Disability Memoir

Stephen Kuusisto was born legally blind - but he was also raised in the 1950s and taught to deny his blindness in order to "pass" as sighted. Stephen attended public school, rode a bike, and read books pressed right up against his nose. As an adult, he coped with his limited vision by becoming a professor in a small college town, memorizing routes for all of the places he needed to be. Then, at the age of 38, he was laid off. With no other job opportunities in his vicinity, he would have to travel to find work.

Mothering under normal circumstances takes all you have to give. But what happens when your child is disabled, and sacrificing all you've got and more is the only hope for a decent future? Full of rage and resilience, duty and love, Ashley Bristowe delivers a mother's voice like no other we've heard.

In Voice, Adam Pottle explores the crucial role deafness has played in the growth of his imagination and in doing so presents a unique perspective on a writer's development. Born deaf in both ears, Pottle recounts what it was like growing up in a world of muted sound, and how his deafness has influenced virtually everything about his writing, from his use of language to character and plot choices.

Tara Sidhoo Fraser is thirty-one years old when a rare mutation in her brain causes a stroke. Awakening after surgery with no memory of her previous life, she attempts to piece it all back together through a haze of amnesia. Yet, as memories do begin to surface, they are seen through someone else's eyes—the person whose body she stole, whom she calls Ghost.

Learn about narcolepsy and one persons struggle living with the disease before and after diagnosis. Have you ever woke up and not known where you were or how you got their? You may have narcolepsy. Have you ever laughed so hysterically you fell down motionless? You may have cataplexy. Have you ever been accused of being drunk or on drugs, even though you know you were not?

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

Nathan Glad was not expected to survive birth. Born with OI (Osteogenesis Imperfecta), also known as Brittle Bone, he has faced remarkable life challenges. Despite it all, Nathan remains determinately happy. This book contains his 7 Hacks for Happiness.

For fans of rags-to-riches stories, Be There When I Return is not just about overcoming epilepsy and finding success—it is also for those who are looking for a celebration of love in its purest form. When thirty-one-year-old Michael starts to act out of character, it gets the attention of his roommate and a woman he has started dating. After denying anything is wrong with him, Michael finally decides to visit a neurologist. His life takes an unexpected turn when he receives a life-altering diagnosis of epilepsy.

Condamné par la maladie, Olivier Goy partage avec la journaliste Anne Fulda son inlassable combat pour mieux faire accepter le handicap et lever des fonds pour la recherche, et, surtout, appelle à regarder et aimer la vie pleinement?! Olivier a 46 ans quand on lui diagnostique la maladie de Charcot en 2020. Une maladie neurodégénérative qui se traduit par une paralysie progressive des muscles, mais laisse au malade ses pleines capacités intellectuelles. Espérance de vie?: 3 à 5 ans.

A short, inspirational audiobook from Henry Fraser, a young quadriplegic motivational speaker and artist. Henry Fraser was a 17-year-old sports enthusiast and senior prefect when he broke his spinal cord and was left paralysed from the shoulders down. Life as he knew it was over, and yet, through extraordinary determination and a positive attitude, he has forged a successful career as an inspirational speaker and an artist.

How does an Unlikely Triathlete continue to exercise during a global pandemic? All this whilst being the Head of Fundraising for an NHS charity? It seems impossible doesn't it? Yet, Deborah continues with her tenacity to keep going as an athlete in the virtual world.

After being diagnosed with muscular dystrophy, Melissa Haugen felt alone. In an effort to make others feel seen, she vulnerably shares her personal story of living with muscular dystrophy.

In 2017, President Obama, in his final Oval Office interview, was asked who gave him hope for the future of the country, and Jason Kander was the first name he mentioned. Suddenly, Jason was a national figure. As observers assumed he was preparing a run for the presidency, Jason announced a bid for mayor of Kansas City instead and was headed for a landslide victory. But after eleven years battling PTSD from his service in Afghanistan, Jason was seized by depression and suicidal thoughts. He dropped out of the mayor’s race and out of public life. And finally, he sought help.

I finished my first book, Multiple Sclerosis: A Blessing in Disguise, around the end of 1998. At that time, I was going through a lot of issues that I thought were very important to me. That book told of my discovery, my eventual acceptance of the illness, and how I dealt with what was happening to me. Like anybody else who is faced with the burden of discovery, I had a lot of questions that I felt I really needed to answer, but I never sought to answer why this had happened to me.

Written as a narrative short story, CallyRae shares her candid insights as she journeys through surviving with autoimmune diseases. Suffering from chronic daily pain, infections, and extreme fatigue, her outlook was one of frustration and hopelessness. As her life journey down the autoimmune highway took twists and turns, she learned to read the signs and listen to her body, mind, and spirit. She continues on the journey but has replaced pain with vitality, infections with health, and extreme fatigue with immense energy.

Anna grew up in a house that was loving, even if her mum was ‘a little eccentric’. They knew to keep things clean, to stay quiet, and to look the other way when things started to get ‘a bit much for your mum’. It’s only when her mother reaches her 70s and Anna has a family of her own, that the cracks really start to appear. More manic. More irrational. More detached from the world. And when her father, the man who has calmed and cajoled her mother through her entire life is diagnosed with cancer, the whole world turns upside down.

Jeremy Schreiber was on top of the world—athletic, newly married, successful. And then something went terribly wrong. In this moving memoir, he shares his journey after he received a terrifying diagnosis: ALS. As the devastating disease robbed him of movement and speech, he was abandoned by his wife and betrayed by a society that shuns people with disabilities. But it’s not all doom and gloom. He found love, support, and a powerful purpose. While fighting for his independence and then for his life, Jeremy gave his all to the ALS and disability communities.

Raymond Antrobus was first diagnosed as deaf at the age of six. He discovered he had missing sounds—bird calls, whistles, kettles, alarms. Teachers thought he was slow and disruptive, some didn’t believe he was deaf at all. The Quiet Ear tells the story of Antrobus’s upbringing at the intersection of race and disability. Growing up in East London to an English mother and Jamaican father, educated in both mainstream and deaf schooling systems, Antrobus explores the shame of miscommunication, the joy of finding community, and shines a light on deaf education.

Backbone is a life-fulfilling message about managing chronic pain and living a life of purpose. For two decades, Karen Duffy, New York Times bestselling author, former MTV VJ, Revlon model, and actress, has managed to live an enriching life despite living in a state of constant pain. In this powerful, inspirational, funny, and important manual for surviving pain, Duffy draws on her experience as a patient advocate, trained recreational therapist, and hospice chaplain to illuminate gratifying methods people can use to cope with chronic pain.

John Cotter was thirty years old when he first began to notice a ringing in his ears. Soon the ringing became a roar inside his head. Next came partial deafness, then dizziness and vertigo that rendered him unable to walk, work, sleep, or even communicate. At a stage of life when he expected to be emerging fully into adulthood, teaching, and writing books, he found himself “crippled and dependent” and in search of care.