Disability Memoir

Dietetics practitioners are food and nutrition experts who help people live healthier lives. They work in a variety of settings—from hospitals and research to sports, schools, nursing homes, and the food industry. Yet, despite the diversity of the populations they serve, the dietetics profession is predominantly female, white, and able-bodied. Only 2% of dietetics practitioners have a disability compared to 29% of US adults. There is an urgent need to diversify the field—especially by including practitioners with disabilities.

From being a little girl in a village in China with polio to a tech executive at Apple, Libo Cao Meyers has had quite a journey in life—a journey steeped in rich family legacy and powered by determination, growth, and love. Over the years and the miles, she’s embraced her differences and has allowed no one—including herself—to set limitations on what she’s able to accomplish. But just because she’s been successful doesn’t mean it’s been easy. Not by a long shot.

When Schuyler Rummel-Hudson was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

“At the beginning I was only a little mass of possibilities. It was my teacher who unfolded and developed them.” The Story of My Life, Helen Keller’s autobiography, is the story of that unfolding. It is the story of how, with Anne Sullivan as her guide, Keller developed from “a mass of possibilities” to become one of the most beloved and admired women in American history. With intelligence, humor and wisdom, Keller describes her passage, “from darkness into light, from isolation to friendship, companionship, knowledge, love.”

A riveting and candid account of a young journalist's awakening to a life of chronic illness, weaving together her personal story with reporting to shed light on how Americans live with long-term diagnoses today.

Twenty-three-year-old Ardra Shephard is sleeping with the wrong guy, living in a crappy apartment, and spending money she doesn't have on designer shoes, boozy brunches, and weekends in NYC. Making mistakes while you figure stuff out is what your twenties are all about. Then a doctor tells Ardra she has MS, and those two letters split her life into a Before and After.

Temple Grandin, Ph.D., is a gifted animal scientist who has designed one third of all the livestock-handling facilities in the United States. She also lectures widely on autism - because Temple Grandin is autistic, a woman who thinks, feels, and experiences the world in ways that are incomprehensible to the rest of us.

Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.

We meet Andrew Leland as he’s suspended in the liminal state of the soon-to-be blind: he’s midway through his life with retinitis pigmentosa, a condition that ushers those who live with it from sightedness to blindness over years, even decades. He grew up with full vision, but starting in his teenage years, his sight began to degrade from the outside in. Soon— but without knowing exactly when—he will likely have no vision left. Full of apprehension but also dogged curiosity, Leland embarks on a sweeping exploration of the state of being that awaits him.

Sipping Dom Pérignon Through a Straw is an inspirational and truly intersectional memoir from global humanitarian and disability-justice advocate Eddie Ndopu—a queer, Black wheelchair user. Ndopu’s incredible story begins with his childhood being raised by a single mother fleeing Apartheid South Africa before rocketing through every boundary put in front of him—because of his disability, his ethnicity, and his sexuality—to eventually hold official positions at both the United Nations and the World Economic Forum.

We all face obstacles that threaten to hold us back. For Robert Paylor, his paralysis wasn’t a metaphor. In the biggest game of his life, competing for the collegiate rugby national championship, Robert suffered a catastrophic spinal cord injury that left him paralyzed from the neck down. Doctors told him he’d never walk or move his hands again. But Robert refused to accept that fate.

Diagnosed with pathological demand avoidance (PDA) in his teenage years, Harry Thompson looks back with wit and humour at the ups and downs of family and romantic relationships, school, work and mental health, as well as his teenage struggle with drugs and alcohol. By embracing neurodiversity and emphasising that autistic people are not flawed human beings, Thompson demonstrates that some merely need to take the 'scenic route' in order to flourish and reach their full potential.

For years, Emma Carey was a regular young adult who would wake up and go about their day on autopilot, someone who would look at a sunset and feel unaffected, someone who was living, but not really alive. That is, until something happened that enabled her to really see life for the gift it is. Emma was in a skydiving accident that made her a paraplegic. This book is not just about Emma's fall from the sky and how she learned to walk without ever regaining feeling in her legs but also about the beliefs and ideas that helped her survive.

The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.

Jason Dunkerley’s Visions of Hope: Running Towards My Own Truth is the inspiring autobiography of a distinguished Canadian middle-distance runner, who has been blind from birth due to a congenital eye condition. He achieved international acclaim as a five-time Paralympic medalist and world champion.

In 2019, Greta Morgan was on the rise. She had toured with Vampire Weekend, collaborated with Jenny Lewis, and garnered critical acclaim with her own musical projects. But in March 2020, after contracting COVID-19, she was diagnosed with spasmodic dysphonia, a neurological disorder with no known cure that left her unable to sing. Her once crystalline voice now reduced to a hush, she saw her career come to an abrupt standstill.

As a new mother to three nonverbal, profoundly autistic children, Christine Slack Roach felt lost and alone. There were resources about autism and about raising children with disabilities. But she couldn’t find anything that resonated with what she was experiencing with her own children. As her three children approach adulthood, Christine feels compelled to share the miracles, joys, pain and unending love she has experienced learning about and raising her kids so that other parents in a similar situation will know that they are not alone, and there are resources out there.

First came the boom - the loud, deep, unapologetic bellow that seemed to erupt from the very core of the Earth. Eerily, the majestic high-rise slowly leaned to the south. On the 78th floor of the World Trade Center's north tower, no alarms sounded, and no one had information about what had happened at 8:46 a.m. on September 11, 2001. Blind since birth, Michael couldn't see a thing, but he could hear the sounds of shattering glass, falling debris, and terrified people flooding around him and his guide dog, Roselle.

Before becoming the actor, producer, advocate, and model that people know today, Nyle DiMarco was half of a pair of Deaf twins born to a multi-generational Deaf family in Queens, New York. At the hospital one day after he was born, Nyle “failed” his first test—a hearing test—to the joy and excitement of his parents.

In 1997, Daniel Trush, a bright, active, outgoing twelve-year-old, collapsed on the basketball court and fell into a deep coma. Rushed to the hospital, he was found to have five previously undetected aneurysms in his brain. One had burst, causing a massive cerebral hemorrhage. While Daniel remained comatose, the uncontrolled pressure inside his skull caused him to suffer multiple strokes.