Disability Memoir

Inside My Outside: An Independent Mind in a Dependent Body provides an in-depth look into the life of a young woman with cerebral palsy who cannot walk or talk but who uses an electronic device for communication. This memoir covers three full days, from morning to night, in Sara Pyszka’s life, providing glimpses of past relationships, friendships, schooling, and outrageous stories about the challenges of hiring, firing, and working with personal care assistants.

Due to horrible physical deformities, he spent much of his life as a fairground freak. He was hounded, persecuted, and starving, until his fortune changed and he was rescued, housed, and fed by the distinguished surgeon, Frederick Treves. The subject of several books, a Broadway hit, and a film, Joseph Merrick has become part of popular mythology. Here, in this fully revised edition containing much fresh information, are the true and un-romanticized facts of his life.

A searing debut YA poetry and essay collection about a Black cancer patient who faces medical racism after being diagnosed with leukemia in their early twenties, for fans of Audre Lorde's The Cancer Journals and Laurie Halse Anderson's Shout. When Walela is diagnosed at twenty-three with...

What would you have left if you awoke and were told you would be paralyzed from the eyes down for the rest of your life? After an almost fatal car crash and a botched surgery to repair nerve damage, that was Clay Byars' reality at 18 years old. Determination became the only constant in his life from that point on, and miraculously he quickly began to defy the odds. Clay discovered a life far different from that of his identical twin brother, Will.

Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life - his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father - he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human.

Blindness in the 1950s was a social stigma. Stephen's mother wanted a normal life for him, so he fought desperately to uphold the illusion of sight. For a child frantic to fit in, each day was an exhausting pretence. He managed to ride a bike, when even reading involved pressing his nose to the page and painfully forcing his eyes to concentrate. Head up, he strode through a carefully memorized labyrinth of streets, hoping to fool passers-by that he could actually see.

After a shocking diagnosis for a rare pituitary disease, and with her eighteen-year marriage in shambles, Risa's life has fallen far from picture-perfect. Recovering from brain surgery and desperate to get back to her former self, she signs up for the bike tour of a lifetime-six weeks from Canada to Mexico on the Pacific Coast Highway. The old Risa could have done the ride in her sleep, but for the new Risa, trapped in a body that no longer feels like her own and stuck in the company of her brain tumor, Bubba, the ride becomes a challenge unlike anything she's ever faced.

A collision with a moose on a dark highway left Susan Mockler with an incomplete spinal injury, suddenly compromising her ability to walk and to care for herself. She spent months in a rehabilitation facility learning how to adjust to her new reality, and though her body partially recovered, every aspect of her life changed.

A “raw, vulnerable, and utterly hilarious” (Harper’s Bazaar) memoir about one woman’s experience living with a deformity, and her quest to find freedom and joy in her body “Sosenko’s experience with body shame and judgment, from herself and others, is universal. She shows us her...

This program is read by the author. An inspiring memoir of a young man who discovered he was going completely deaf just at the moment he’d fallen in love for the first time. As a child, Matt Hay didn’t know his hearing wasn’t the way everyone else processed sound—because of the...

There Are No Answers Here, Only Questions is the true story of two life-altering events and the personal transformation that resulted from their unlikely collision. It's the story of an owner preparing to sell his business and retire just as he is diagnosed with cancer.

Featured in The Advocate, New York Times, Literary Hub, Autostraddle, and New York magazine's The Cut This is a vital exploration of the ways society overlooks—and fails—young women with disabilities and chronic illnesses Miriam’s doctor didn’t believe she had breast cancer. She did...

This is the true story of a very special man whose life was suddenly and forever changed by a rare disease. Dealing with a severe backache for three days, he was taken to an emergency room. For five grueling months, his dignity, as well as his very self was stripped away. Trapped in a system that all too often is not healthcare, but Healthcareless.

Having gone from standing atop high mountain peaks to becoming a martial art and close-quarter combat specialist, and surviving 18 years of brutal special operations involvement, White Wolf's life took a turn that led him to face his most challenging adversary. His development of chronic illness sent his life tumbling headlong into an abyss where a maelstrom awaited. Invisible combatants threw his body into chaos.

This compelling memoir traces an extraordinary journey through mental illness and neurodiversity—one of hard-won insight, resilience, and wisdom. Living with bipolar disorder, depression, addiction, and dyslexia, the author’s path weaves through punk rock rebellion, police work, and entrepreneurship—revealing the complex reality of managing mental health and neurodiversity. Another deep depressive episode became the catalyst for a medical diagnosis, professional help, and true healing.

When Valerie Maidment was a baby, doctors diagnosed her with hydrocephalus, a condition that causes excess fluid to build in the brain. After the second surgery at age 9, she was declared healthy; she lived a happy, normal life, graduating from high school and college, having children, and buying and managing her own convenience store. Until one day, when everything changed. Fluid began to build once again in Valerie’s brain, causing immense pressure that—due to misdiagnosis on the part of multiple doctors—caused her optic nerves to break down.

In 1959, the year Terry Galloway turned nine, the voices of everyone she loved began to disappear. No one yet knew that an experimental antibiotic given to her mother had wreaked havoc on her fetal nervous system, eventually causing her to go deaf. As a self-proclaimed "child freak," she acted out her fury with her boxy hearing aids and Coke-bottle glasses by faking her own drowning at a camp for crippled children

Ruth's tribe are her lively children and her filmmaker husband, Simon, who has motor neurone disease and can communicate only with his eyes. Ruth's other tribe are the friends who gather at the cove in Greystones, Co. Wicklow, and regularly throw themselves into the freezing cold water just for kicks. The Tragic Wives' Swimming Club, as they jokingly call themselves, meet to cope with the extreme challenges life puts in their way, not to mention the monster waves rolling over the horizon.

'Your book is the "really good book. Just one" that Roger Butler would have wanted' - Sir Ian McKellen 'Miraculous. The Light of Day reclaims a forgotten hero . . . I couldn't put it down' - Will Tosh 'Sir, we are homosexuals . . .' So began the letter penned by Roger Butler and sent to several...

Helen Keller’s name is forever linked with courage, perseverance, and the power of education. In Midstream: My Later Life, she picks up where The Story of My Life left off, offering a rare look at her journey beyond her early triumphs. Here, Keller recounts the challenges and victories of adulthood—her advocacy for people with disabilities, her international travels, her friendships with world leaders and artists, and her tireless fight for social change. She writes candidly about setbacks, loneliness, and the weight of public life, but also about the deep sense of purpose that guided her.