of special powers as compensation for lost sight (from the poetic gifts of John Milton to the heightened senses of the comic book hero Daredevil).

Living with multiple sclerosis was never going to be easy. The phrase 'I rule it, it doesn't rule me' was to become Lydia's benchmark. She clung fiercely to these words. They would booster her strength in the years ahead when at times, fear of the pain and its affects, especially the horrendous agony of an MS attack, would almost break her.

Written as a narrative short story, CallyRae shares her candid insights as she journeys through surviving with autoimmune diseases. Suffering from chronic daily pain, infections, and extreme fatigue, her outlook was one of frustration and hopelessness. As her life journey down the autoimmune highway took twists and turns, she learned to read the signs and listen to her body, mind, and spirit. She continues on the journey but has replaced pain with vitality, infections with health, and extreme fatigue with immense energy.

In 1959, the year Terry Galloway turned nine, the voices of everyone she loved began to disappear. No one yet knew that an experimental antibiotic given to her mother had wreaked havoc on her fetal nervous system, eventually causing her to go deaf. As a self-proclaimed "child freak," she acted out her fury with her boxy hearing aids and Coke-bottle glasses by faking her own drowning at a camp for crippled children

Fred Rutman was certainly up against it. It being the Grim Reaper. The Reaper unleashed its full arsenal, pitting Fred against much of the medical system he trusted with his life. Even if Fred won the initial battles, could he win the war? The Summer I Died Twenty Times is a medical trauma memoir unlike any other. In one package, Fred Rutman provides all the overcoming adversity, resilience and beating the odds a listener expects. With a side of sarcasm and humor. He may not be the hero you expected. He just might be the hero you need.

Women's lives are shaped by sexism and expectations. Disabled people's lives are shaped by ableism and a complete lack of expectations. But what happens when you're subjected to both sets of rules? This powerful, honest, hilarious, and furious memoir from journalist and advocate Lucy Webster looks at life at the intersection; the struggles, the joys, and the unseen realities of being a disabled woman.

DEMENTIA and OUR LOVE, Caregiving as spiritual practice, is the story of Gary and Heather's love that sustained them through an unusual and courageous life across continents, including tending Gary and his onset of dementia at 73 years. The story helped them remember their love and use this energy to move through the hard times. We will always remember us this way, a song by Lady Gaga, was pivotal in keeping Heathers focus.

Anna grew up in a house that was loving, even if her mum was ‘a little eccentric’. They knew to keep things clean, to stay quiet, and to look the other way when things started to get ‘a bit much for your mum’. It’s only when her mother reaches her 70s and Anna has a family of her own, that the cracks really start to appear. More manic. More irrational. More detached from the world. And when her father, the man who has calmed and cajoled her mother through her entire life is diagnosed with cancer, the whole world turns upside down.

In her moving account of how she came to understand the world around her despite being blind and deaf since childhood, Helen Keller confirms that no physical obstacle can hinder the achievements of the human mind. Included with Keller's poignant autobiography are her letters, spanning 15 years, which reveal her remarkable intellectual growth and empathic soul. Commentary by her teacher, Anne Sullivan, and the book's original editor is also featured, providing illuminating insight from two of Keller's closest companions.

Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits—an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes (and stick his younger brother in them)—had earned him the label “social deviant.” No guidance came from his mother, who conversed with light fixtures, or his father, who spent evenings pickling himself in sherry. It was no wonder he gravitated to machines, which could, at least, be counted on.

From Beneath the Ice is more than a book, it is a triumph of the human spirit. Todd’s mind was hijacked, but he slowly took the helm and charted a new course. It was a difficult process for him to write this book, but in the end, it was empowering. Publishing was even harder, knowing that his darkest moments would be ‘out there’ for the world to see. He knew his primary focus was to help people and contribute to ending the stigma about mental illness. To do this, he had to be more courageous than he had ever been.

Speaking My Truth is about a young man named Abdulahi Hassan who is born with a physical disability called Cerebral Palsy and tries to live a normal life. Regardless of his daily struggles he faces physically and mentally he is slowly learning to speak his truth and taking control of his own narrative one step at a time with a single beautiful smile.

A journey from darkness to acceptance is a raw and compelling memoir chronicling one woman's harrowing personal struggle with mental illness. When a severe psychotic break abruptly derails Elisa's stable life as a wife and mother, she finds herself plunged into an unpredictable world ruled by the terrifying whims of her mind. This powerful personal account traces Elisa's odyssey through the fragmented mental health system, oscillating from psychiatric holds to outpatient programs and back again as doctors struggle to control her volatile mood cycles.

By combing through the journals that Hannah has kept for much of her life, this collection of narrative essays delivers a fuller picture of her life, her experiences, and the things she's figured out about family, faith, love, sexuality, self-worth, friendship, and fame. Revealing what makes Hannah tick, this sometimes cringeworthy, poignant collection of stories is sure to deliver plenty of Hannah's wit and wisdom - and hopefully encourage you to try your hand at her patented brand of reckless optimism.

Can four words change a life? On a rainy autumn day, four words changed the life of a young cardiology nurse. Four little words hurled across a dimly lit exam room struck fear in a mother’s heart. “You are legally blind.” Anita’s journey through blindness began with the devastating diagnosis of retinitis pigmentosa, an untreatable, degenerative retinal disease. At the age of 33, she was forced to face not only vision loss, but also the loss of driving, her nursing career, and even her independence. Anita was convinced that life was over.

Debie Monax loved math - its consistency and predictability. In math, all one had to do was follow the proper process and apply appropriate principles to produce a guaranteed result. She applied the same mindset to her life, believing that if she understood the rules and applied the proper principles to all her decisions, she would have the life she dreamed of.

Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face-physical, psychological, and philosophical. Rebecca's story is an exquisite reminder to live each day to its fullest.

In early 2011, Yolanda Hadid was struck by mysterious symptoms including brain fog, severe exhaustion, migraines, and more. Over the months and years that followed, she went from being an outspoken, multitasking, hands-on mother of three, reality TV star, and social butterfly to a woman who spent most of her time in bed. Yolanda was turned inside out by some of the country's top hospitals and doctors, but due to the lack of definitive diagnostic testing, she landed in a dark maze of conflicting medical opinions.

"Je vis avec l'autisme", écrit Josef Schovanec, soulignant ainsi ce qu'il considère plus comme une qualité que comme un handicap. Ce voyageur passionné des civilisations anciennes maîtrise une dizaine de langues, est diplômé de Sciences Po et possède un doctorat en philosophie. Il récuse pourtant les attributs qu'on lui prête - ceux d'un autiste "génial" aux capacités intellectuelles extraordinaires - pour évoquer plutôt, avec beaucoup d'humour et de sensibilité, ces "petits" problèmes qui font le quotidien d'un autiste Asperger.