Disability Memoir

Mutter Anna Maria erlitt im Jahr 2013 eine schwere Gehirnblutung, einen Schlaganfall, welcher sie zu einem absoluten Pflegefall machte und ihren Charakter sehr wesentlich veränderte. Die Familie, Ehegatte Friedrich, genannt Fritz und Tochter Sabine (die Autorin), standen vor nie geglaubten Herausforderungen. Das Buch beschreibt sehr umfangreich die Facetten des geänderten Alltages, nimmt dabei Leser*innen sehr ehrlich auf eine „Achterbahnfahrt der Gefühle" mit.

When you hear the word “disability”, what comes to mind? Cheryl Schiltz tells her story of being introduced to disability. She shares her journey from a silent world to one that encased her in constant anxiety. Her life as she knew it had disappeared. It became one of a continuous fight between psychological and physical change. Noise. From her childhood, you’ll find yourself traveling with her as she discovers the power to gain control. She shares her story openly and honestly, raw and sensitive.

Junius Wilson (1908-2001) spent 76 years at a state mental hospital in Goldsboro, North Carolina, including 6 in the criminal ward. He had never been declared insane by a medical professional or found guilty of any criminal charge. But he was deaf and Black in the Jim Crow South. Unspeakable is the story of his life.

At the age of thirty, just as everything was falling into place for him, Lee Pesky died of brain cancer. For his father, Alan, grief came with the realization that he had lost the chance to love Lee as he was—not as he wanted him to be. Ambitious, successful, and always striving for more, Alan had a hard time relating to a son who struggled with learning disabilities at a time when there was little understanding or help for kids who had them. Their relationship was complicated, and now, Lee was gone.

With humility and candor, artist activist Mary Fisher inspires us when, in her eighth decade, she creatively takes on disease, poverty, hunger, injustice, racism and the role of women. Uneasy Silence tells her story of speaking truth to power while living with AIDS, journeying through cancer and surviving a near-death experience. Her steady concern for The Other enables her to find the strength to stand up, speak up and make a difference, inspiring us to do the same.

You struggle with your disability. You're tired of being counted out of life. Are you frustrated because you feel, or have been told, you can't be 100% healthy with your disability? It's time for a change! It's time to prove everyone (including your doctors) wrong! Author and certified personal trainer Tony Jacobsen, who has Osteogenesis Imperfecta (Brittle Bones Disease), has transformed his entire life and now shares the formula to empower other people with disabilities.

While society called his disability an obstacle and limitation, Neil argued that his "flourishing dystonia" allowed him to think, explore, and create art in a way most people cannot. True to his words, Neil embraced every opportunity to experience life to its fullest, from navigating the Alaskan wilderness in a wheelchair to commanding the spotlight on stage. In this deeply personal account, Neil invites listeners into his world as he remembers adventures and escapades, triumphs and disappointments.

It only takes a second to change your life. At age 21, Ryan Atkins had everything going for him: A full-ride scholarship in a prestigious business program, a well-paying internship, an opportunity to pitch a business plan to venture capitalists in New York City. He was living his dreams and preparing for a future of success. But the day before leaving for New York, Ryan was in a life-altering car accident that robbed him of the use of his arms and legs. Paralyzed from the shoulders down, he found himself struggling to grasp just how fundamentally his life had changed.

Families who have supported a child with special needs will connect with this memoir about Sarah, a feisty girl with autism and a unique genetic blueprint. Her mom, Jenny, is equally feisty and determined, which leads her to make a commitment that dramatically changes her and Sarah’s lives—as well as those of many others.

Our Life Our Way: A Memoir of Active Faith, Profound Love and Courageous Disability Rights explores an extraordinary love story grown out of engagement with both disability rights advocacy and christian faith communities. This memoir contains thoughtful, often entertaining, and sometimes heart-wrenching anecdotes of a couple’s journey to create their profound relationship and Christian marriage, in a world not yet ready for them.

Martin Hibbert was left paralysed from the waist down by the Manchester Arena bombing which killed twenty-two people on 22 May 2017. Martin’s teenage daughter Eve was one of the 940 injured, in Eve’s case, gravely. The dad from Bolton has since become a leading campaigner both for victims of the atrocity and those with spinal cord injuries. Determined to make a difference he took on the ultimate challenge, scaling Kilimanjaro in a wheelchair, becoming the second paraplegic to do so, and raising a million pounds for charity.

Theirs was an unlikely life together. Sheila gave birth to Josephine on 11th May 1993 and for twenty-three years they co-existed in a loving mother-daughter relationship, but one with a difference. Josephine suffered catastrophic brain injury at birth, never spoke to Sheila, rarely smiled and was barely able to see the faces of the people who loved her.

Her Name Was Lola is the story of Trish Ryan’s triumphant recovery from a stroke that should have killed her. She had a successful career in the entertainment industry for over 30 years until May 5th, 2017, when she suffered a severe stroke that changed her life forever. Living a very fast-paced life had not prepared her for when it all came to a grinding halt. Lost and confused with no roadmap to follow, she relied on her faith to show her the way to embrace what happened and move forward.

Darkness—that’s what Bozena Gasior remembers feeling when she first heard her two-year-old son’s autism diagnosis. What followed was a cacophony of despair and cries, not knowing what to do, say, or feel. It was the day she thought that part of her son’s life had died. But one eventful day some four years later, his fingers touched the piano keys for the first time, and she felt something—a glimmer of light shining down, illuminating her home and family.

Hilda’s family didn’t know she had muscular dystrophy. They just knew their preschooler was losing her ability to walk. But they were determined to find a cure. Being disabled in Cameroon meant not only obstacles to transport, but visits to diviners and evangelists, threats of sexual assault, discrimination, and a crisis of faith. Despite the hardship Hilda has faced, her family’s unwavering support and God’s unwavering grace have helped her persevere to become a national broadcaster.

This book is about the life of the author. It focuses on her faith, her hope, and her endurance during the years of her illness. In this true story, you will learn the how and why about the effects that changed her family’s life—the author’s Crohn’s disease, the 14 blood clots, toxic gut syndrome, colitis, tumors, ulcers, vertigo, weight gain and loss, pregnancies, the many surgeries, and how her body would not wake up after some of her surgeries.

The autobiography is told in an honest and very candid way, from the very first diagnosis in 2011 right up to the present day, showing how I was forced to crowdfund to have my leg amputated, what it took to overcome the struggles of four operations, and what it meant for me and my young family.

David Aguilar was born missing part of one arm, a small detail that seemed to define his life and limit people’s ideas of who he was and who he could be. But in this funny and heartfelt memoir, David proves that he can throw out the rulebook and people’s expectations and maybe even make a difference in the world—and all with a sense of humor.

A searing critique of the disability rights movement from within, and a call for collective liberation that is pro-Black and centers disabled people of color For over twenty years, Dara Baldwin has often been the only person of color in the room when significant disability policy decisions are...

Everything happens for a reason; I truly believe writing these words was one of the primary purposes of my life. Father God gave me this disability - I’m just trying to make the most out of it. This is not your typical autobiography or memoir. I’m sharing my life experiences as more of a commentary on humanity as a whole. I do my best to sprinkle bits of comedy throughout the composition so it feels more like a conversation between friends than me just talking at you.