Disability Memoir

Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage?

When Pepper Stetler was told that her daughter who has Down Syndrome would be regularly required to take IQ tests to secure support in school, she asked a simple question: why? In questioning the authority and relevance of the test, Stetler sets herself on a winding investigation into how the IQ test came to be the irrefutable standard for measuring intelligence. The unsettling history causes Stetler to wonder what influence this test will have over her daughter's future and whether Louisa should be taking it at all.

Waste no day to achieve the impossible! When Pennsylvania started testing newborns for metabolic diseases, Adam Settle was one of the first to be diagnosed with Cobalamin-C Deficiency. Legally blind and mentally delayed, Adam never let his limitations hold him back from accomplishing his dreams. His love for people and his desire to help others comes through the sections of this audiobook. Whatever has been holding you back, this audiobook will help you charge through the obstacles you face to achieve the impossible. Adam’s story will inspire, encourage, and give you hope.

Jon Sadler was four when he had his first seizure following an episode of high fever. That made him the object of constant concern to his family and dictated almost every decision he made. With medication, Jon was deemed seizure-free for several years, though his speech was permanently affected. After a college sailing accident, he had his first grand mal seizure (loss of consciousness and violent muscle contractions).

Jordan’s traumatic birth caused brain damage, whose limits he refused to accept. He embraced every struggle, learned to work through his weaknesses, and ultimately, redefined himself despite his learning disability label. All thanks to his dedicated cheer squad - family, friends, and God - he knows his potential has no limits, except those he puts on himself. But that doesn’t mean he’s escaped significant hiccups and challenges along the way.

For two decades a father kept a secret journal documenting the life of his only son, Christopher, who was born profoundly deaf. He had a simple dream of someday presenting that journal to Christopher as a special gift from father to son. But as each new challenge was surmounted, it became clear Christopher Caulfield’s story had to be shared.

After 30 years of a healthy, rewarding, and exciting life, I wake up in a hospital bed unable to move. The neurosurgeon leans down and breaks the news: You won't regain any function in your body and you will never walk again. My medical insurance sends me home, discontinues my care, and tells me to "adapt to my new life". Little Big Steps is the story of the pivotal moments, interactions, and breakthroughs following the injury that turned my life upside down.

Robert Mercer's life could have been very different. He was born with very low vision and as a youngster struggled in school. But through the intervention of a caring teacher and the support of his family, he found his way to the Halifax School for the Blind and into the classroom of Mrs. Beaton. It was there he discovered his voice, a voice he uses to recount his remarkable journey from a shy little boy to a community leader.

Darlene was a small-town single mother from Arkansas. Bert was a small-town preacher’s son from Oklahoma. Polio crippled both of them as teenagers. When their paths crossed at a rehab center in 1952, these young adults questioned how anything good could come from this crippling virus. Bert’s faith in the Biblical passage of Romans 8:28 gave him hope that “Polio was not good, but God would bring good out of it.” Darlene’s journey to the rehab center was “the one way for God to get me in the right place at the right time.”

Mutter Anna Maria erlitt im Jahr 2013 eine schwere Gehirnblutung, einen Schlaganfall, welcher sie zu einem absoluten Pflegefall machte und ihren Charakter sehr wesentlich veränderte. Die Familie, Ehegatte Friedrich, genannt Fritz und Tochter Sabine (die Autorin), standen vor nie geglaubten Herausforderungen. Das Buch beschreibt sehr umfangreich die Facetten des geänderten Alltages, nimmt dabei Leser*innen sehr ehrlich auf eine „Achterbahnfahrt der Gefühle" mit.

When you hear the word “disability”, what comes to mind? Cheryl Schiltz tells her story of being introduced to disability. She shares her journey from a silent world to one that encased her in constant anxiety. Her life as she knew it had disappeared. It became one of a continuous fight between psychological and physical change. Noise. From her childhood, you’ll find yourself traveling with her as she discovers the power to gain control. She shares her story openly and honestly, raw and sensitive.

Junius Wilson (1908-2001) spent 76 years at a state mental hospital in Goldsboro, North Carolina, including 6 in the criminal ward. He had never been declared insane by a medical professional or found guilty of any criminal charge. But he was deaf and Black in the Jim Crow South. Unspeakable is the story of his life.

At the age of thirty, just as everything was falling into place for him, Lee Pesky died of brain cancer. For his father, Alan, grief came with the realization that he had lost the chance to love Lee as he was—not as he wanted him to be. Ambitious, successful, and always striving for more, Alan had a hard time relating to a son who struggled with learning disabilities at a time when there was little understanding or help for kids who had them. Their relationship was complicated, and now, Lee was gone.

With humility and candor, artist activist Mary Fisher inspires us when, in her eighth decade, she creatively takes on disease, poverty, hunger, injustice, racism and the role of women. Uneasy Silence tells her story of speaking truth to power while living with AIDS, journeying through cancer and surviving a near-death experience. Her steady concern for The Other enables her to find the strength to stand up, speak up and make a difference, inspiring us to do the same.

Public Hostage, Public Ransom starts with the autobiographical story of William Bronston, the activist physician whose early professional California training steels him with a deep moral, professional, and cultural bond to the huge 6,000-person disabled population he encounters incarcerated in Willowbrook State School in Staten Island, NY, on whose behalf he daily battles to humanize and ultimately catalyze a federal class action lawsuit against the state to close the death-making institution.

You struggle with your disability. You're tired of being counted out of life. Are you frustrated because you feel, or have been told, you can't be 100% healthy with your disability? It's time for a change! It's time to prove everyone (including your doctors) wrong! Author and certified personal trainer Tony Jacobsen, who has Osteogenesis Imperfecta (Brittle Bones Disease), has transformed his entire life and now shares the formula to empower other people with disabilities.

Before a surfing accident caused thirty-three-year-old Devon Raney to lose all but 15 percent of his vision, he had already lived an extraordinary life. Time and again he'd gone against the grain to maximize time for his passions--surfing, skateboarding, and snowboarding--bringing him into the...

While society called his disability an obstacle and limitation, Neil argued that his "flourishing dystonia" allowed him to think, explore, and create art in a way most people cannot. True to his words, Neil embraced every opportunity to experience life to its fullest, from navigating the Alaskan wilderness in a wheelchair to commanding the spotlight on stage. In this deeply personal account, Neil invites listeners into his world as he remembers adventures and escapades, triumphs and disappointments.

It only takes a second to change your life. At age 21, Ryan Atkins had everything going for him: A full-ride scholarship in a prestigious business program, a well-paying internship, an opportunity to pitch a business plan to venture capitalists in New York City. He was living his dreams and preparing for a future of success. But the day before leaving for New York, Ryan was in a life-altering car accident that robbed him of the use of his arms and legs. Paralyzed from the shoulders down, he found himself struggling to grasp just how fundamentally his life had changed.

Our Life Our Way: A Memoir of Active Faith, Profound Love and Courageous Disability Rights explores an extraordinary love story grown out of engagement with both disability rights advocacy and christian faith communities. This memoir contains thoughtful, often entertaining, and sometimes heart-wrenching anecdotes of a couple’s journey to create their profound relationship and Christian marriage, in a world not yet ready for them.