Disability Memoir

Le 8 décembre 1995, à la suite d’un accident vasculaire cérébral, Jean-Dominique Bauby est plongé dans un coma profond. Quand il en sort, toutes ses fonctions motrices sont détériorées. Atteint de ce qu'on appelle le " locked-in syndrome ", il est littéralement enfermé à l'intérieur de lui-même ; il ne peut plus bouger, manger, parler ou même simplement respirer sans assistance. Dans ce corps inerte, seul un œil bouge.

Carla Sosenko was born with Klippel-Trenaunay syndrome, a rare vascular disorder that resulted in legs of different sizes, a mass of flesh on her back, a hunched posture, and other idiosyncrasies big and small. She spent years trying to hide under layers of clothing, and then experimented with the opposite: wearing tiny dresses and short shorts, daring people to stare so she could make them regret it. No matter what she did, she was worried that she didn’t measure up.

Step into the world of best-selling children's book author Gavin Clifton as his inspirational story takes you on a journey of early battles, trials, achievements, and profound lessons learned along the way. Through his own eyes, Gavin uses his own words and unfiltered narrative to tell you of the many different experiences he's faced while navigating through life with cerebral palsy and a speech impediment.

From Beneath the Ice is more than a book, it is a triumph of the human spirit. Todd’s mind was hijacked, but he slowly took the helm and charted a new course. It was a difficult process for him to write this book, but in the end, it was empowering. Publishing was even harder, knowing that his darkest moments would be ‘out there’ for the world to see. He knew his primary focus was to help people and contribute to ending the stigma about mental illness. To do this, he had to be more courageous than he had ever been.

Robert was a young man struggling to make it on his own when in 1990, he suffered a violent and traumatic experience when someone put a bullet through his brain. Robert tells the amazing story of survival during a time when life shriveled to dark emptiness and his future seemed hopeless.

He grew up, he says, at "belt-buckle level" and stayed there until Kevan's beloved posse decided to leave his wheelchair at the Atlanta airport, board a plane for France, and have his friends carry him around Europe to accomplish their dream to see the world together! Kevan's beloved posse traveled to Paris, England, and Ireland, where, in the climax of their adventure, they scale 600 feet up to the 1,400-year-old monastic fortress of Skellig Michael.

In 1895, a specialist straps five-year-old Katharine Hathaway, then suffering from spinal tuberculosis, to a board with halters and pulleys in a failed attempt to prevent her from becoming a “hunchback” like the “little locksmith” who does odd jobs at her family’s home. Forced to endure her confinement for ten years, Katharine remains immobile until age fifteen, only to find that none of it has prevented her from developing a deformity of her own.

Driving Myasthenia Gravis Into Remission is a book based on the personal beliefs and experiences of the author Romerol Stanton regarding the autoimmune neurological disorder Myasthenia Gravis. It is a book that provides information on all-natural and alternative treatments that have been effective in alleviating the symptoms of Myasthenia Gravis. This book also gives insight into the author's trials, tribulations and triumphs living with Myasthenia Gravis.

Speaking My Truth is about a young man named Abdulahi Hassan who is born with a physical disability called Cerebral Palsy and tries to live a normal life. Regardless of his daily struggles he faces physically and mentally he is slowly learning to speak his truth and taking control of his own narrative one step at a time with a single beautiful smile.

For 18 years of my life, I dealt with harm daily. I suffered over 40 years with a substantial assortment of trauma-related manifestations. The devastation of the problems began when I was a child and lasted until I was in my mid-40s. I know my story sounds bleak but don’t be discouraged. Peace, laughter, joy, and happiness eventually came my way.

Can four words change a life? On a rainy autumn day, four words changed the life of a young cardiology nurse. Four little words hurled across a dimly lit exam room struck fear in a mother’s heart. “You are legally blind.” Anita’s journey through blindness began with the devastating diagnosis of retinitis pigmentosa, an untreatable, degenerative retinal disease. At the age of 33, she was forced to face not only vision loss, but also the loss of driving, her nursing career, and even her independence. Anita was convinced that life was over.

This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project.

Im August 2015 macht Katherine May sich auf, um den 1014 Kilometer langen South West Coast Path entlang der Küsten von Somerset, Devon und Cornwall nach Dorset zu wandern. Sie will den Kopf freibekommen, endlich verstehen, warum ihr so vieles in ihrem Leben schwerer zu fallen scheint als anderen: Warum hat sie immer wieder das Gefühl, nicht recht zu verstehen, was andere meinen, wenn sie mit ihr sprechen? Warum verspürt sie so oft den Impuls, aus einer Gruppe Menschen in die Einsamkeit zu flüchten? Und warum empfindet sie es als besonders herausfordernd, Mutter zu sein?

This is the very personal and frank account of A.W.J. Pilgrim’s battle with schizophrenia, in the context of his whole life story. He is a Londoner, dad and talented prolific artist painter and author. Learn how his illness progressed, how he struggled, his personal thoughts about it, detailed accounts of being sectioned, effects of medications, psychosis, hallucinations & delusions. The story not all sad, he has had some good luck too, and still has dreams. Learn how he has put his schizophrenia into remission.

At once heartbreakingly honest and strikingly witty, Holding On by Letting Go is the unforgettable true story of one woman's journey through despair to acceptance and hope. Ultimately, it is a portrayal of the light that can be found in the darkest of times.

Discover the untold story behind one of Kathleen Norris's deeply personal relationships in Rebecca Sue. Best known for her insightful and poignant reflections on faith and life, Norris steps into uncharted territory by sharing an intimate memoir exploring the life of her younger sister Becky. Born with perinatal hypoxia, Becky's life was shaped by physical and mental disabilities, yet her spirit and resilience illuminate the hidden power of faith, family, and love.

After a normal, healthy, full-term pregnancy, Margaret Moore's parents Anne and Terrence were shocked as a prolapsed umbilical cord left their daughter unable to breathe on her own. Margaret, nicknamed Meg, was not expected to live through the night and began to breathe on her own by the next day—a phenomenon that medical personnel deemed a miraculous recovery. Meg came home with a physical disability Cerebral Palsy and permanent dependence on others for help with feeding, dressing, hygiene, and transfers to and from her wheelchair and walker.

Imagine if you were to lose your sight? Would it feel like the end of everything worthwhile? There is a way forward. Once you realise that blindness is a word and not a sentence, life takes on a new perspective. There are ways to thrive with vision loss. This book reveals how to turn such a life-challenge into a lifestyle you can fully manage and enjoy.

DEMENTIA and OUR LOVE, Caregiving as spiritual practice, is the story of Gary and Heather's love that sustained them through an unusual and courageous life across continents, including tending Gary and his onset of dementia at 73 years. The story helped them remember their love and use this energy to move through the hard times. We will always remember us this way, a song by Lady Gaga, was pivotal in keeping Heathers focus.

Junius Wilson (1908-2001) spent 76 years at a state mental hospital in Goldsboro, North Carolina, including 6 in the criminal ward. He had never been declared insane by a medical professional or found guilty of any criminal charge. But he was deaf and Black in the Jim Crow South. Unspeakable is the story of his life.