Disability Memoir

Jordan’s traumatic birth caused brain damage, whose limits he refused to accept. He embraced every struggle, learned to work through his weaknesses, and ultimately, redefined himself despite his learning disability label. All thanks to his dedicated cheer squad - family, friends, and God - he knows his potential has no limits, except those he puts on himself. But that doesn’t mean he’s escaped significant hiccups and challenges along the way.

For two decades a father kept a secret journal documenting the life of his only son, Christopher, who was born profoundly deaf. He had a simple dream of someday presenting that journal to Christopher as a special gift from father to son. But as each new challenge was surmounted, it became clear Christopher Caulfield’s story had to be shared.

Stephen Kuusisto was born legally blind - but he was also raised in the 1950s and taught to deny his blindness in order to "pass" as sighted. Stephen attended public school, rode a bike, and read books pressed right up against his nose. As an adult, he coped with his limited vision by becoming a professor in a small college town, memorizing routes for all of the places he needed to be. Then, at the age of 38, he was laid off. With no other job opportunities in his vicinity, he would have to travel to find work.

After 30 years of a healthy, rewarding, and exciting life, I wake up in a hospital bed unable to move. The neurosurgeon leans down and breaks the news: You won't regain any function in your body and you will never walk again. My medical insurance sends me home, discontinues my care, and tells me to "adapt to my new life". Little Big Steps is the story of the pivotal moments, interactions, and breakthroughs following the injury that turned my life upside down.

Robert Mercer's life could have been very different. He was born with very low vision and as a youngster struggled in school. But through the intervention of a caring teacher and the support of his family, he found his way to the Halifax School for the Blind and into the classroom of Mrs. Beaton. It was there he discovered his voice, a voice he uses to recount his remarkable journey from a shy little boy to a community leader.

Darlene was a small-town single mother from Arkansas. Bert was a small-town preacher’s son from Oklahoma. Polio crippled both of them as teenagers. When their paths crossed at a rehab center in 1952, these young adults questioned how anything good could come from this crippling virus. Bert’s faith in the Biblical passage of Romans 8:28 gave him hope that “Polio was not good, but God would bring good out of it.” Darlene’s journey to the rehab center was “the one way for God to get me in the right place at the right time.”

Mutter Anna Maria erlitt im Jahr 2013 eine schwere Gehirnblutung, einen Schlaganfall, welcher sie zu einem absoluten Pflegefall machte und ihren Charakter sehr wesentlich veränderte. Die Familie, Ehegatte Friedrich, genannt Fritz und Tochter Sabine (die Autorin), standen vor nie geglaubten Herausforderungen. Das Buch beschreibt sehr umfangreich die Facetten des geänderten Alltages, nimmt dabei Leser*innen sehr ehrlich auf eine „Achterbahnfahrt der Gefühle" mit.

When you hear the word “disability”, what comes to mind? Cheryl Schiltz tells her story of being introduced to disability. She shares her journey from a silent world to one that encased her in constant anxiety. Her life as she knew it had disappeared. It became one of a continuous fight between psychological and physical change. Noise. From her childhood, you’ll find yourself traveling with her as she discovers the power to gain control. She shares her story openly and honestly, raw and sensitive.

Junius Wilson (1908-2001) spent 76 years at a state mental hospital in Goldsboro, North Carolina, including 6 in the criminal ward. He had never been declared insane by a medical professional or found guilty of any criminal charge. But he was deaf and Black in the Jim Crow South. Unspeakable is the story of his life.

At the age of thirty, just as everything was falling into place for him, Lee Pesky died of brain cancer. For his father, Alan, grief came with the realization that he had lost the chance to love Lee as he was—not as he wanted him to be. Ambitious, successful, and always striving for more, Alan had a hard time relating to a son who struggled with learning disabilities at a time when there was little understanding or help for kids who had them. Their relationship was complicated, and now, Lee was gone.

With humility and candor, artist activist Mary Fisher inspires us when, in her eighth decade, she creatively takes on disease, poverty, hunger, injustice, racism and the role of women. Uneasy Silence tells her story of speaking truth to power while living with AIDS, journeying through cancer and surviving a near-death experience. Her steady concern for The Other enables her to find the strength to stand up, speak up and make a difference, inspiring us to do the same.

Blinded at age three, Mike May defied expectations by breaking world records in downhill speed skiing, joining the CIA, and becoming a successful inventor, entrepreneur, and family man. He had never yearned for vision. Then, in 1999, a chance encounter brought startling news: a revolutionary stem cell transplant surgery could restore May's vision.

You struggle with your disability. You're tired of being counted out of life. Are you frustrated because you feel, or have been told, you can't be 100% healthy with your disability? It's time for a change! It's time to prove everyone (including your doctors) wrong! Author and certified personal trainer Tony Jacobsen, who has Osteogenesis Imperfecta (Brittle Bones Disease), has transformed his entire life and now shares the formula to empower other people with disabilities.

While society called his disability an obstacle and limitation, Neil argued that his "flourishing dystonia" allowed him to think, explore, and create art in a way most people cannot. True to his words, Neil embraced every opportunity to experience life to its fullest, from navigating the Alaskan wilderness in a wheelchair to commanding the spotlight on stage. In this deeply personal account, Neil invites listeners into his world as he remembers adventures and escapades, triumphs and disappointments.

It only takes a second to change your life. At age 21, Ryan Atkins had everything going for him: A full-ride scholarship in a prestigious business program, a well-paying internship, an opportunity to pitch a business plan to venture capitalists in New York City. He was living his dreams and preparing for a future of success. But the day before leaving for New York, Ryan was in a life-altering car accident that robbed him of the use of his arms and legs. Paralyzed from the shoulders down, he found himself struggling to grasp just how fundamentally his life had changed.

Families who have supported a child with special needs will connect with this memoir about Sarah, a feisty girl with autism and a unique genetic blueprint. Her mom, Jenny, is equally feisty and determined, which leads her to make a commitment that dramatically changes her and Sarah’s lives—as well as those of many others.

Our Life Our Way: A Memoir of Active Faith, Profound Love and Courageous Disability Rights explores an extraordinary love story grown out of engagement with both disability rights advocacy and christian faith communities. This memoir contains thoughtful, often entertaining, and sometimes heart-wrenching anecdotes of a couple’s journey to create their profound relationship and Christian marriage, in a world not yet ready for them.

Martin Hibbert was left paralysed from the waist down by the Manchester Arena bombing which killed twenty-two people on 22 May 2017. Martin’s teenage daughter Eve was one of the 940 injured, in Eve’s case, gravely. The dad from Bolton has since become a leading campaigner both for victims of the atrocity and those with spinal cord injuries. Determined to make a difference he took on the ultimate challenge, scaling Kilimanjaro in a wheelchair, becoming the second paraplegic to do so, and raising a million pounds for charity.

Theirs was an unlikely life together. Sheila gave birth to Josephine on 11th May 1993 and for twenty-three years they co-existed in a loving mother-daughter relationship, but one with a difference. Josephine suffered catastrophic brain injury at birth, never spoke to Sheila, rarely smiled and was barely able to see the faces of the people who loved her.

Her Name Was Lola is the story of Trish Ryan’s triumphant recovery from a stroke that should have killed her. She had a successful career in the entertainment industry for over 30 years until May 5th, 2017, when she suffered a severe stroke that changed her life forever. Living a very fast-paced life had not prepared her for when it all came to a grinding halt. Lost and confused with no roadmap to follow, she relied on her faith to show her the way to embrace what happened and move forward.