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The Lady's Handbook for Her Mysterious Illness

A Memoir

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The Lady's Handbook for Her Mysterious Illness

Auteur(s): Sarah Ramey
Narrateur(s): Eileen Stevens, Sarah Ramey
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À propos de cet audio

 "A best memoir of 2020" —BookPage

The darkly funny memoir of Sarah Ramey’s years-long battle with a mysterious illness that doctors thought was all in her head—but wasn’t. A revelation and an inspiration for millions of women whose legitimate health complaints are ignored.

In her harrowing, defiant, and unforgettable memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed her health but that doctors couldn't diagnose or treat. Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological.
The Lady's Handbook for Her Mysterious Illness is a memoir with a mission: to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions--autoimmune illnesses, fibromyalgia and chronic fatigue syndrome, chronic Lyme disease, chronic pain, and many more. Ramey's pursuit of a diagnosis and cure for her own mysterious illness becomes a page-turning medical mystery that reveals a new understanding of today's chronic illnesses as ecological in nature, driven by modern changes to the basic foundations of health, from the quality of our sleep, diet, and social connections to the state of our microbiomes. Her book will open eyes, change lives, and, ultimately, change medicine. Femmes Maladies du système immunitaire et auto-immunes Monde médical Professionnels et universitaires Troubles et maladies Santé Mémoires Médecine Drôle Nutrition Exercice physique Syndrome de fatigue chronique Chronic Illness Chronic Fatigue
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this book is a must listen for chronic illness sufferers and their families and friends. it is such a relatable, all to familiar story for today's increasing chronically ill population, especially women! I highly recommend it

exceptional

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If you are a medical professional, of any kind, please please read (listen to) this book. While specifically dealing with the experience of those living with autoimmune and related (ish) chronic diseases, Sarah Ramey’s story of her nearly two decade medical journey to find a diagnosis and appropriate medical care, should be mandatory reading for anyone on the non-patient side of the stethoscope.

I promise you, no one book will so fully illuminate the experience of the millions of people (mostly women) desperate to receive care for their “mysterious illnesses”. This is an ethnography, an incredibly well-researched text (from someone who spent years consulting peer-reviewed medical literature and interviewing hundreds of women with autoimmune, CFS/ME and CSS in her own attempt to find answers), and an incredibly compelling enjoinder to just listen to women when they tell you something is not right with their health, even despite outward appearances and normal looking blood test results.

In addition to medical practitioners, this book cannot be recommended enough to the friends and family of those living with complex chronic health disorders. If you have struggled to understand your loved one’s experience, and/or wondered how you can help, you will wish this book was available to you years earlier. Even the first few chapters will be enormously helpful, but I would be surprised if you can stop listening there.

If however, you are, like me, a person with an autoimmune disease, or perhaps you have an undiagnosed “mysterious illness” that you have tried to find answers for to no avail, this is a different book altogether. This is a book of solidarity, a manifesto, and a battlecry. This is the empathetic, kind voice you have likely been searching for. This is a voice with authority, forged from a long personal journey and years of research. This book is not meant as a diagnostic or prescriptive tool, and Ramey does not claim to be a medical expert. She does however share her hard-earned knowledge to convey crucial information about some of the latest information about many “mysterious illnesses”. In addition, she also outlines some of the most up-to-date approaches for improving autoimmune conditions, fibromyalgia/central sensitivity syndrome, CFS/ME and related disorders.

All of this aside, this is also just a riveting story, by an incredible writer, that I think anyone will find difficult to put down. Sarah Ramey is an exquisite writer, and both her and Eileen Steven’s narration is superb.

This book is nothing short of profound.

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Sarah could of been writing my story, the soul crushing doctor appointments, the mystery illnesses, the hopes dashed by magic pills that never work...but then she found a fresh way to look at chronic illnesses and become a heroine on her health journey. I listen to the whole book in one day, anyone with ME/CFS this is well worth your time, energy & money!

I could not stop listening!

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I'm struggling to find the right words to encompass and express my deep well of thanks for Sarah and this book. Her book is a desperately needed and oh so sweet warm respite in the shit storm that is being a woman with a mysterious illnesses. It's a life raft to me, truly. It makes me feel less alone, reminds me this illness is not my fault and gave practical suggestions and hope.

At the same time there’s so much compassion to Sarah and all women dealing with a mysterious illness for the absolute agony, struggle and injustice we experience on our journey to find help, answers and healing.

Every doctor should read this book so they can truly glimpse and understand our perspective and the major holes in the system.

And lastly, the narration on the audiobook version is awesome.

A must read for any woman with a mysterious illness (and ideally for doctors too)

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An absolute brilliantly written memoir with outstanding narration! I couldn’t stop listening!!!! Such an important message for our time.

Wow wow wow

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