Disability Memoir

Born with Epidermolysis Bullosa (EB), a rare and excruciatingly painful condition that makes her skin as fragile as butterfly wings, Emma Fogarty was not expected to survive infancy. Today, at 41 years of age, she is the oldest living Irish person with the condition, continuing to defy the odds with extraordinary strength, resilience and remarkable achievements. However, every accomplishment Emma makes comes with its own set of obstacles.

Damiano è un ragazzo grande, grosso e con pochi amici perché ama passare le sue giornate facendo cose che gli altri ragazzi non capiscono, come fissare il turbinio vorticoso della lavatrice o giocare per ore con i coperchi delle pentole di sua nonna. Ma la sua vera passione è quella per la musica, soprattutto classica, visto che vorrebbe diventare un cantante lirico. Anche se ama pure il jazz, la musica da discoteca, la dance, la techno e chi più ne ha più ne metta. Tranne la musica rock, quella che invece sua sorella minore Margherita ascolta a tutto volume nella stanzetta accanto.

Autism is the fastest growing and most common developmental disorder. Imagine the frustration and anxiety over taking your child to a team of medical specialists to be told that they have a lifelong and often debilitating developmental disorder with no cure and limited treatment options? Lauren's parents knew something was different about her from the time she was an infant but as she entered Kindergarten in the fall of 1986 her differences were very obvious to everyone around her as compared to other children her age.

On an island off the coast of Massachusetts, six miles across the cobalt blue Waters of the Nantucket Sound, there is a place where hope flourishes. The island is Martha’s Vineyard. The place is Camp Jabberwocky, a sleepover summer camp for people with a variety of disabilities.

On t'a appris que le handicap était une faiblesse. Qu'il limitait les possibles. Qu'il condamnait à une vie en retrait. Et si c'était tout l'inverse ? Virginie Delalande est née dans le silence. On lui a prédit l'échec. Elle a choisi la vie.

As a new mother to three nonverbal, profoundly autistic children, Christine Slack Roach felt lost and alone. There were resources about autism and about raising children with disabilities. But she couldn’t find anything that resonated with what she was experiencing with her own children. As her three children approach adulthood, Christine feels compelled to share the miracles, joys, pain and unending love she has experienced learning about and raising her kids so that other parents in a similar situation will know that they are not alone, and there are resources out there.

What do you do when multiple sclerosis knocks you on your ass, tells you your rap career is over, and dares you to stay down? You write a new story — and this one’s real as hell. Myelin My Shoes is the raw, unfiltered, punch-in-the-gut memoir from underground hip-hop artist Robert “B-Cide” Cardillo II, who turned pain into power and built something real in a world full of fake. From rocking shows with legends to dodging shady promoters, from touring the country to being forced into a wheelchair by multiple sclerosis — this is the story of a man who refused to tap out. No ghostwriters.

Damaged is a story of survivor's guilt coupled with resentment tempered by love. It reveals the changing dynamics of a family faced with an injury no one could heal. Nancy Klein was in the first trimester of her second pregnancy when she made headlines as "Coma Mom." This intimate memoir, written by Klein's sister, reveals all that happened to her and her family after the news cycle moved on. The family: a mother who never gave up hope, even when hope was long gone, and a father who couldn't live without his wife's love.

Against All Odds is a story of an autistic child who, with courage and determination, struggles through life stages, achieving goals. It is a story of taking opportunities and never giving up. It is a story of the lessons learned to help every parent of an autistic child to see the possibilities instead of the challenges. Autism doesn’t have to limit your child’s potential.

I matti ci incuriosiscono, ci costringono a riflettere, ci cambiano lo sguardo, ci mettono davanti ai nostri fantasmi, non ci lasciano mai indifferenti. La storia dell’uomo è costellata di individui eccentrici, bizzarri, anticonformisti, visionari, in molti casi con disturbi psichici gravi, ma altamente creativi in campo letterario, artistico, scientifico. Partendo da queste considerazioni, è nata l’idea di una sorta di calendario che racconti, al posto del santo del giorno, il matto del giorno.

Tommy Jessop is a multi-award winning actor, theatre performer, and campaigner. Tommy has been at the vanguard of bringing awareness of the potential of people living with Down syndrome to the media, and to government. A Life Worth Living will be Tommy's story - from his journey into acting and campaigning while showing his unstoppable determination, charisma, and love for life.

With humility and candor, artist activist Mary Fisher inspires us when, in her eighth decade, she creatively takes on disease, poverty, hunger, injustice, racism and the role of women. Uneasy Silence tells her story of speaking truth to power while living with AIDS, journeying through cancer and surviving a near-death experience. Her steady concern for The Other enables her to find the strength to stand up, speak up and make a difference, inspiring us to do the same.

In the fall of 1961, a young girl eagerly anticipates the arrival of her baby brother, Ricky. But when he's born, the joy she expected is overshadowed by the unexpected tension that fills their home. Her mother, once lively and full of warmth, becomes distant, struggling to care for two children-especially a newborn with special needs. Raising Ricky is the poignant story of a family transformed, as a sister steps into a role far beyond her years to protect and care for her brother.

In this deeply moving memoir, Dr. Bhaskar Bora recounts his life-changing journey through a spinal cord injury and a battle with cancer. I Died Standing Still is a raw and powerful story of resilience, courage, and transformation. More than a personal narrative, it is a testament to the human spirit’s ability to rise from adversity and find meaning, creativity, and hope in the darkest times.

This is the biography of a young man with some neurological differences, written in the first person. Through his eyes, we see how he perceives his life and negotiates his reality. His world and his understandings of life may be different from the norm, but we learn to appreciate a special type of soul that should be acknowledged and celebrated as part of human diversity. This book demonstrates the love and nurturance of his mother and the dynamics of his relationship with her. We also enjoy hearing about the comfortable lifestyle that Marcelo has been given, including his worldwide travels.

Elaine Asato conta como reinventou sua vida após perder quase totalmente a visão aos 29 anos. Guiada pelo conceito finlandês SISU - força, coragem e persistência -, tornou-se referência em liderança e desenvolvimento humano, impactando milhares de pessoas. Porque a verdadeira força não está em um único impulso diante do desafio, mas na coragem de seguir, se transformar e viver uma vida autêntica e extraordinária.

Mutter Anna Maria erlitt im Jahr 2013 eine schwere Gehirnblutung, einen Schlaganfall, welcher sie zu einem absoluten Pflegefall machte und ihren Charakter sehr wesentlich veränderte. Die Familie, Ehegatte Friedrich, genannt Fritz und Tochter Sabine (die Autorin), standen vor nie geglaubten Herausforderungen. Das Buch beschreibt sehr umfangreich die Facetten des geänderten Alltages, nimmt dabei Leser*innen sehr ehrlich auf eine „Achterbahnfahrt der Gefühle" mit.

Theresa Marafito, daughter of Irish immigrant parents, was born in 1933 in New York City, blind in one eye with partial vision in the other. She was a precocious child who wanted to appear “normal” to her peers and family, regardless of her disability. Her game was to be independent, not dependent, and would rarely ask for help. At 19, she graduated magna cum laude with two master’s degrees. Theresa and her husband, Jerry, who was also visually impaired, would build a house on a shoestring budget and had two daughters; one who was also born visually impaired.

Living with multiple sclerosis was never going to be easy. The phrase 'I rule it, it doesn't rule me' was to become Lydia's benchmark. She clung fiercely to these words. They would booster her strength in the years ahead when at times, fear of the pain and its affects, especially the horrendous agony of an MS attack, would almost break her.

Kristy Sheridan survived a deadly plane crash and a sixty-foot plummet off a cliff before she learned to seek God’s will over her own desires. The crash of American Airlines Flight 1420 broke Kristy’s neck and stripped away the identity she found in her prized career. A decade later, she broke her neck again when she fell more than sixty feet down a canyon in Germany. Still, Kristy’s faith remained stagnant.