Disability Memoir

Having grown up on their great-grandfather’s stories, Royd Tolkien and his brother, Mike, have always enjoyed adventures. So when Mike is diagnosed with motor neurone disease, also known as ALS, the brothers decide to use the time they have left to tick off as much as possible from Mike’s bucket list, from remote camping in Norway to travelling through Royd’s beloved New Zealand. Yet, when Royd loses Mike, he discovers his brother had been writing another kind of bucket list: 50 things he wanted Royd to do after his death.

I discover a "lost" aunt, separated from our family due to racism and discrimination against the disabled. She had a mental disability due to childhood meningitis. She was taken away in 1942 when all Japanese Americans were considered the enemy and imprisoned. She then became a "ward" of the state. We believed she had died but 70 years later found her alive and living a few miles from our family farm. How did she survive? Why was she kept hidden? How did both shame and resilience empower my family to forge forward in a land that did not want them?

A deaf writer’s exploration of language, communication, and what it means to be articulate—and her journey to reclaim her voice Rachel Kolb was born profoundly deaf the same year that the Americans with Disabilities Act was passed, and she grew up as part of the first generation of deaf...

Folk musician, Broadway composer, and disability advocate Gaelynn Lea's warm, funny, poignant memoir is a love letter to every kind of body, to music, and to making it work––inviting us to embrace all of life's experiences with heart and determination Gaelynn Lea was born with Osteogenesis...

While preparing to deploy with the US Army, Marcus suffered a severe spinal injury that left him paralyzed. After dying on the operating table twice, the surgeons saved his life, but told him he'd never walk again. Having no other option, Marcus started doing some brutally honest soul-searching, looking for the lesson to be learned from his injury. Once he started seeing his adversity as a gift instead of a curse, something miraculous began to happen....

In Everything Is Going to be K.O. Kaiya Stone writes about her own experiences of living with specific learning difficulties: from struggling at school to being diagnosed with dyslexia and dyspraxia while at university, to performing her own one-woman stand up show inspired by her journey. Always funny and unfailingly honest, Kaiya outlines the frustrations of having SPLDS but also the ways in which they have fuelled her creativity.

Well-known disability activist and social media influencer, Melissa Blake, offers a frank, illuminating memoir and a call to action for disabled people and allies. In the summer of 2019, journalist Melissa Blake penned an op-ed for CNN Opinion. A conservative pundit caught wind of it, mentioning...

A memoir penned with one good finger, Ndopu writes about being profoundly disabled and profoundly successful Global humanitarian Eddie Ndopu was born with spinal muscular atrophy, a rare degenerative motor neuron disease affecting his mobility. He was told that he wouldn’t live beyond age five...

After a diagnosis of a degenerative eye disease, John Samuel’s life—and his chance at success—started to vanish. In a world systemically unequipped for accessibility, disability inclusion is often left out of conversations about diversity. For people with disabilities, it can feel impossible to adapt and thrive when you’re already set up for failure.

On an overcast September day in 1993, Jim Abbott took the mound at Yankee Stadium and threw one of the most dramatic no-hitters in major-league history. The game was the crowning achievement in an unlikely success story, unseen in the annals of professional sports. In Imperfect, the one-time big...

Twitch is a frank and funny memoir about picking up the pieces when personal tragedy hits. In 2021, Irish Examiner columnist, stylist, author and podcaster Annmarie O'Connor was diagnosed with early-onset Parkinson's disease, an incurable neurodegenerative condition broadly affecting movement and mental health. Though she is no longer working as a stylist as part of her career due to Parkinson's complications, Twitch outlines her journey from a life-altering diagnosis to becoming an activist and agent of change.

" On ne saura jamais quel aurait été mon destin sans cette maladie – une méningite bactérienne foudroyante à l’âge de six ans –, mais je n’aurais sans doute pas vécu le quart de ce que j’ai eu la chance de vivre jusqu’à présent. Je suis Théo Curin, vingt-deux ans, amputé des quatre membres, bien dans ma tête, bien dans ma peau. Quand on me demande comment je réagirais si on me rendait bras et jambes, je réponds : “Non, merci, je ne saurais qu’en faire !” J’ai des choses à dire et le sentiment d’être écouté, que demander de plus ? "

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford...

With his signature acerbic wit and hilarious voice, 20-something author, blogger, and entrepreneur Shane Burcaw is back with an essay collection about living a full life in a body that many people perceive as a tragedy. From anecdotes about first introductions where people patted him on the head instead of shaking his hand, to stories of passersby mistaking his able-bodied girlfriend for a nurse, Shane tackles awkward situations and assumptions with humor and grace.

In 1959, the year Terry Galloway turned nine, the voices of everyone she loved began to disappear. No one yet knew that an experimental antibiotic given to her mother had wreaked havoc on her fetal nervous system, eventually causing her to go deaf. As a self-proclaimed "child freak," she acted...

For 18 years of my life, I dealt with harm daily. I suffered over 40 years with a substantial assortment of trauma-related manifestations. The devastation of the problems began when I was a child and lasted until I was in my mid-40s. I know my story sounds bleak but don’t be discouraged. Peace, laughter, joy, and happiness eventually came my way.

When adventurous overseas traveler, Amy, is diagnosed with retinitis pigmentosa, she has no idea what difficulties lie ahead. After finishing mobility training from the Bureau of Blindness, she thinks her problems are solved, but when Amy tackles the streets with her white cane, the real fun begins. Determinedly sweeping away her fears, she starts to celebrate the reality of vision-impaired independence. Join the chaos and laughter in this series of uplifting anecdotes as Amy looks to the lighter side of mobility.

In Parkinson's & Recreation 2, Dennis shares ways in which he and his wife are traversing the progression of PD and is first and foremost a written legacy he is attempting to leave for his family. As a part of this attempt, Dennis has gone on a journey of uncovering his family roots. What would you feel if you discovered Viking kings in your lineage? What would you feel if you uncovered the mystery of how the Jernigan line was woven throughout the fabric of English nobility? What would such revelations mean for you and your family?

Love Is Blind is the memoir of Ruth Vallis. Blind before the age of three, Ruth was the youngest pioneer of integration in the public school system in Canada, blazing a trail for many to follow. At every stage of her extraordinary life, Ruth defied the low expectations of others, and took on such challenges as biking from Ottawa to Toronto, completing a master’s of science degree online before technology accessibility was legislated, and more. Through it all there was her tender, tough-loving mother, Peach.

In April of 2004, the long downward spiraling of Amy Bingaman's mental illness could no longer be hidden or ignored much less written off as a side-product of a colorful and quirky character. With no family able to help and no resources, she was involuntarily locked up in the draconian, archaic labyrinth that is the Wyoming Mental Health System. Armed with only a pocket dictionary and any paper she could find to write on, Amy wrote not only as a journal but at times as her only coping mechanism to salvage what was left of a breaking mind in a love/hate relationship with her alter-ego.