Disability Politics

At first glance, Josh Hanagarne seems an improbable librarian. He stands 6'7", competes in strongman contests, and was diagnosed in high school with Tourette's syndrome. But books are his first love - Josh's earliest memories involve fantastic adventures between the pages of Gulliver’s Travels and a passionate infatuation with Fern from Charlotte’s Web. Everything in Josh’s life - from his Mormon upbringing, to finally finding love, to learning to control his tics through lifting - circles back to a close connection with books.

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

David Paterson overcame severe disability and racial prejudice to become a state senator, lieutenant governor, and - unexpectedly - governor of New York. Paterson was the first and only blind governor - other than a man who held the title for 11 days in 1975 - and the fourth person of African descent to hold the office of governor in American history. Paterson may also be the only governor in history to have been arrested outside the governor's office prior to his service.

If you grow up in a world where wrinkles are practically illegal, going bald is cause for a mental breakdown, and women over size zero are encouraged to shoot themselves (immediately), what the hell do you do if you're, gasp... disabled? Whatever body you’re born into, the pressure to be normal is everywhere. But have you ever met a normal person? What do they look like? Where do they live? What do they eat for breakfast? And what the **** does normal mean anyway?

In the beloved classic book The Way I See It, Dr. Temple Grandin gets to the real issues of autism — the ones parents, teachers, and individuals on the spectrum face every day. In this updated and expanded fifth edition, Temple offers helpful dos and don’ts, practical strategies, and try-it-now tips all based on her insider perspective and a great deal of research.

Disability critiques of architecture usually emphasize the need for modification and increased access, but The Architecture of Disability calls for a radical reorientation of this perspective by situating experiences of impairment as a new foundation for the built environment. With its provocative proposal for "the construction of disability," this book fundamentally reconsiders how we conceive of and experience disability in our world.

When her daughters are born deaf, Rosner is stunned. Then she discovers a hidden history of deafness in her family, going back generations to the Jewish enclaves of Eastern Europe. Traveling back in time, she imagines her silent relatives, who showed surprising creativity in dealing with a world that preferred to ignore them. Rosner shares her journey into the modern world of deafness, and the controversial decisions she and her husband have made about hearing aids, cochlear implants, and sign language.

This is the real-life story of Owen Suskind, the son of the Pulitzer Prize-winning journalist Ron Suskind and his wife, Cornelia. An autistic boy who couldn't speak for years, Owen memorized dozens of Disney movies, turned them into a language to express love and loss, kinship, brotherhood. The family was forced to become animated characters, communicating with him in Disney dialogue and song; until they all emerge, together, revealing how, in darkness, we all literally need stories to survive.

As a boy, severely disabled after contracting polio as a baby in working class Liverpool, Bert Massie found himself wondering why disabled people were expected to adapt to the world around them, and not the other way round. In his teens, he began to campaign for rights for disabled people, and having battled his way through prejudice and the education system to become a Bachelor of Arts and a qualified social worker, he became a prominent figure in the fight for fair treatment for disabled people leading to the ground breaking Disability Discrimination Act.

Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage?

An inclusive and empowering manifesto for change in women’s healthcare – exploring the systemic and deep rooted sexism within medicine, and offering actionable ways for women to advocate for ourselves and others and get the diagnosis and treatment we need. Have you ever been to a doctor and felt like you were being fobbed off or ignored? Did they belittle or overlook your concerns about your health? Ever been told you’re just ‘hormonal’? You’re not alone.

Rising Tide Car Wash in Parkland, Florida, isn’t average in any way. When Tom D’Eri and his father John bought the location in 2013, it was struggling. Now it’s one of the highest-volume washes in Florida. Its employee retention rate is five times that of its competitors. It has spun off into two additional locations that have been immediately successful, and the business is absurdly profitable.

There Plant Eyes probes the ways in which blindness has shaped our ocularcentric culture, challenging deeply ingrained ideas about what it means to be “blind”. For millennia, blind­ness has been used to signify such things as thoughtlessness (“blind faith”), irrationality (“blind rage”), and unconsciousness (“blind evolution”). But at the same time, blind people have been othered as the recipients of special powers as compensation for lost sight (from the poetic gifts of John Milton to the heightened senses of the comic book hero Daredevil).

Ableism is embedded in our daily lives. Social life, education, work, and, especially, mental health have been organized around rigid ideas of the "ideal" and the "normal" citizen—ideas that always exclude neurodiversity. In this pathbreaking book, Chantelle Jessica Lewis and Jason Arday argue that the neurodiversity movement offers ways to mobilize against not only ableism but also other "isms" including racism and capitalism.

Boldly claiming a space in which people with disabilities can be seen and heard as they are-not as others perceive them - About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers, and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.

Raymond Antrobus was first diagnosed as deaf at the age of six. He discovered he had missing sounds—bird calls, whistles, kettles, alarms. Teachers thought he was slow and disruptive, some didn’t believe he was deaf at all. The Quiet Ear tells the story of Antrobus’s upbringing at the intersection of race and disability. Growing up in East London to an English mother and Jamaican father, educated in both mainstream and deaf schooling systems, Antrobus explores the shame of miscommunication, the joy of finding community, and shines a light on deaf education.

Helen Adams Keller was an American author, handicap rights champ, political activist, and speaker who lived from June 27, 1880 to June 1, 1968. She was born in West Tuscumbia, Alabama, and following a bout of health problem at the age of 19 months, she lost both her sight and hearing. Keller used home signals till she was seven years of age, when she met Anne Sullivan, her first instructor and long-lasting partner, who taught her language, and that includes reading and writing.

With Mental Health, Inc., award-winning investigative journalist Art Levine delivers a Shock Doctrine-style exposé of the failures of our out-of-control, profits-driven mental health system, with a special emphasis on the failures of the pharmaceuticals industry, including the treatment of children with antipsychotics and disastrous PTSD protocols for veterans.

For over twenty years, Dara Baldwin has often been the only person of color in the room when significant disability policy decisions are made. Disenfranchisement of people of color and multi-marginalized communities within the disability rights community is not new and has left many inside the community feeling frustrated and unheard. In Demanding Solidarity, Baldwin candidly shares her journey to becoming a disability activist and policymaker in DC while critiquing the disability rights community.

Blinded at age three, Mike May defied expectations by breaking world records in downhill speed skiing, joining the CIA, and becoming a successful inventor, entrepreneur, and family man. He had never yearned for vision. Then, in 1999, a chance encounter brought startling news: a revolutionary stem cell transplant surgery could restore May's vision.